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Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

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Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL). / von Mackensen, S; Nilsson, C; Jankovic, M; Mirra, N; D'Angelo, E; Borkhardt, A; Ljung, R.

in: PEDIATR BLOOD CANCER, Jahrgang 47, Nr. 5 Suppl, 15.10.2006, S. 688-91.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

von Mackensen, S, Nilsson, C, Jankovic, M, Mirra, N, D'Angelo, E, Borkhardt, A & Ljung, R 2006, 'Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)', PEDIATR BLOOD CANCER, Jg. 47, Nr. 5 Suppl, S. 688-91. https://doi.org/10.1002/pbc.20977

APA

von Mackensen, S., Nilsson, C., Jankovic, M., Mirra, N., D'Angelo, E., Borkhardt, A., & Ljung, R. (2006). Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL). PEDIATR BLOOD CANCER, 47(5 Suppl), 688-91. https://doi.org/10.1002/pbc.20977

Vancouver

von Mackensen S, Nilsson C, Jankovic M, Mirra N, D'Angelo E, Borkhardt A et al. Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL). PEDIATR BLOOD CANCER. 2006 Okt 15;47(5 Suppl):688-91. https://doi.org/10.1002/pbc.20977

Bibtex

@article{307bc8087d1e40f78d0ff6bae8baa81c,
title = "Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)",
abstract = "Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested.",
keywords = "Adolescent, Child, Child, Preschool, Germany, Humans, Italy, Pilot Projects, Psychometrics, Purpura, Thrombocytopenic, Idiopathic, Quality of Life, Reproducibility of Results, Surveys and Questionnaires, Sweden, Journal Article, Multicenter Study, Research Support, Non-U.S. Gov't",
author = "{von Mackensen}, S and C Nilsson and M Jankovic and N Mirra and E D'Angelo and A Borkhardt and R Ljung",
note = "Copyright (c) 2006 Wiley-Liss, Inc.",
year = "2006",
month = oct,
day = "15",
doi = "10.1002/pbc.20977",
language = "English",
volume = "47",
pages = "688--91",
journal = "PEDIATR BLOOD CANCER",
issn = "1545-5009",
publisher = "Wiley-Liss Inc.",
number = "5 Suppl",

}

RIS

TY - JOUR

T1 - Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

AU - von Mackensen, S

AU - Nilsson, C

AU - Jankovic, M

AU - Mirra, N

AU - D'Angelo, E

AU - Borkhardt, A

AU - Ljung, R

N1 - Copyright (c) 2006 Wiley-Liss, Inc.

PY - 2006/10/15

Y1 - 2006/10/15

N2 - Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested.

AB - Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested.

KW - Adolescent

KW - Child

KW - Child, Preschool

KW - Germany

KW - Humans

KW - Italy

KW - Pilot Projects

KW - Psychometrics

KW - Purpura, Thrombocytopenic, Idiopathic

KW - Quality of Life

KW - Reproducibility of Results

KW - Surveys and Questionnaires

KW - Sweden

KW - Journal Article

KW - Multicenter Study

KW - Research Support, Non-U.S. Gov't

U2 - 10.1002/pbc.20977

DO - 10.1002/pbc.20977

M3 - SCORING: Journal article

C2 - 16933256

VL - 47

SP - 688

EP - 691

JO - PEDIATR BLOOD CANCER

JF - PEDIATR BLOOD CANCER

SN - 1545-5009

IS - 5 Suppl

ER -