Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation

Standard

Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation. / Gerschel, Tanita; Prokop, Scally; Schulze, Lara; Feige, Tim; Zschleschang, Anja; Barbe, Michael Thomas ; Bitterlich, Robert; Caffier, Julian; Csoti, Ilona; Eggers, Carsten; Gaßner, Heiko; Gülke, Eileen; Hähnel, Tom; Herbst, Heinz; Jochim, Angela; Kiparski, Anni; Klietz, Martin; von Liel, Alexa; Lingor, Paul; Loewenbrück, Kai; Maetzler, Walter; Pürner, Dominik; van Riesen, Christoph; Schmitz-Pfeiffer, Henning; Süß, Thorsten; Tönges, Lars; Weiß, Daniel; Wolz, Martin; Falkenburger, Björn.

in: NERVENARZT, Jahrgang 95, Nr. 6, 06.2024, S. 539-543.

Publikationen: SCORING: Beitrag in Fachzeitschrift/ZeitungSCORING: ZeitschriftenaufsatzForschungBegutachtung

Harvard

Gerschel, T, Prokop, S, Schulze, L, Feige, T, Zschleschang, A, Barbe, MT, Bitterlich, R, Caffier, J, Csoti, I, Eggers, C, Gaßner, H, Gülke, E, Hähnel, T, Herbst, H, Jochim, A, Kiparski, A, Klietz, M, von Liel, A, Lingor, P, Loewenbrück, K, Maetzler, W, Pürner, D, van Riesen, C, Schmitz-Pfeiffer, H, Süß, T, Tönges, L, Weiß, D, Wolz, M & Falkenburger, B 2024, 'Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation', NERVENARZT, Jg. 95, Nr. 6, S. 539-543. https://doi.org/10.1007/s00115-024-01639-z

APA

Gerschel, T., Prokop, S., Schulze, L., Feige, T., Zschleschang, A., Barbe, M. T., Bitterlich, R., Caffier, J., Csoti, I., Eggers, C., Gaßner, H., Gülke, E., Hähnel, T., Herbst, H., Jochim, A., Kiparski, A., Klietz, M., von Liel, A., Lingor, P., ... Falkenburger, B. (2024). Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation. NERVENARZT, 95(6), 539-543. https://doi.org/10.1007/s00115-024-01639-z

Vancouver

Bibtex

@article{7e8c42e7d4f9446e81bc42d2944387e6,
title = "Wie die Umsetzung einer Schule f{\"u}r Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation",
abstract = "BACKGROUND: As the most rapidly increasing neurodegenerative disease worldwide, Parkinson's disease is highly relevant to society. Successful treatment requires active patient participation. Patient education has been successfully implemented for many chronic diseases, such as diabetes and could also provide people with Parkinson's disease with skills to manage the disease better and to participate in shared decision making.MATERIAL AND METHODS: To prepare the implementation of a concept for patient education for people with Parkinson's disease, a structured consensus study was conducted and a pilot project formatively evaluated. The structured consensus study included experts from all over Germany. It consisted of two online surveys and an online consensus conference. The formative evaluation was conducted as three focus groups. Transcripts were evaluated using content-structuring qualitative content analysis.RESULTS: From the consensus procedure 59 consented statements emerged, mainly regarding the contents of a patient school and a group size of 6-8 persons. Only two statements could not be consented. The formative evaluation detected a tendency towards a positive attitude for a digital training format and a very positive evaluation of the contents.DISCUSSION: Overall, important recommendations for a patient school can be drawn from this study. The following subjects require further investigation: format, inclusion criteria, group composition and inclusion of caregivers.",
keywords = "Computer-Assisted Instruction/methods, Consensus, Curriculum, Decision Making, Shared, Focus Groups, Germany, Humans, Male, Parkinson Disease/therapy, Patient Education as Topic/methods, Patient Participation, Pilot Projects",
author = "Tanita Gerschel and Scally Prokop and Lara Schulze and Tim Feige and Anja Zschleschang and Barbe, {Michael Thomas} and Robert Bitterlich and Julian Caffier and Ilona Csoti and Carsten Eggers and Heiko Ga{\ss}ner and Eileen G{\"u}lke and Tom H{\"a}hnel and Heinz Herbst and Angela Jochim and Anni Kiparski and Martin Klietz and {von Liel}, Alexa and Paul Lingor and Kai Loewenbr{\"u}ck and Walter Maetzler and Dominik P{\"u}rner and {van Riesen}, Christoph and Henning Schmitz-Pfeiffer and Thorsten S{\"u}{\ss} and Lars T{\"o}nges and Daniel Wei{\ss} and Martin Wolz and Bj{\"o}rn Falkenburger",
year = "2024",
month = jun,
doi = "10.1007/s00115-024-01639-z",
language = "Deutsch",
volume = "95",
pages = "539--543",
journal = "NERVENARZT",
issn = "0028-2804",
publisher = "Springer",
number = "6",

