Information needs in cancer patients across the disease trajectory. A prospective study
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Information needs in cancer patients across the disease trajectory. A prospective study. / Goerling, Ute; Faller, Hermann; Hornemann, Beate; Hönig, Klaus; Bergelt, Corinna; Maatouk, Imad; Stein, Barbara; Teufel, Martin; Erim, Yesim; Geiser, Franziska; Niecke, Alexander; Senf, Bianca; Wickert, Martin; Büttner-Teleaga, Antje; Weis, Joachim.
In: PATIENT EDUC COUNS, Vol. 103, No. 1, 01.2020, p. 120-126.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - Information needs in cancer patients across the disease trajectory. A prospective study
AU - Goerling, Ute
AU - Faller, Hermann
AU - Hornemann, Beate
AU - Hönig, Klaus
AU - Bergelt, Corinna
AU - Maatouk, Imad
AU - Stein, Barbara
AU - Teufel, Martin
AU - Erim, Yesim
AU - Geiser, Franziska
AU - Niecke, Alexander
AU - Senf, Bianca
AU - Wickert, Martin
AU - Büttner-Teleaga, Antje
AU - Weis, Joachim
N1 - Copyright © 2019 Elsevier B.V. All rights reserved.
PY - 2020/1
Y1 - 2020/1
N2 - OBJECTIVE: As satisfaction with information received is an important precondition of adherence to treatment in cancer patients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety.METHODS: In a multicenter study in Germany, 1398 cancer patients were evaluated in terms of this at baseline, after 6 and 12 months.RESULTS: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01).CONCLUSION: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months.PRACTICE IMPLICATIONS: These results underline the priority of providing information and emotional support to cancer patients to improve satisfaction with information.
AB - OBJECTIVE: As satisfaction with information received is an important precondition of adherence to treatment in cancer patients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety.METHODS: In a multicenter study in Germany, 1398 cancer patients were evaluated in terms of this at baseline, after 6 and 12 months.RESULTS: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01).CONCLUSION: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months.PRACTICE IMPLICATIONS: These results underline the priority of providing information and emotional support to cancer patients to improve satisfaction with information.
U2 - 10.1016/j.pec.2019.08.011
DO - 10.1016/j.pec.2019.08.011
M3 - SCORING: Journal article
C2 - 31474389
VL - 103
SP - 120
EP - 126
JO - PATIENT EDUC COUNS
JF - PATIENT EDUC COUNS
SN - 0738-3991
IS - 1
ER -