Research ExplorerScientific StaffStefanie Witt Publications

ID: 2037270

Stefanie Witt

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Publications

  1. 2024

  2. DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing

    Zang, J., Witt, S., Johannsen, J., Weiss, D., Denecke, J., Dumitrascu, C., Nießen, A., Quitmann, J. H., Pflug, C. & Flügel, T., 2024, In: J NEUROMUSCULAR DIS. 11, 2, p. 473-483 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  3. 2023

  4. Increased Digital Media Use in Preschool Children: Exploring the Links with Parental Stress and Their Problematic Media Use

    Kattein, E., Schmidt, H., Witt, S., Jörren, H. L., Menrath, I., Rumpf, H-J., Wartberg, L. & Pawils, S., 13.12.2023, In: CHILDREN-BASEL. 10, 12, 1921.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  5. Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): A prospective, controlled trial with a two-phase cohort design

    Hebestreit, H., Lapstich, A-M., Brandstetter, L., Krauth, C., Deckert, J., Haas, K., Pfister, L., Witt, S., Schippers, C., Dieris-Hirche, J., Maisch, T., Tüscher, O., Bârlescu, L., Berger, A., Berneburg, M., Britz, V., Deibele, A., Graeßner, H., Gündel, H., Heuft, G., Lücke, T., Mundlos, C., Quitmann, J., Rutsch, F., Schubert, K., Schulz, J. B., Schweiger, S., Zeidler, C., Zeltner, L., de Zwaan, M. & ZSE-DUO working group, 11.2023, In: ECLINICALMEDICINE. 65, 102260.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  6. Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research

    Lackner, L., Quitmann, J. H., Kristensen, K. & Witt, S., 11.08.2023, In: INT J ENV RES PUB HE. 20, 16, 6558.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  7. Living with a rare disease - experiences and needs in pediatric patients and their parents

    Witt, S., Schuett, K., Wiegand-Grefe, S., Boettcher, J. & Quitmann, J., 11.08.2023, In: ORPHANET J RARE DIS. 18, 1, p. 242

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  8. Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung

    Witt, S., Kristensen, K., Wiegand-Grefe, S. & Quitmann, J., 05.2023, In: INNERE MED. 64, 5, p. 494-499 6 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  9. Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach

    Lackner, L., Quitmann, J. H. & Witt, S., 17.03.2023, In: FRONT ENDOCRINOL. 14, p. 1093983

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  10. Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

    Rautmann, L., Witt, S., Theiding, C., Odenwald, B., Nennstiel-Ratzel, U., Dörr, H-G. & Quitmann, J. H., 03.03.2023, In: INT J ENV RES PUB HE. 20, 5, 4493.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  11. Health-related quality of life and patient-reported outcome measurements in patients with cystinosis

    Witt, S., Kristensen, K., Hohenfellner, K. & Quitmann, J. H., 03.2023, In: JIMD reports. 64, 2, p. 199-211 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  12. Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer

    Höglund, A. T., Witt, S., Quitmann, J. H. & Frygner-Holm, S., 01.02.2023, In: J NURS RES. 31, 1, p. e253

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  13. Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung – erste Erkenntnisse aus der ZSE-DUO Studie

    Witt, S., Kristensen, K., Blömeke, J., Hebestreit, H., Wocker, M., Pfister, L., Bullinger, M., Tüscher, O., Deckert, J., Graessner, H., Lapstich, A-M., Zwaan, M. D., Mundlos, C. & Quitmann, J. H., 01.2023, In: PSYCHOTHER PSYCH MED. 73, 1, p. 9-15 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  14. Bewegungsorientierte Förderung von Lebensqualität in der Kindertagesstätte

    Witt, S., Fiedler, M., Madsen, L. & Quitmann, J. H., 2023, In: Frühe Kindheit. 2023, 04, p. 36-43

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  15. Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish-German Study

    Witt, S., Quitmann, J., Höglund, A. T., Russ, S., Kaman, A., Escherich, G. & Frygner-Holm, S., 2023, In: J PEDIAT HEMAT ONC N. 40, 3, p. 158-169 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  16. Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries

    International EA-QOL Group, 2023, In: FRONT PEDIATR. 11, p. 1253892

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  17. Herausforderungen beim Übergang in die Elternrolle. Begleitung von werdenden Eltern mit dem Elternkurs "Sicherer Hafen"

