Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation
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Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation. / Gerschel, Tanita; Prokop, Scally; Schulze, Lara; Feige, Tim; Zschleschang, Anja; Barbe, Michael Thomas ; Bitterlich, Robert; Caffier, Julian; Csoti, Ilona; Eggers, Carsten; Gaßner, Heiko; Gülke, Eileen; Hähnel, Tom; Herbst, Heinz; Jochim, Angela; Kiparski, Anni; Klietz, Martin; von Liel, Alexa; Lingor, Paul; Loewenbrück, Kai; Maetzler, Walter; Pürner, Dominik; van Riesen, Christoph; Schmitz-Pfeiffer, Henning; Süß, Thorsten; Tönges, Lars; Weiß, Daniel; Wolz, Martin; Falkenburger, Björn.
In: NERVENARZT, Vol. 95, No. 6, 06.2024, p. 539-543.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation
AU - Gerschel, Tanita
AU - Prokop, Scally
AU - Schulze, Lara
AU - Feige, Tim
AU - Zschleschang, Anja
AU - Barbe, Michael Thomas
AU - Bitterlich, Robert
AU - Caffier, Julian
AU - Csoti, Ilona
AU - Eggers, Carsten
AU - Gaßner, Heiko
AU - Gülke, Eileen
AU - Hähnel, Tom
AU - Herbst, Heinz
AU - Jochim, Angela
AU - Kiparski, Anni
AU - Klietz, Martin
AU - von Liel, Alexa
AU - Lingor, Paul
AU - Loewenbrück, Kai
AU - Maetzler, Walter
AU - Pürner, Dominik
AU - van Riesen, Christoph
AU - Schmitz-Pfeiffer, Henning
AU - Süß, Thorsten
AU - Tönges, Lars
AU - Weiß, Daniel
AU - Wolz, Martin
AU - Falkenburger, Björn
PY - 2024/6
Y1 - 2024/6
N2 - BACKGROUND: As the most rapidly increasing neurodegenerative disease worldwide, Parkinson's disease is highly relevant to society. Successful treatment requires active patient participation. Patient education has been successfully implemented for many chronic diseases, such as diabetes and could also provide people with Parkinson's disease with skills to manage the disease better and to participate in shared decision making.MATERIAL AND METHODS: To prepare the implementation of a concept for patient education for people with Parkinson's disease, a structured consensus study was conducted and a pilot project formatively evaluated. The structured consensus study included experts from all over Germany. It consisted of two online surveys and an online consensus conference. The formative evaluation was conducted as three focus groups. Transcripts were evaluated using content-structuring qualitative content analysis.RESULTS: From the consensus procedure 59 consented statements emerged, mainly regarding the contents of a patient school and a group size of 6-8 persons. Only two statements could not be consented. The formative evaluation detected a tendency towards a positive attitude for a digital training format and a very positive evaluation of the contents.DISCUSSION: Overall, important recommendations for a patient school can be drawn from this study. The following subjects require further investigation: format, inclusion criteria, group composition and inclusion of caregivers.
AB - BACKGROUND: As the most rapidly increasing neurodegenerative disease worldwide, Parkinson's disease is highly relevant to society. Successful treatment requires active patient participation. Patient education has been successfully implemented for many chronic diseases, such as diabetes and could also provide people with Parkinson's disease with skills to manage the disease better and to participate in shared decision making.MATERIAL AND METHODS: To prepare the implementation of a concept for patient education for people with Parkinson's disease, a structured consensus study was conducted and a pilot project formatively evaluated. The structured consensus study included experts from all over Germany. It consisted of two online surveys and an online consensus conference. The formative evaluation was conducted as three focus groups. Transcripts were evaluated using content-structuring qualitative content analysis.RESULTS: From the consensus procedure 59 consented statements emerged, mainly regarding the contents of a patient school and a group size of 6-8 persons. Only two statements could not be consented. The formative evaluation detected a tendency towards a positive attitude for a digital training format and a very positive evaluation of the contents.DISCUSSION: Overall, important recommendations for a patient school can be drawn from this study. The following subjects require further investigation: format, inclusion criteria, group composition and inclusion of caregivers.
KW - Computer-Assisted Instruction/methods
KW - Consensus
KW - Curriculum
KW - Decision Making, Shared
KW - Focus Groups
KW - Germany
KW - Humans
KW - Male
KW - Parkinson Disease/therapy
KW - Patient Education as Topic/methods
KW - Patient Participation
KW - Pilot Projects
U2 - 10.1007/s00115-024-01639-z
DO - 10.1007/s00115-024-01639-z
M3 - SCORING: Zeitschriftenaufsatz
C2 - 38483548
VL - 95
SP - 539
EP - 543
JO - NERVENARZT
JF - NERVENARZT
SN - 0028-2804
IS - 6
ER -