Patient-Reported Outcome Measures in Dermatology: A Systematic Review
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Patient-Reported Outcome Measures in Dermatology: A Systematic Review. / Pattinson, Rachael L; Trialonis-Suthakharan, Nirohshah; Gupta, Sunnia; Henry, Alasdair L; Lavallée, Jacqueline F; Otten, Marina; Pickles, Timothy; Courtier, Nick; Austin, Jennifer; Janus, Christine; Augustin, Matthias; Bundy, Chris.
in: ACTA DERM-VENEREOL, Jahrgang 101, Nr. 9, adv00559, 28.09.2021.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Review › Forschung
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TY - JOUR
T1 - Patient-Reported Outcome Measures in Dermatology: A Systematic Review
AU - Pattinson, Rachael L
AU - Trialonis-Suthakharan, Nirohshah
AU - Gupta, Sunnia
AU - Henry, Alasdair L
AU - Lavallée, Jacqueline F
AU - Otten, Marina
AU - Pickles, Timothy
AU - Courtier, Nick
AU - Austin, Jennifer
AU - Janus, Christine
AU - Augustin, Matthias
AU - Bundy, Chris
PY - 2021/9/28
Y1 - 2021/9/28
N2 - By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients' lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient's life is needed.
AB - By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients' lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient's life is needed.
KW - Consensus
KW - Dermatology
KW - Humans
KW - Patient Reported Outcome Measures
KW - Quality of Life
U2 - 10.2340/00015555-3884
DO - 10.2340/00015555-3884
M3 - SCORING: Review article
C2 - 34263330
VL - 101
JO - ACTA DERM-VENEREOL
JF - ACTA DERM-VENEREOL
SN - 0001-5555
IS - 9
M1 - adv00559
ER -