    Witt, S., Brandi, D., Kristensen, K., Kollmeyer, M. & Quitmann, J. H., 2023, In: Frühe Kindheit. p. 66-71

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  18. 2022

  19. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

    Dellenmark-Blom, M., Abrahamsson, K., Dingemann, J., Witt, S., Dingemann, C., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Chaplin, J. E. & Quitmann, J. H., 21.05.2022, In: ORPHANET J RARE DIS. 17, 1, 207.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  20. 2021

  21. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

    Witt, S., Kristensen, K., Wiegand-Grefe, S., Boettcher, J., Bloemeke, J., Wingartz, C., Bullinger, M., Quitmann, J. & CARE-FAM-NET Studiengruppe, 27.11.2021, In: ORPHANET J RARE DIS. 16, 1, 497.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  22. Patient-Reported Outcomes-The Value of Observational Assessments

    Witt, S., Bloemeke, J., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 10.2021, In: EUR J PEDIATR SURG. 31, 5, p. 454-455 2 p.

    Research output: SCORING: Contribution to journal › Other (editorial matter etc.) › Research

  23. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study

    Witt, S., Dellenmark-Blom, M., Kuckuck, S., Dingemann, J., Abrahamsson, K., Dingemann, C., Chaplin, J. E., Ure, B., Bullinger, M., Gatzinsky, V., Jönsson, L. & Quitmann, J. H., 06.03.2021, In: ORPHANET J RARE DIS. 16, 1, p. 120

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  24. Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review

    Kristensen, K., Quitmann, J. & Witt, S., 2021, In: FRONT ENDOCRINOL. 12, 784932.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  25. Lebensqualität und Geburtserleben von Müttern und ihren Partnern im Rahmen des Elternkurses »Sicherer Hafen Hamburg«

    Witt, S., Kristensen, K., Brandi, D., Kollmeyer, M. & Quitmann, J. H., 2021, In: Gynäkologische Praxis. 48, 2, p. 242-252

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  26. Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom

    Witt, S., Heiden, J. & Quitmann, J. H., 2021, In: Gynäkologische Praxis. 2021, 47, p. 472-484

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  27. Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia

    Witt, S., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 2021, In: FRONT PEDIATR. 9, 723410.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  28. »Sicherer Hafen« – Modellprojekt zur Steigerung der Lebensqualität und Feinfühligkeit für werdende Eltern

    Witt, S., Kollmeyer, M., Brandi, D. & Quitmann, J. H., 2021, In: Päd Praxis. 2021, 95, p. 332-343

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  29. Wann ist klein zu klein? Und was bedeutet das für die betroffenen Patientinnen/Patienten und ihre Angehörigen?

    Witt, S., Kristensen, K. & Quitmann, J. H., 2021, In: GLANDULA. 53, 2/21, p. 40-42

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  30. 2020

  31. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

    Witt, S., Blömeke, J., Bullinger, M., Dingemann, J. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 225-231 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  32. Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease

    Feng, X., Lacher, M., Quitmann, J., Witt, S., Witvliet, M. J. & Mayer, S., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 279-286 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  33. Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon

    Bloemeke, J., Witt, S., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 232-238 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  34. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

    Dellenmark-Blom, M., Quitmann, J., Dingemann, J., Witt, S., Ure, B. M., Bullinger, M., Jönsson, L., Gatzinsky, V. & Dingemann, C., 02.2020, In: EUR J PEDIATR SURG. 30, 1, p. 96-103 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  35. Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom

    Witt, S., Heiden, J. & Quitmann, J. H., 2020, In: Päd Praxis. 93, 03, p. 385-397

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  36. „Sicherer Hafen“ – Elternkurs zur Steigerung der elterlichen Lebensqualität und Feinfühligkeit für werdende Eltern

    Witt, S., Kollmeyer, M., Brandi, D. & Quitmann, J. H., 2020, In: gyne. 2020, 06, p. 13-21

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  37. 2019

  38. Eine Diagnose überbringen? Warum gerade ich?

    Witt, S. & Quitmann, J. H., 24.09.2019, In: Deutsche Hebammenzeitschrift. 71, 10, p. 30-35

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Transfer

  39. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    Witt, S., Bloemeke, J., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 11.09.2019, In: BMC PEDIATR. 19, 1, p. 330

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  40. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

