Patient-Reported Outcome Measures in Dermatology: A Systematic Review

Standard

Patient-Reported Outcome Measures in Dermatology: A Systematic Review. / Pattinson, Rachael L; Trialonis-Suthakharan, Nirohshah; Gupta, Sunnia; Henry, Alasdair L; Lavallée, Jacqueline F; Otten, Marina; Pickles, Timothy; Courtier, Nick; Austin, Jennifer; Janus, Christine; Augustin, Matthias; Bundy, Chris.

In: ACTA DERM-VENEREOL, Vol. 101, No. 9, adv00559, 28.09.2021.

Research output: SCORING: Contribution to journalSCORING: Review articleResearch

Harvard

Pattinson, RL, Trialonis-Suthakharan, N, Gupta, S, Henry, AL, Lavallée, JF, Otten, M, Pickles, T, Courtier, N, Austin, J, Janus, C, Augustin, M & Bundy, C 2021, 'Patient-Reported Outcome Measures in Dermatology: A Systematic Review', ACTA DERM-VENEREOL, vol. 101, no. 9, adv00559. https://doi.org/10.2340/00015555-3884

APA

Pattinson, R. L., Trialonis-Suthakharan, N., Gupta, S., Henry, A. L., Lavallée, J. F., Otten, M., Pickles, T., Courtier, N., Austin, J., Janus, C., Augustin, M., & Bundy, C. (2021). Patient-Reported Outcome Measures in Dermatology: A Systematic Review. ACTA DERM-VENEREOL, 101(9), [adv00559]. https://doi.org/10.2340/00015555-3884

Vancouver

Bibtex

@article{cbcf29839a0c437284a404a2a4fb399a,
title = "Patient-Reported Outcome Measures in Dermatology: A Systematic Review",
abstract = "By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients' lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient's life is needed.",
keywords = "Consensus, Dermatology, Humans, Patient Reported Outcome Measures, Quality of Life",
author = "Pattinson, {Rachael L} and Nirohshah Trialonis-Suthakharan and Sunnia Gupta and Henry, {Alasdair L} and Lavall{\'e}e, {Jacqueline F} and Marina Otten and Timothy Pickles and Nick Courtier and Jennifer Austin and Christine Janus and Matthias Augustin and Chris Bundy",
year = "2021",
month = sep,
day = "28",
doi = "10.2340/00015555-3884",
language = "English",
volume = "101",
journal = "ACTA DERM-VENEREOL",
issn = "0001-5555",
publisher = "Society for the Publication of Acta Dermato-Venereologica",
number = "9",

}

RIS

TY - JOUR

T1 - Patient-Reported Outcome Measures in Dermatology: A Systematic Review

AU - Pattinson, Rachael L

AU - Trialonis-Suthakharan, Nirohshah

AU - Gupta, Sunnia

AU - Henry, Alasdair L

AU - Lavallée, Jacqueline F

AU - Otten, Marina

AU - Pickles, Timothy

AU - Courtier, Nick

AU - Austin, Jennifer

AU - Janus, Christine

AU - Augustin, Matthias

AU - Bundy, Chris

PY - 2021/9/28

Y1 - 2021/9/28

N2 - By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients' lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient's life is needed.

AB - By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients' lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient's life is needed.

KW - Consensus

KW - Dermatology

KW - Humans

KW - Patient Reported Outcome Measures

KW - Quality of Life

U2 - 10.2340/00015555-3884

DO - 10.2340/00015555-3884

M3 - SCORING: Review article

C2 - 34263330

VL - 101

JO - ACTA DERM-VENEREOL

JF - ACTA DERM-VENEREOL

SN - 0001-5555

IS - 9

M1 - adv00559

ER -