Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients--results of a cross-sectional study.
Standard
Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients--results of a cross-sectional study. / Czepa, D; Mackensen von, Sylvia; Hilberg, T.
In: HAEMOPHILIA, Vol. 18, No. 1, 1, 2012, p. 80-85.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Harvard
APA
Vancouver
Bibtex
}
RIS
TY - JOUR
T1 - Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients--results of a cross-sectional study.
AU - Czepa, D
AU - Mackensen von, Sylvia
AU - Hilberg, T
PY - 2012
Y1 - 2012
N2 - Recurrent musculoskeletal haemorrhages in people with haemophilia (PWH) lead to restrictions in the locomotor system and consequently in physical performance. Patients' perceptions of their health status have gained an important role in the last few years. The assessment of subjective physical performance in PWH is a new approach. This study aimed to compare the subjective physical performance of PWH with healthy controls and to correlate the results with objective data. Subjective physical performance was assessed via the new questionnaire HEP-Test-Q, which consists of 25 items pertaining to four subscales 'mobility', 'strength & coordination', 'endurance' and 'body perception'. HEP-Test-Q subscales were compared with objective data in terms of range of motion, one-leg-stand and 12-minute walk test. Forty-eight patients (44 ± 11 years) with haemophilia A (43 severe, three moderate) or B (two severe) and 43 controls without haemophilia (42 ± 11 years) were enrolled. PWH showed an impaired subjective physical performance in all HEP-Test-Q subscales and in the total score (52 ± 20) compared with controls (77 ± 10; P ? 0.001). Correlation analyses for the total score of the HEP-Test-Q and objective data revealed values ranging from r = 0.403 (one-leg-stand) to r = 0.757 (12-minute walk test) (P ? 0.001). PWH evaluated their physical performance poorer in comparison with healthy people. As self-assessment did not always correlate highly with objective data, objective examinations of physical performance in PWH should be complemented with subjective perceptions.
AB - Recurrent musculoskeletal haemorrhages in people with haemophilia (PWH) lead to restrictions in the locomotor system and consequently in physical performance. Patients' perceptions of their health status have gained an important role in the last few years. The assessment of subjective physical performance in PWH is a new approach. This study aimed to compare the subjective physical performance of PWH with healthy controls and to correlate the results with objective data. Subjective physical performance was assessed via the new questionnaire HEP-Test-Q, which consists of 25 items pertaining to four subscales 'mobility', 'strength & coordination', 'endurance' and 'body perception'. HEP-Test-Q subscales were compared with objective data in terms of range of motion, one-leg-stand and 12-minute walk test. Forty-eight patients (44 ± 11 years) with haemophilia A (43 severe, three moderate) or B (two severe) and 43 controls without haemophilia (42 ± 11 years) were enrolled. PWH showed an impaired subjective physical performance in all HEP-Test-Q subscales and in the total score (52 ± 20) compared with controls (77 ± 10; P ? 0.001). Correlation analyses for the total score of the HEP-Test-Q and objective data revealed values ranging from r = 0.403 (one-leg-stand) to r = 0.757 (12-minute walk test) (P ? 0.001). PWH evaluated their physical performance poorer in comparison with healthy people. As self-assessment did not always correlate highly with objective data, objective examinations of physical performance in PWH should be complemented with subjective perceptions.
KW - Adult
KW - Germany
KW - Humans
KW - Male
KW - Aged
KW - Female
KW - Middle Aged
KW - Questionnaires
KW - Young Adult
KW - Cross-Sectional Studies
KW - Exercise Test
KW - Range of Motion, Articular
KW - Psychomotor Performance/physiology
KW - Exercise/physiology
KW - Self Efficacy
KW - Walking/physiology
KW - Muscle Strength/physiology
KW - Physical Endurance/physiology
KW - Physical Fitness/physiology
KW - Postural Balance/physiology
KW - Hemophilia A/physiopathology
KW - Hemophilia B/physiopathology
KW - Adult
KW - Germany
KW - Humans
KW - Male
KW - Aged
KW - Female
KW - Middle Aged
KW - Questionnaires
KW - Young Adult
KW - Cross-Sectional Studies
KW - Exercise Test
KW - Range of Motion, Articular
KW - Psychomotor Performance/physiology
KW - Exercise/physiology
KW - Self Efficacy
KW - Walking/physiology
KW - Muscle Strength/physiology
KW - Physical Endurance/physiology
KW - Physical Fitness/physiology
KW - Postural Balance/physiology
KW - Hemophilia A/physiopathology
KW - Hemophilia B/physiopathology
M3 - SCORING: Journal article
VL - 18
SP - 80
EP - 85
JO - HAEMOPHILIA
JF - HAEMOPHILIA
SN - 1351-8216
IS - 1
M1 - 1
ER -
