Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach

Monika Bullinger; Sylvia von Mackensen

doi:10.1002/cpp.569

Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach

Standard

Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach. / Bullinger, Monika; von Mackensen, Sylvia.

in: CLIN PSYCHOL PSYCHOT, Jahrgang 15, Nr. 3, 3, 31.12.2008, S. 164-172.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

Bullinger, M & von Mackensen, S 2008, 'Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach', CLIN PSYCHOL PSYCHOT, Jg. 15, Nr. 3, 3, S. 164-172. https://doi.org/10.1002/cpp.569

APA

Bullinger, M., & von Mackensen, S. (2008). Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach. CLIN PSYCHOL PSYCHOT, 15(3), 164-172. [3]. https://doi.org/10.1002/cpp.569

Vancouver

Bullinger M, von Mackensen S. Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach. CLIN PSYCHOL PSYCHOT. 2008 Dez 31;15(3):164-172. 3. https://doi.org/10.1002/cpp.569

Bibtex

@article{9c2dcef803c74c4aab333d2506b184dd,

title = "Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach",

abstract = "Quality of life (QoL) of children with chronic conditions has received increasing attention in recent years. While frequent paediatric health conditions and life-threatening conditions are in the foreground, QoL of children with rare diseases such as haemophilia is scarce. While haemophilia-specific instruments to assess QoL in children have been developed, cross-cultural comparison of QoL and its determinants has not been addressed so far. QoL and potential psychosocial determinants such as coping were assessed in 298 paediatric haemophilia patients from six European countries demonstrating significant differences in QoL between countries. Results indicated that psychosocial predictors varied across countries, although life satisfaction and social support explained the highest proportion of variance and, moreover, superseded clinical characteristics. These findings suggest that intervention programmes should be geared towards enhancing psychosocial resources in children and adolescents with haemophilia.",

keywords = "Adolescent, Child, Cross-Cultural Comparison, Europe, Female, Health Status Indicators, Health Surveys, Hemophilia A/psychology, Hemophilia B/psychology, Hemorrhage/psychology, Humans, Male, Psychometrics, Quality of Life/psychology, Sick Role, Surveys and Questionnaires",

author = "Monika Bullinger and {von Mackensen}, Sylvia",

year = "2008",

month = dec,

day = "31",

doi = "10.1002/cpp.569",

language = "English",

volume = "15",

pages = "164--172",

journal = "CLIN PSYCHOL PSYCHOT",

issn = "1063-3995",

publisher = "John Wiley and Sons Ltd",

number = "3",

}

RIS

TY - JOUR

T1 - Psycho-social determinants of quality of life in children and adolescents with haemophilia-a cross-cultural approach

AU - Bullinger, Monika

AU - von Mackensen, Sylvia

PY - 2008/12/31

Y1 - 2008/12/31

N2 - Quality of life (QoL) of children with chronic conditions has received increasing attention in recent years. While frequent paediatric health conditions and life-threatening conditions are in the foreground, QoL of children with rare diseases such as haemophilia is scarce. While haemophilia-specific instruments to assess QoL in children have been developed, cross-cultural comparison of QoL and its determinants has not been addressed so far. QoL and potential psychosocial determinants such as coping were assessed in 298 paediatric haemophilia patients from six European countries demonstrating significant differences in QoL between countries. Results indicated that psychosocial predictors varied across countries, although life satisfaction and social support explained the highest proportion of variance and, moreover, superseded clinical characteristics. These findings suggest that intervention programmes should be geared towards enhancing psychosocial resources in children and adolescents with haemophilia.

AB - Quality of life (QoL) of children with chronic conditions has received increasing attention in recent years. While frequent paediatric health conditions and life-threatening conditions are in the foreground, QoL of children with rare diseases such as haemophilia is scarce. While haemophilia-specific instruments to assess QoL in children have been developed, cross-cultural comparison of QoL and its determinants has not been addressed so far. QoL and potential psychosocial determinants such as coping were assessed in 298 paediatric haemophilia patients from six European countries demonstrating significant differences in QoL between countries. Results indicated that psychosocial predictors varied across countries, although life satisfaction and social support explained the highest proportion of variance and, moreover, superseded clinical characteristics. These findings suggest that intervention programmes should be geared towards enhancing psychosocial resources in children and adolescents with haemophilia.

KW - Adolescent

KW - Child

KW - Cross-Cultural Comparison

KW - Europe

KW - Female

KW - Health Status Indicators

KW - Health Surveys

KW - Hemophilia A/psychology

KW - Hemophilia B/psychology

KW - Hemorrhage/psychology

KW - Humans

KW - Male

KW - Psychometrics

KW - Quality of Life/psychology

KW - Sick Role

KW - Surveys and Questionnaires

U2 - 10.1002/cpp.569

DO - 10.1002/cpp.569

M3 - SCORING: Journal article

C2 - 19115437

VL - 15

SP - 164

EP - 172

JO - CLIN PSYCHOL PSYCHOT

JF - CLIN PSYCHOL PSYCHOT

SN - 1063-3995

IS - 3

M1 - 3

ER -