Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach
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Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach. / Bullinger, Monika; von Mackensen, Sylvia.
In: CLIN PSYCHOL PSYCHOT, Vol. 15, No. 3, 3, 31.12.2008, p. 164-172.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach
AU - Bullinger, Monika
AU - von Mackensen, Sylvia
N1 - Copyright (c) 2008 John Wiley & Sons, Ltd.
PY - 2008/12/31
Y1 - 2008/12/31
N2 - Quality of life (QoL) of children with chronic conditions has received increasing attention in recent years. While frequent paediatric health conditions and life-threatening conditions are in the foreground, QoL of children with rare diseases such as haemophilia is scarce. While haemophilia-specific instruments to assess QoL in children have been developed, cross-cultural comparison of QoL and its determinants has not been addressed so far. QoL and potential psychosocial determinants such as coping were assessed in 298 paediatric haemophilia patients from six European countries demonstrating significant differences in QoL between countries. Results indicated that psychosocial predictors varied across countries, although life satisfaction and social support explained the highest proportion of variance and, moreover, superseded clinical characteristics. These findings suggest that intervention programmes should be geared towards enhancing psychosocial resources in children and adolescents with haemophilia.
AB - Quality of life (QoL) of children with chronic conditions has received increasing attention in recent years. While frequent paediatric health conditions and life-threatening conditions are in the foreground, QoL of children with rare diseases such as haemophilia is scarce. While haemophilia-specific instruments to assess QoL in children have been developed, cross-cultural comparison of QoL and its determinants has not been addressed so far. QoL and potential psychosocial determinants such as coping were assessed in 298 paediatric haemophilia patients from six European countries demonstrating significant differences in QoL between countries. Results indicated that psychosocial predictors varied across countries, although life satisfaction and social support explained the highest proportion of variance and, moreover, superseded clinical characteristics. These findings suggest that intervention programmes should be geared towards enhancing psychosocial resources in children and adolescents with haemophilia.
KW - Adolescent
KW - Child
KW - Cross-Cultural Comparison
KW - Europe
KW - Female
KW - Health Status Indicators
KW - Health Surveys
KW - Hemophilia A/psychology
KW - Hemophilia B/psychology
KW - Hemorrhage/psychology
KW - Humans
KW - Male
KW - Psychometrics
KW - Quality of Life/psychology
KW - Sick Role
KW - Surveys and Questionnaires
U2 - 10.1002/cpp.569
DO - 10.1002/cpp.569
M3 - SCORING: Journal article
C2 - 19115437
VL - 15
SP - 164
EP - 172
JO - CLIN PSYCHOL PSYCHOT
JF - CLIN PSYCHOL PSYCHOT
SN - 1063-3995
IS - 3
M1 - 3
ER -