Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1

Anna-Christina Leidger; Marie Vosschulte; Timo Ole Nieder; Victor-Felix Mautner

doi:10.3389/fpsyg.2022.883019

Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1

Standard

Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1. / Leidger, Anna-Christina ; Vosschulte, Marie ; Nieder, Timo Ole ; Mautner, Victor-Felix.

In: FRONT PSYCHOL, Vol. 13, 883019, 09.06.2022.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Leidger, A-C , Vosschulte, M , Nieder, TO & Mautner, V-F 2022, 'Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1', FRONT PSYCHOL, vol. 13, 883019. https://doi.org/10.3389/fpsyg.2022.883019, https://doi.org/10.3389/fpsyg.2022.883019

APA

Leidger, A-C., Vosschulte, M., Nieder, T. O., & Mautner, V-F. (2022). Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1. FRONT PSYCHOL, 13, [883019]. https://doi.org/10.3389/fpsyg.2022.883019, https://doi.org/10.3389/fpsyg.2022.883019

Vancouver

Leidger A-C , Vosschulte M , Nieder TO , Mautner V-F. Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1. FRONT PSYCHOL. 2022 Jun 9;13. 883019. https://doi.org/10.3389/fpsyg.2022.883019, https://doi.org/10.3389/fpsyg.2022.883019

Bibtex

@article{a5bd64331bf74d27bb7a08732aef1f44,

title = "Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1",

abstract = "Neurofibromatosis type 1 (NF1) is one of the most common tumor predisposition syndromes which primarily affects the skin. NF1 is characterized by various degrees of skin tumors and pigmentation abnormalities such as caf{\'e}-au-lait macules. Other skin diseases, such as psoriasis or neurodermatitis, have a negative influence on sexuality and quality of life and represent a psychological burden for those affected. The present study investigated the extent to which skin tumors (disfigurement) are related to sexuality and psychosocial factors in NF1 individuals. An anonymous online survey was carried out on Facebook and the webpage of the German Neurofibromatosis Association and a total of 166 persons participated. Of these participants, 92 were affected by NF1.74 healthy persons took part in the survey as a comparative group. Results show a significant relation between sexuality, body image, quality of life and the presence of depressive symptoms of the NF1 affected persons. Individuals with NF1 show a more negative sexual self-esteem. These concerns should be taken into account in NF1- related health care approaches.",

author = "Anna-Christina Leidger and Marie Vosschulte and Nieder, {Timo Ole} and Victor-Felix Mautner",

note = "Copyright {\textcopyright} 2022 Leidger, Vosschulte, Nieder and Mautner.",

year = "2022",

month = jun,

day = "9",

doi = "10.3389/fpsyg.2022.883019",

language = "English",

volume = "13",

journal = "FRONT PSYCHOL",

issn = "1664-1078",

publisher = "Frontiers Research Foundation",

}

RIS

TY - JOUR

T1 - Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1

AU - Leidger, Anna-Christina

AU - Vosschulte, Marie

AU - Nieder, Timo Ole

AU - Mautner, Victor-Felix

PY - 2022/6/9

Y1 - 2022/6/9

N2 - Neurofibromatosis type 1 (NF1) is one of the most common tumor predisposition syndromes which primarily affects the skin. NF1 is characterized by various degrees of skin tumors and pigmentation abnormalities such as café-au-lait macules. Other skin diseases, such as psoriasis or neurodermatitis, have a negative influence on sexuality and quality of life and represent a psychological burden for those affected. The present study investigated the extent to which skin tumors (disfigurement) are related to sexuality and psychosocial factors in NF1 individuals. An anonymous online survey was carried out on Facebook and the webpage of the German Neurofibromatosis Association and a total of 166 persons participated. Of these participants, 92 were affected by NF1.74 healthy persons took part in the survey as a comparative group. Results show a significant relation between sexuality, body image, quality of life and the presence of depressive symptoms of the NF1 affected persons. Individuals with NF1 show a more negative sexual self-esteem. These concerns should be taken into account in NF1- related health care approaches.

AB - Neurofibromatosis type 1 (NF1) is one of the most common tumor predisposition syndromes which primarily affects the skin. NF1 is characterized by various degrees of skin tumors and pigmentation abnormalities such as café-au-lait macules. Other skin diseases, such as psoriasis or neurodermatitis, have a negative influence on sexuality and quality of life and represent a psychological burden for those affected. The present study investigated the extent to which skin tumors (disfigurement) are related to sexuality and psychosocial factors in NF1 individuals. An anonymous online survey was carried out on Facebook and the webpage of the German Neurofibromatosis Association and a total of 166 persons participated. Of these participants, 92 were affected by NF1.74 healthy persons took part in the survey as a comparative group. Results show a significant relation between sexuality, body image, quality of life and the presence of depressive symptoms of the NF1 affected persons. Individuals with NF1 show a more negative sexual self-esteem. These concerns should be taken into account in NF1- related health care approaches.

U2 - 10.3389/fpsyg.2022.883019

DO - 10.3389/fpsyg.2022.883019

M3 - SCORING: Journal article

C2 - 35756263

VL - 13

JO - FRONT PSYCHOL

JF - FRONT PSYCHOL

SN - 1664-1078

M1 - 883019

ER -