Patient-relevant Needs and Treatment Goals in Nail Psoriasis
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Patient-relevant Needs and Treatment Goals in Nail Psoriasis. / Blome, C; Costanzo, A; Dauden, E; Ferrandiz, C; Girolomoni, G; Gniadecki, R; Iversen, L; Menter, A; Michaelis-Wittern, K; Morita, A; Nakagawa, H; Reich, K; Augustin, M.
In: QUAL LIFE RES, Vol. 25, No. 5, 05.2016, p. 1179-1188.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - Patient-relevant Needs and Treatment Goals in Nail Psoriasis
AU - Blome, C
AU - Costanzo, A
AU - Dauden, E
AU - Ferrandiz, C
AU - Girolomoni, G
AU - Gniadecki, R
AU - Iversen, L
AU - Menter, A
AU - Michaelis-Wittern, K
AU - Morita, A
AU - Nakagawa, H
AU - Reich, K
AU - Augustin, M
PY - 2016/5
Y1 - 2016/5
N2 - PURPOSE: Patient-centered health care implies that medical decisions are made jointly by physician and patient, based on patient needs. Aims were to (a) identify treatment goals for a new questionnaire on patient needs and benefits in nail psoriasis treatment; (b) analyze the importance of treatment goals in patients with nail psoriasis in general and in defined subgroups; and (c) determine the association between overall treatment goal importance and quality of life.METHODS: The study comprised the following steps: qualitative survey on needs and burdens in 120 patients; development of items by an interdisciplinary expert group; item testing in 55 patients in four countries; revision of the questionnaire and assessment in 203 patients in six countries (Germany, Denmark, Italy, Spain, USA, Japan). The percentage of patients rating the goals as 'quite/very important' was compared between various patient subgroups.RESULTS: Based on 692 free-text statements, 26 items were developed which were reduced to 24 items after pilot testing. Each of these treatment goals applied to the majority of patients in the multi-center study. Goal importance increased with severity of nail psoriasis, but not with age or disease duration. Manual dexterity and social interaction were of particular importance. Goal importance and quality of life were associated, but not redundant (r = 0.612, p < 0.001).CONCLUSIONS: Patients with nail psoriasis have manifold and specific treatment goals. Goal importance is a construct different from disease-specific quality of life and should be assessed separately. The new questionnaire can support goal setting in clinical practice.
AB - PURPOSE: Patient-centered health care implies that medical decisions are made jointly by physician and patient, based on patient needs. Aims were to (a) identify treatment goals for a new questionnaire on patient needs and benefits in nail psoriasis treatment; (b) analyze the importance of treatment goals in patients with nail psoriasis in general and in defined subgroups; and (c) determine the association between overall treatment goal importance and quality of life.METHODS: The study comprised the following steps: qualitative survey on needs and burdens in 120 patients; development of items by an interdisciplinary expert group; item testing in 55 patients in four countries; revision of the questionnaire and assessment in 203 patients in six countries (Germany, Denmark, Italy, Spain, USA, Japan). The percentage of patients rating the goals as 'quite/very important' was compared between various patient subgroups.RESULTS: Based on 692 free-text statements, 26 items were developed which were reduced to 24 items after pilot testing. Each of these treatment goals applied to the majority of patients in the multi-center study. Goal importance increased with severity of nail psoriasis, but not with age or disease duration. Manual dexterity and social interaction were of particular importance. Goal importance and quality of life were associated, but not redundant (r = 0.612, p < 0.001).CONCLUSIONS: Patients with nail psoriasis have manifold and specific treatment goals. Goal importance is a construct different from disease-specific quality of life and should be assessed separately. The new questionnaire can support goal setting in clinical practice.
KW - Adult
KW - Aged
KW - Aged, 80 and over
KW - Denmark
KW - Female
KW - Germany
KW - Goals
KW - Humans
KW - Italy
KW - Japan
KW - Male
KW - Middle Aged
KW - Nail Diseases
KW - Nails
KW - Needs Assessment
KW - Patient-Centered Care
KW - Psoriasis
KW - Quality of Life
KW - Spain
KW - Surveys and Questionnaires
KW - Young Adult
KW - Journal Article
KW - Multicenter Study
KW - Research Support, Non-U.S. Gov't
U2 - 10.1007/s11136-015-1136-y
DO - 10.1007/s11136-015-1136-y
M3 - SCORING: Journal article
C2 - 26433952
VL - 25
SP - 1179
EP - 1188
JO - QUAL LIFE RES
JF - QUAL LIFE RES
SN - 0962-9343
IS - 5
ER -