Placing patient-reported outcomes at the centre of cardiovascular clinical practice: implications for quality of care and management

TY - JOUR

T1 - Placing patient-reported outcomes at the centre of cardiovascular clinical practice: implications for quality of care and management

T2 - A statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the Association for Acute CardioVascular Care (ACVC), European Association of Percutaneous Cardiovascular Interventions (EAPCI), European Association of Preventive Cardiology (EAPC), Heart Failure Association (HFA), European Heart Rhythm Association (EHRA), European Association of Cardiovascular Imaging (EACVI), ESC Regulatory Affairs Committee, ESC Advocacy Committee, ESC Digital Health Committee, ESC Education Committee, and the ESC Patient Forum

AU - Moons, Philip

AU - Norekvål, Tone M

AU - Arbelo, Elena

AU - Borregaard, Britt

AU - Casadei, Barbara

AU - Cosyns, Bernard

AU - Cowie, Martin R

AU - Fitzsimons, Donna

AU - Fraser, Alan G

AU - Jaarsma, Tiny

AU - Kirchhof, Paulus

AU - Mauri, Josepa

AU - Mindham, Richard

AU - Sanders, Julie

AU - Schiele, Francois

AU - Torbica, Aleksandra

AU - Zwisler, Ann Dorthe

N1 - © The Author(s) 2023. Published by Oxford University Press on behalf of the European Society of Cardiology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

PY - 2023/9/21

Y1 - 2023/9/21

N2 - Patient-reported outcomes (PROs) provide important insights into patients' own perspectives about their health and medical condition, and there is evidence that their use can lead to improvements in the quality of care and to better-informed clinical decisions. Their application in cardiovascular populations has grown over the past decades. This statement describes what PROs are, and it provides an inventory of disease-specific and domain-specific PROs that have been developed for cardiovascular populations. International standards and quality indices have been published, which can guide the selection of PROs for clinical practice and in clinical trials and research; patients as well as experts in psychometrics should be involved in choosing which are most appropriate. Collaborations are needed to define criteria for using PROs to guide regulatory decisions, and the utility of PROs for comparing and monitoring the quality of care and for allocating resources should be evaluated. New sources for recording PROs include wearable digital health devices, medical registries, and electronic health record. Advice is given for the optimal use of PROs in shared clinical decision-making in cardiovascular medicine, and concerning future directions for their wider application.

AB - Patient-reported outcomes (PROs) provide important insights into patients' own perspectives about their health and medical condition, and there is evidence that their use can lead to improvements in the quality of care and to better-informed clinical decisions. Their application in cardiovascular populations has grown over the past decades. This statement describes what PROs are, and it provides an inventory of disease-specific and domain-specific PROs that have been developed for cardiovascular populations. International standards and quality indices have been published, which can guide the selection of PROs for clinical practice and in clinical trials and research; patients as well as experts in psychometrics should be involved in choosing which are most appropriate. Collaborations are needed to define criteria for using PROs to guide regulatory decisions, and the utility of PROs for comparing and monitoring the quality of care and for allocating resources should be evaluated. New sources for recording PROs include wearable digital health devices, medical registries, and electronic health record. Advice is given for the optimal use of PROs in shared clinical decision-making in cardiovascular medicine, and concerning future directions for their wider application.

KW - Humans

KW - Patient Reported Outcome Measures

KW - Quality of Life

U2 - 10.1093/eurheartj/ehad514

DO - 10.1093/eurheartj/ehad514

M3 - SCORING: Journal article

C2 - 37606064

VL - 44

SP - 3405

EP - 3422

JO - EUR HEART J

JF - EUR HEART J

SN - 0195-668X

IS - 36

ER -