}

RIS

TY - JOUR

T1 - Wie die Umsetzung einer Schule für Menschen mit Parkinson-Krankheit gelingen kann - Ergebnisse eines Konsensusverfahrens und einer formativen Evaluation

AU - Gerschel, Tanita

AU - Prokop, Scally

AU - Schulze, Lara

AU - Feige, Tim

AU - Zschleschang, Anja

AU - Barbe, Michael Thomas

AU - Bitterlich, Robert

AU - Caffier, Julian

AU - Csoti, Ilona

AU - Eggers, Carsten

AU - Gaßner, Heiko

AU - Gülke, Eileen

AU - Hähnel, Tom

AU - Herbst, Heinz

AU - Jochim, Angela

AU - Kiparski, Anni

AU - Klietz, Martin

AU - von Liel, Alexa

AU - Lingor, Paul

AU - Loewenbrück, Kai

AU - Maetzler, Walter

AU - Pürner, Dominik

AU - van Riesen, Christoph

AU - Schmitz-Pfeiffer, Henning

AU - Süß, Thorsten

AU - Tönges, Lars

AU - Weiß, Daniel

AU - Wolz, Martin

AU - Falkenburger, Björn

PY - 2024/6

Y1 - 2024/6

N2 - BACKGROUND: As the most rapidly increasing neurodegenerative disease worldwide, Parkinson's disease is highly relevant to society. Successful treatment requires active patient participation. Patient education has been successfully implemented for many chronic diseases, such as diabetes and could also provide people with Parkinson's disease with skills to manage the disease better and to participate in shared decision making.MATERIAL AND METHODS: To prepare the implementation of a concept for patient education for people with Parkinson's disease, a structured consensus study was conducted and a pilot project formatively evaluated. The structured consensus study included experts from all over Germany. It consisted of two online surveys and an online consensus conference. The formative evaluation was conducted as three focus groups. Transcripts were evaluated using content-structuring qualitative content analysis.RESULTS: From the consensus procedure 59 consented statements emerged, mainly regarding the contents of a patient school and a group size of 6-8 persons. Only two statements could not be consented. The formative evaluation detected a tendency towards a positive attitude for a digital training format and a very positive evaluation of the contents.DISCUSSION: Overall, important recommendations for a patient school can be drawn from this study. The following subjects require further investigation: format, inclusion criteria, group composition and inclusion of caregivers.

AB - BACKGROUND: As the most rapidly increasing neurodegenerative disease worldwide, Parkinson's disease is highly relevant to society. Successful treatment requires active patient participation. Patient education has been successfully implemented for many chronic diseases, such as diabetes and could also provide people with Parkinson's disease with skills to manage the disease better and to participate in shared decision making.MATERIAL AND METHODS: To prepare the implementation of a concept for patient education for people with Parkinson's disease, a structured consensus study was conducted and a pilot project formatively evaluated. The structured consensus study included experts from all over Germany. It consisted of two online surveys and an online consensus conference. The formative evaluation was conducted as three focus groups. Transcripts were evaluated using content-structuring qualitative content analysis.RESULTS: From the consensus procedure 59 consented statements emerged, mainly regarding the contents of a patient school and a group size of 6-8 persons. Only two statements could not be consented. The formative evaluation detected a tendency towards a positive attitude for a digital training format and a very positive evaluation of the contents.DISCUSSION: Overall, important recommendations for a patient school can be drawn from this study. The following subjects require further investigation: format, inclusion criteria, group composition and inclusion of caregivers.

KW - Computer-Assisted Instruction/methods

KW - Consensus

KW - Curriculum

KW - Decision Making, Shared

KW - Focus Groups

KW - Germany

KW - Humans

KW - Male

KW - Parkinson Disease/therapy

KW - Patient Education as Topic/methods

KW - Patient Participation

KW - Pilot Projects

U2 - 10.1007/s00115-024-01639-z

DO - 10.1007/s00115-024-01639-z

M3 - SCORING: Zeitschriftenaufsatz

C2 - 38483548

VL - 95

SP - 539

EP - 543

JO - NERVENARZT

JF - NERVENARZT

SN - 0028-2804

IS - 6

ER -