PortalPublikationenPatient-relevant Needs and Treatment Goals in Nail Psoriasis

Patient-relevant Needs and Treatment Goals in Nail Psoriasis

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Patient-relevant Needs and Treatment Goals in Nail Psoriasis. / Blome, C; Costanzo, A; Dauden, E; Ferrandiz, C; Girolomoni, G; Gniadecki, R; Iversen, L; Menter, A; Michaelis-Wittern, K; Morita, A; Nakagawa, H; Reich, K; Augustin, M.

in: QUAL LIFE RES, Jahrgang 25, Nr. 5, 05.2016, S. 1179-1188.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

Blome, C, Costanzo, A, Dauden, E, Ferrandiz, C, Girolomoni, G, Gniadecki, R, Iversen, L, Menter, A, Michaelis-Wittern, K, Morita, A, Nakagawa, H, Reich, K & Augustin, M 2016, 'Patient-relevant Needs and Treatment Goals in Nail Psoriasis', QUAL LIFE RES, Jg. 25, Nr. 5, S. 1179-1188. https://doi.org/10.1007/s11136-015-1136-y

APA

Blome, C., Costanzo, A., Dauden, E., Ferrandiz, C., Girolomoni, G., Gniadecki, R., Iversen, L., Menter, A., Michaelis-Wittern, K., Morita, A., Nakagawa, H., Reich, K., & Augustin, M. (2016). Patient-relevant Needs and Treatment Goals in Nail Psoriasis. QUAL LIFE RES, 25(5), 1179-1188. https://doi.org/10.1007/s11136-015-1136-y

Vancouver

Blome C, Costanzo A, Dauden E, Ferrandiz C, Girolomoni G, Gniadecki R et al. Patient-relevant Needs and Treatment Goals in Nail Psoriasis. QUAL LIFE RES. 2016 Mai;25(5):1179-1188. https://doi.org/10.1007/s11136-015-1136-y

Bibtex

@article{93577cc285634e8e8f9306d435dd143a,
title = "Patient-relevant Needs and Treatment Goals in Nail Psoriasis",
abstract = "PURPOSE: Patient-centered health care implies that medical decisions are made jointly by physician and patient, based on patient needs. Aims were to (a) identify treatment goals for a new questionnaire on patient needs and benefits in nail psoriasis treatment; (b) analyze the importance of treatment goals in patients with nail psoriasis in general and in defined subgroups; and (c) determine the association between overall treatment goal importance and quality of life.METHODS: The study comprised the following steps: qualitative survey on needs and burdens in 120 patients; development of items by an interdisciplinary expert group; item testing in 55 patients in four countries; revision of the questionnaire and assessment in 203 patients in six countries (Germany, Denmark, Italy, Spain, USA, Japan). The percentage of patients rating the goals as 'quite/very important' was compared between various patient subgroups.RESULTS: Based on 692 free-text statements, 26 items were developed which were reduced to 24 items after pilot testing. Each of these treatment goals applied to the majority of patients in the multi-center study. Goal importance increased with severity of nail psoriasis, but not with age or disease duration. Manual dexterity and social interaction were of particular importance. Goal importance and quality of life were associated, but not redundant (r = 0.612, p < 0.001).CONCLUSIONS: Patients with nail psoriasis have manifold and specific treatment goals. Goal importance is a construct different from disease-specific quality of life and should be assessed separately. The new questionnaire can support goal setting in clinical practice.",
keywords = "Adult, Aged, Aged, 80 and over, Denmark, Female, Germany, Goals, Humans, Italy, Japan, Male, Middle Aged, Nail Diseases, Nails, Needs Assessment, Patient-Centered Care, Psoriasis, Quality of Life, Spain, Surveys and Questionnaires, Young Adult, Journal Article, Multicenter Study, Research Support, Non-U.S. Gov't",
author = "C Blome and A Costanzo and E Dauden and C Ferrandiz and G Girolomoni and R Gniadecki and L Iversen and A Menter and K Michaelis-Wittern and A Morita and H Nakagawa and K Reich and M Augustin",
year = "2016",
month = may,
doi = "10.1007/s11136-015-1136-y",
language = "English",
volume = "25",
pages = "1179--1188",
journal = "QUAL LIFE RES",
issn = "0962-9343",
publisher = "Springer Netherlands",
number = "5",

