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HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments

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HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments. / Silva, Neuza ; Bullinger-Naber, Monika; Quitmann, Julia; Ravens-Sieberer, Ulrike; Rohenkohl, Anja; QoLISSY Study Group.

In: EXPERT REV PHARM OUT, Vol. 13, No. 6, 01.12.2013, p. 817-27.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Silva, N, Bullinger-Naber, M, Quitmann, J, Ravens-Sieberer, U, Rohenkohl, A & QoLISSY Study Group 2013, 'HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments', EXPERT REV PHARM OUT, vol. 13, no. 6, pp. 817-27. https://doi.org/10.1586/14737167.2013.847366

APA

Silva, N., Bullinger-Naber, M., Quitmann, J., Ravens-Sieberer, U., Rohenkohl, A., & QoLISSY Study Group (2013). HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments. EXPERT REV PHARM OUT, 13(6), 817-27. https://doi.org/10.1586/14737167.2013.847366

Vancouver

Silva N, Bullinger-Naber M, Quitmann J, Ravens-Sieberer U, Rohenkohl A, QoLISSY Study Group. HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments. EXPERT REV PHARM OUT. 2013 Dec 1;13(6):817-27. https://doi.org/10.1586/14737167.2013.847366

Bibtex

@article{79f293f0b1944f11bbc6cf7094dacc69,
title = "HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments",
abstract = "Short stature may be associated with impairments in health-related quality of life (HRQoL). This study compared the HRQoL of children/adolescents diagnosed with short stature to population norms and examined the effects of height deviation and treatment status on HRQoL. Method: We cross-sectionally assessed 110 children/adolescents aged 8-18, with current short stature (height deviation ≤-2 standard-deviation (SD)) or normal height achieved since diagnosis, and 98 parents, using the generic KIDSCREEN and the chronic-generic DISABKIDS instruments. Results: Generic HRQoL of patients was similar to population norms. Patients with achieved normal height reported better chronic-generic HRQoL when untreated, while patients with current short stature reported better HRQoL upon receiving treatment. Parents reported better HRQoL for treated patients, especially for girls. Conclusion: Although their HRQoL is not significantly compromised, patients diagnosed with short stature may profit from growth-hormone treatment. Specific instruments are needed to adequately assess the effectiveness of treatment.",
author = "Neuza Silva and Monika Bullinger-Naber and Julia Quitmann and Ulrike Ravens-Sieberer and Anja Rohenkohl and {QoLISSY Study Group}",
year = "2013",
month = dec,
day = "1",
doi = "10.1586/14737167.2013.847366",
language = "English",
volume = "13",
pages = "817--27",
journal = "EXPERT REV PHARM OUT",
issn = "1473-7167",
publisher = "EXPERT REVIEWS",
number = "6",

}

RIS

TY - JOUR

T1 - HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments

AU - Silva, Neuza

AU - Bullinger-Naber, Monika

AU - Quitmann, Julia

AU - Ravens-Sieberer, Ulrike

AU - Rohenkohl, Anja

AU - QoLISSY Study Group

PY - 2013/12/1

Y1 - 2013/12/1

N2 - Short stature may be associated with impairments in health-related quality of life (HRQoL). This study compared the HRQoL of children/adolescents diagnosed with short stature to population norms and examined the effects of height deviation and treatment status on HRQoL. Method: We cross-sectionally assessed 110 children/adolescents aged 8-18, with current short stature (height deviation ≤-2 standard-deviation (SD)) or normal height achieved since diagnosis, and 98 parents, using the generic KIDSCREEN and the chronic-generic DISABKIDS instruments. Results: Generic HRQoL of patients was similar to population norms. Patients with achieved normal height reported better chronic-generic HRQoL when untreated, while patients with current short stature reported better HRQoL upon receiving treatment. Parents reported better HRQoL for treated patients, especially for girls. Conclusion: Although their HRQoL is not significantly compromised, patients diagnosed with short stature may profit from growth-hormone treatment. Specific instruments are needed to adequately assess the effectiveness of treatment.

AB - Short stature may be associated with impairments in health-related quality of life (HRQoL). This study compared the HRQoL of children/adolescents diagnosed with short stature to population norms and examined the effects of height deviation and treatment status on HRQoL. Method: We cross-sectionally assessed 110 children/adolescents aged 8-18, with current short stature (height deviation ≤-2 standard-deviation (SD)) or normal height achieved since diagnosis, and 98 parents, using the generic KIDSCREEN and the chronic-generic DISABKIDS instruments. Results: Generic HRQoL of patients was similar to population norms. Patients with achieved normal height reported better chronic-generic HRQoL when untreated, while patients with current short stature reported better HRQoL upon receiving treatment. Parents reported better HRQoL for treated patients, especially for girls. Conclusion: Although their HRQoL is not significantly compromised, patients diagnosed with short stature may profit from growth-hormone treatment. Specific instruments are needed to adequately assess the effectiveness of treatment.

U2 - 10.1586/14737167.2013.847366

DO - 10.1586/14737167.2013.847366

M3 - SCORING: Journal article

C2 - 24219053

VL - 13

SP - 817

EP - 827

JO - EXPERT REV PHARM OUT

JF - EXPERT REV PHARM OUT

SN - 1473-7167

IS - 6

ER -