Information needs in cancer patients across the disease trajectory. A prospective study

Ute Goerling; Hermann Faller; Beate Hornemann; Klaus Hönig; Corinna Bergelt; Imad Maatouk; Barbara Stein; Martin Teufel; Yesim Erim; Franziska Geiser; Alexander Niecke; Bianca Senf; Martin Wickert; Antje Büttner-Teleaga; Joachim Weis

doi:10.1016/j.pec.2019.08.011

Information needs in cancer patients across the disease trajectory. A prospective study

Standard

Information needs in cancer patients across the disease trajectory. A prospective study. / Goerling, Ute; Faller, Hermann; Hornemann, Beate; Hönig, Klaus; Bergelt, Corinna; Maatouk, Imad; Stein, Barbara; Teufel, Martin; Erim, Yesim; Geiser, Franziska; Niecke, Alexander; Senf, Bianca; Wickert, Martin; Büttner-Teleaga, Antje; Weis, Joachim.

in: PATIENT EDUC COUNS, Jahrgang 103, Nr. 1, 01.2020, S. 120-126.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

Goerling, U, Faller, H, Hornemann, B, Hönig, K, Bergelt, C, Maatouk, I, Stein, B, Teufel, M, Erim, Y, Geiser, F, Niecke, A, Senf, B, Wickert, M, Büttner-Teleaga, A & Weis, J 2020, 'Information needs in cancer patients across the disease trajectory. A prospective study', PATIENT EDUC COUNS, Jg. 103, Nr. 1, S. 120-126. https://doi.org/10.1016/j.pec.2019.08.011

APA

Goerling, U., Faller, H., Hornemann, B., Hönig, K., Bergelt, C., Maatouk, I., Stein, B., Teufel, M., Erim, Y., Geiser, F., Niecke, A., Senf, B., Wickert, M., Büttner-Teleaga, A., & Weis, J. (2020). Information needs in cancer patients across the disease trajectory. A prospective study. PATIENT EDUC COUNS, 103(1), 120-126. https://doi.org/10.1016/j.pec.2019.08.011

Vancouver

Goerling U, Faller H, Hornemann B, Hönig K, Bergelt C, Maatouk I et al. Information needs in cancer patients across the disease trajectory. A prospective study. PATIENT EDUC COUNS. 2020 Jan;103(1):120-126. https://doi.org/10.1016/j.pec.2019.08.011

Bibtex

@article{fa0e8226867d457aa13f86dc15a69eba,

title = "Information needs in cancer patients across the disease trajectory. A prospective study",

abstract = "OBJECTIVE: As satisfaction with information received is an important precondition of adherence to treatment in cancer patients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety.METHODS: In a multicenter study in Germany, 1398 cancer patients were evaluated in terms of this at baseline, after 6 and 12 months.RESULTS: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01).CONCLUSION: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months.PRACTICE IMPLICATIONS: These results underline the priority of providing information and emotional support to cancer patients to improve satisfaction with information.",

author = "Ute Goerling and Hermann Faller and Beate Hornemann and Klaus H{\"o}nig and Corinna Bergelt and Imad Maatouk and Barbara Stein and Martin Teufel and Yesim Erim and Franziska Geiser and Alexander Niecke and Bianca Senf and Martin Wickert and Antje B{\"u}ttner-Teleaga and Joachim Weis",

year = "2020",

month = jan,

doi = "10.1016/j.pec.2019.08.011",

language = "English",

volume = "103",

pages = "120--126",

journal = "PATIENT EDUC COUNS",

issn = "0738-3991",

publisher = "Elsevier Ireland Ltd",

number = "1",

}

RIS

TY - JOUR

T1 - Information needs in cancer patients across the disease trajectory. A prospective study

AU - Goerling, Ute

AU - Faller, Hermann

AU - Hornemann, Beate

AU - Hönig, Klaus

AU - Bergelt, Corinna

AU - Maatouk, Imad

AU - Stein, Barbara

AU - Teufel, Martin

AU - Erim, Yesim

AU - Geiser, Franziska

AU - Niecke, Alexander

AU - Senf, Bianca

AU - Wickert, Martin

AU - Büttner-Teleaga, Antje

AU - Weis, Joachim

PY - 2020/1

Y1 - 2020/1

N2 - OBJECTIVE: As satisfaction with information received is an important precondition of adherence to treatment in cancer patients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety.METHODS: In a multicenter study in Germany, 1398 cancer patients were evaluated in terms of this at baseline, after 6 and 12 months.RESULTS: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01).CONCLUSION: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months.PRACTICE IMPLICATIONS: These results underline the priority of providing information and emotional support to cancer patients to improve satisfaction with information.

AB - OBJECTIVE: As satisfaction with information received is an important precondition of adherence to treatment in cancer patients, we aimed to examine the level of perceived information, information satisfaction and information needs, and examine the prospective association between information satisfaction and anxiety.METHODS: In a multicenter study in Germany, 1398 cancer patients were evaluated in terms of this at baseline, after 6 and 12 months.RESULTS: At baseline, the majority of patients reported to feel well-informed. Nevertheless, a considerable proportion reported to wish more information. The proportion of patients reporting unmet information needs declined over time (p < 0.001). Anxiety at baseline is negatively associated with information satisfaction after 6 months (β = -0.10, p < 0.01). Conversely, information satisfaction at baseline is negatively associated with anxiety after 6 months (β = -0.10, p < 0.01). At 12 months, only the negative path leading from anxiety to information satisfaction was significant (β = -0.12, p < 0.01).CONCLUSION: We found high levels of information received and high information satisfaction. Nevertheless, there was a considerable quantity of unmet information needs. A bidirectional relationship between information satisfaction and anxiety symptoms emerged after 6 months.PRACTICE IMPLICATIONS: These results underline the priority of providing information and emotional support to cancer patients to improve satisfaction with information.

U2 - 10.1016/j.pec.2019.08.011

DO - 10.1016/j.pec.2019.08.011

M3 - SCORING: Journal article

C2 - 31474389

VL - 103

SP - 120

EP - 126

JO - PATIENT EDUC COUNS

JF - PATIENT EDUC COUNS

SN - 0738-3991

IS - 1

ER -