Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1
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Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1. / Leidger, Anna-Christina; Vosschulte, Marie; Nieder, Timo Ole; Mautner, Victor-Felix.
in: FRONT PSYCHOL, Jahrgang 13, 883019, 09.06.2022.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Sexual Self-Esteem and Psychological Burden of Adults With Neurofibromatosis Type1
AU - Leidger, Anna-Christina
AU - Vosschulte, Marie
AU - Nieder, Timo Ole
AU - Mautner, Victor-Felix
N1 - Copyright © 2022 Leidger, Vosschulte, Nieder and Mautner.
PY - 2022/6/9
Y1 - 2022/6/9
N2 - Neurofibromatosis type 1 (NF1) is one of the most common tumor predisposition syndromes which primarily affects the skin. NF1 is characterized by various degrees of skin tumors and pigmentation abnormalities such as café-au-lait macules. Other skin diseases, such as psoriasis or neurodermatitis, have a negative influence on sexuality and quality of life and represent a psychological burden for those affected. The present study investigated the extent to which skin tumors (disfigurement) are related to sexuality and psychosocial factors in NF1 individuals. An anonymous online survey was carried out on Facebook and the webpage of the German Neurofibromatosis Association and a total of 166 persons participated. Of these participants, 92 were affected by NF1.74 healthy persons took part in the survey as a comparative group. Results show a significant relation between sexuality, body image, quality of life and the presence of depressive symptoms of the NF1 affected persons. Individuals with NF1 show a more negative sexual self-esteem. These concerns should be taken into account in NF1- related health care approaches.
AB - Neurofibromatosis type 1 (NF1) is one of the most common tumor predisposition syndromes which primarily affects the skin. NF1 is characterized by various degrees of skin tumors and pigmentation abnormalities such as café-au-lait macules. Other skin diseases, such as psoriasis or neurodermatitis, have a negative influence on sexuality and quality of life and represent a psychological burden for those affected. The present study investigated the extent to which skin tumors (disfigurement) are related to sexuality and psychosocial factors in NF1 individuals. An anonymous online survey was carried out on Facebook and the webpage of the German Neurofibromatosis Association and a total of 166 persons participated. Of these participants, 92 were affected by NF1.74 healthy persons took part in the survey as a comparative group. Results show a significant relation between sexuality, body image, quality of life and the presence of depressive symptoms of the NF1 affected persons. Individuals with NF1 show a more negative sexual self-esteem. These concerns should be taken into account in NF1- related health care approaches.
U2 - 10.3389/fpsyg.2022.883019
DO - 10.3389/fpsyg.2022.883019
M3 - SCORING: Journal article
C2 - 35756263
VL - 13
JO - FRONT PSYCHOL
JF - FRONT PSYCHOL
SN - 1664-1078
M1 - 883019
ER -