}

RIS

TY - JOUR

T1 - Patient-relevant Needs and Treatment Goals in Nail Psoriasis

AU - Blome, C

AU - Costanzo, A

AU - Dauden, E

AU - Ferrandiz, C

AU - Girolomoni, G

AU - Gniadecki, R

AU - Iversen, L

AU - Menter, A

AU - Michaelis-Wittern, K

AU - Morita, A

AU - Nakagawa, H

AU - Reich, K

AU - Augustin, M

PY - 2016/5

Y1 - 2016/5

N2 - PURPOSE: Patient-centered health care implies that medical decisions are made jointly by physician and patient, based on patient needs. Aims were to (a) identify treatment goals for a new questionnaire on patient needs and benefits in nail psoriasis treatment; (b) analyze the importance of treatment goals in patients with nail psoriasis in general and in defined subgroups; and (c) determine the association between overall treatment goal importance and quality of life.METHODS: The study comprised the following steps: qualitative survey on needs and burdens in 120 patients; development of items by an interdisciplinary expert group; item testing in 55 patients in four countries; revision of the questionnaire and assessment in 203 patients in six countries (Germany, Denmark, Italy, Spain, USA, Japan). The percentage of patients rating the goals as 'quite/very important' was compared between various patient subgroups.RESULTS: Based on 692 free-text statements, 26 items were developed which were reduced to 24 items after pilot testing. Each of these treatment goals applied to the majority of patients in the multi-center study. Goal importance increased with severity of nail psoriasis, but not with age or disease duration. Manual dexterity and social interaction were of particular importance. Goal importance and quality of life were associated, but not redundant (r = 0.612, p < 0.001).CONCLUSIONS: Patients with nail psoriasis have manifold and specific treatment goals. Goal importance is a construct different from disease-specific quality of life and should be assessed separately. The new questionnaire can support goal setting in clinical practice.

AB - PURPOSE: Patient-centered health care implies that medical decisions are made jointly by physician and patient, based on patient needs. Aims were to (a) identify treatment goals for a new questionnaire on patient needs and benefits in nail psoriasis treatment; (b) analyze the importance of treatment goals in patients with nail psoriasis in general and in defined subgroups; and (c) determine the association between overall treatment goal importance and quality of life.METHODS: The study comprised the following steps: qualitative survey on needs and burdens in 120 patients; development of items by an interdisciplinary expert group; item testing in 55 patients in four countries; revision of the questionnaire and assessment in 203 patients in six countries (Germany, Denmark, Italy, Spain, USA, Japan). The percentage of patients rating the goals as 'quite/very important' was compared between various patient subgroups.RESULTS: Based on 692 free-text statements, 26 items were developed which were reduced to 24 items after pilot testing. Each of these treatment goals applied to the majority of patients in the multi-center study. Goal importance increased with severity of nail psoriasis, but not with age or disease duration. Manual dexterity and social interaction were of particular importance. Goal importance and quality of life were associated, but not redundant (r = 0.612, p < 0.001).CONCLUSIONS: Patients with nail psoriasis have manifold and specific treatment goals. Goal importance is a construct different from disease-specific quality of life and should be assessed separately. The new questionnaire can support goal setting in clinical practice.

KW - Adult

KW - Aged

KW - Aged, 80 and over

KW - Denmark

KW - Female

KW - Germany

KW - Goals

KW - Humans

KW - Italy

KW - Japan

KW - Male

KW - Middle Aged

KW - Nail Diseases

KW - Nails

KW - Needs Assessment

KW - Patient-Centered Care

KW - Psoriasis

KW - Quality of Life

KW - Spain

KW - Surveys and Questionnaires

KW - Young Adult

KW - Journal Article

KW - Multicenter Study

KW - Research Support, Non-U.S. Gov't

U2 - 10.1007/s11136-015-1136-y

DO - 10.1007/s11136-015-1136-y

M3 - SCORING: Journal article

C2 - 26433952

VL - 25

SP - 1179

EP - 1188

JO - QUAL LIFE RES

JF - QUAL LIFE RES

SN - 0962-9343

IS - 5

ER -