Research ExplorerJournalsHAEMOPHILIA

HAEMOPHILIA - Haemophilia : the official journal of the World Federation of Hemophilia

Bibliographical data

ISSNs1351-8216
Electronic ISSN 1365-2516

Publications

Association of patient, treatment and disease characteristics with patient-reported outcomes: Results of the ECHO Registry
Hay, C. R. M., Makris, M., Shima, M., Nagao, A., Jiménez-Yuste, V., Skinner, M., Kessler, C. M. & von Mackensen, S., 01.2024, In: HAEMOPHILIA. 30, 1, p. 106-115

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Synovitis and joint health in patients with haemophilia: Statements from a European e-Delphi consensus study
Mancuso, M. E., Holstein, K., O'Donnell, J. S., Lobet, S., Klamroth, R. & FVIII Think Tank Study Group, 03.2023, In: HAEMOPHILIA. 29, 2, p. 619-628 10 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies
Rambod, M., Pasyar, N., Irannejad Parizi, F., Edraki, M., Khair, K. & von Mackensen, S., 01.2023, In: HAEMOPHILIA. 29, 1, p. 199-209 11 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Safety of intramuscular COVID-19 vaccination in patients with haemophilia
Tiede, A., Leise, H., Horneff, S., Oldenburg, J., Halimeh, S., Heller, C., Königs, C., Holstein, K. & Pfrepper, C., 09.2022, In: HAEMOPHILIA. 28, 5, p. 687-693 7 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Sixth Åland Island Conference on von Willebrand disease
Berntorp, E., Trakymienė, S. S., Federici, A. B., Holstein, K., Corrales-Medina, F. F., Pierce, G. F., Srivastava, A., Prondzinski, M. V. D., Johnsen, J. M., Zupan, I. P., Halimeh, S., Nummi, V. & Roberts, J. C., 07.2022, In: HAEMOPHILIA. 28, Suppl 5, p. 3-15 13 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Quality of life in a large multinational haemophilia B cohort (The B-Natural study) - Unmet needs remain
Berntorp, E., LeBeau, P., Ragni, M. V., Borhany, M., Abajas, Y. L., Tarantino, M. D., Holstein, K., Croteau, S. E., Liesner, R., Tarango, C., Carvalho, M., McGuinn, C., Funding, E., Kempton, C. L., Bidlingmaier, C., Cohen, A., Oldenburg, J., Kearney, S., Knoll, C., Kuriakose, P., Acharya, S., Reiss, U. M., Kulkarni, R., Witkop, M., Lethagen, S., Krouse, R., Shapiro, A. D. & Astermark, J., 05.2022, In: HAEMOPHILIA. 28, 3, p. 453-461 9 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Electronic diaries in the management of haemophilia gene therapy: Perspective of an expert group from the German, Austrian and Swiss Society on Thrombosis and Haemostasis (GTH)
Miesbach, W., Eichler, H., Holstein, K., Holzhauer, S., Klamroth, R., Knöfler, R., Male, C., Olivieri, M., Oldenburg, J. & Tiede, A., 03.2022, In: HAEMOPHILIA. 28, 2, p. 264-269 6 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Immune tolerance induction in the era of emicizumab - still the first choice for patients with haemophilia A and inhibitors?
Holstein, K., Le Quellec, S., Klamroth, R., Batorova, A., Holme, P. A., Jiménez-Yuste, V. & Astermark, J., 03.2022, In: HAEMOPHILIA. 28, 2, p. 215-222 8 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Zero incidence of factor VIII inhibitors and successful haemostatic response in previously factor VIII-treated patients with haemophilia A switching to turoctocog alfa in a noninterventional study
Escuriola Ettingshausen, C., Katsarou, O., Kotnik, B. F., Borel Derlon, A., Schwarz, R., Ypma, P. F., Matytsina, I., Dey, S. & Schutgens, R. E. G., 01.2022, In: HAEMOPHILIA. 28, 1, p. 46-54 9 p.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Clinical and patient reported outcome in total ankle replacement compared to ankle fusion in end-stage haemophilic arthropathy
Mussawy, H., Kehrer, M., Strahl, A., Rolvien, T., Hubert, J., Beil, F. T., Wirtz, D. C., Oldenburg, J., Holstein, K. & Strauss, A. C., 11.2021, In: HAEMOPHILIA. 27, 6, p. e739-e746

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

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activities

HAEMOPHILIA (Journal)

Sylvia Mackensen von Astfeld (Editor)

14.01.2019 → …

Activity: Publication peer-review and editorial work › Editor of journals › Research

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