Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)
Standard
Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL). / von Mackensen, S; Nilsson, C; Jankovic, M; Mirra, N; D'Angelo, E; Borkhardt, A; Ljung, R.
In: PEDIATR BLOOD CANCER, Vol. 47, No. 5 Suppl, 15.10.2006, p. 688-91.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Harvard
APA
Vancouver
Bibtex
}
RIS
TY - JOUR
T1 - Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)
AU - von Mackensen, S
AU - Nilsson, C
AU - Jankovic, M
AU - Mirra, N
AU - D'Angelo, E
AU - Borkhardt, A
AU - Ljung, R
N1 - Copyright (c) 2006 Wiley-Liss, Inc.
PY - 2006/10/15
Y1 - 2006/10/15
N2 - Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested.
AB - Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested.
KW - Adolescent
KW - Child
KW - Child, Preschool
KW - Germany
KW - Humans
KW - Italy
KW - Pilot Projects
KW - Psychometrics
KW - Purpura, Thrombocytopenic, Idiopathic
KW - Quality of Life
KW - Reproducibility of Results
KW - Surveys and Questionnaires
KW - Sweden
KW - Journal Article
KW - Multicenter Study
KW - Research Support, Non-U.S. Gov't
U2 - 10.1002/pbc.20977
DO - 10.1002/pbc.20977
M3 - SCORING: Journal article
C2 - 16933256
VL - 47
SP - 688
EP - 691
JO - PEDIATR BLOOD CANCER
JF - PEDIATR BLOOD CANCER
SN - 1545-5009
IS - 5 Suppl
ER -