    Bloemeke, J., Sommer, R., Witt, S., Bullinger, M., Nordon, C., Badia, F. J., González, F. L., Leiva-Gea, A., Delgado Rufino, F. D. B., Mayoral-Cleries, F., Romero-Sanchiz, P., Clamagirand Saiz, V., Nogueira-Arjona, R., Mohnike, K. & Quitmann, J., 09.2019, In: QUAL LIFE RES. 28, 9, p. 2553-2563 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  41. First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone

    Quitmann, J., Bloemeke, J., Dörr, H-G., Bullinger, M., Witt, S. & Silva, N., 09.2019, In: J ENDOCRINOL INVEST. 42, 9, p. 1067-1076 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  42. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

    Witt, S., Kolb, B., Bloemeke, J., Mohnike, K., Bullinger, M. & Quitmann, J., 09.08.2019, In: ORPHANET J RARE DIS. 14, 1, p. 194

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  43. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

    Bloemeke, J., Sommer, R., Witt, S., Dabs, M., Badia, F. J., Bullinger, M. & Quitmann, J., 07.2019, In: DISABIL REHABIL. 41, 15, p. 1815-1825 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  44. Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment

    Quitmann, J. H., Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Akkurt, I., Dunstheimer, D., Vogel, C., Böttcher, V., Kuhnle Krahl, U., Bettendorf, M., Schönau, E., Fricke-Otto, S., Keller, A., Mohnike, K. & Dörr, H-G., 29.04.2019, In: FRONT PEDIATR. 7, p. 164

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  45. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

    Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Dörr, H-G. & Quitmann, J., 18.03.2019, In: HEALTH QUAL LIFE OUT. 17, 1, p. 49

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  46. Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort

    Flieder, S., Dellenmark-Blom, M., Witt, S., Dingemann, C., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Dammeier, B. G., Bullinger, M., Ure, B. M., Abrahamsson, K. & Dingemann, J., 02.2019, In: EUR J PEDIATR SURG. 29, 1, p. 75-84 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  47. Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study

    Witt, S., Dellenmark-Blom, M., Flieder, S., Dingemann, J., Abrahamsson, K., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Ure, B., Dingemann, C., Bullinger, M., Sommer, R. & Quitmann, J. H., 01.2019, In: CHILD CARE HLTH DEV. 45, 1, p. 79-88 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  48. 2018

  49. The Esophageal-atresia-Quality-of-life questionnaires: feasibility, validity and reliability in Sweden and Germany.

    Dellenmark-Blom, M., Dingemann, J., Witt, S., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Bullinger-Naber, M., Flieder, S., Ure, B. M., Dingemann, C. & Abrahamsson, K., 10.2018, In: J PEDIATR GASTR NUTR. 67, 4, p. 469-477 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  50. Adrenogenitales Syndrom (AGS) mit 21-Hydroxylase-Defekt bei Kleinkindern: Erste Ergebnisse einer Pilotstudie zur psychosozialen Situation der Eltern

    Witt, S., Blömeke, J., Dörr, H-G. & Quitmann, J. H., 06.2018, In: Päd Praxis. 90, 1, p. 29-37

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  51. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

    Silva, N., Bullinger, M., Sommer, R., Rohenkohl, A., Witt, S. & Quitmann, J., 01.2018, In: CLIN PSYCHOL PSYCHOT. 25, 1, p. e107-e118

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  52. Emotionsregulation, psychische Auffälligkeiten und Lebensqualität von Kindern mit endokrinem Kleinwuchs

    Witt, S., Bullinger, M. & Quitmann, J. H., 2018, In: Päd Praxis. 90, 2, p. 200-210

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  53. Exploring the potential of a pretend play intervention in young patients with leukemia

    Witt, S., Escherich, G., Rutkowski, S. J., Kappelhoff, G., Frygner-Holm, S., Russ, S., Bullinger, M. & Quitmann, J. H., 2018, In: J PEDIATR NURS. 44, p. E98-E106

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  54. 2017

  55. Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine

    Witt, S., Rohenkohl, A., Bullinger, M., Sommer, R., Kahrs, S., Klingebiel, K-H., Klingebiel, R. & Quitmann, J., 11.2017, In: PEDIATR ENDOCRINOL REV. 15, Suppl 1, p. 109-118 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  56. Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia

    Dellenmark-Blom, M., Abrahamsson, K., Quitmann, J. H., Sommer, R., Witt, S., Dingemann, J., Flieder, S., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Dingemann, C. & Chaplin, J. E., 01.07.2017, In: DIS ESOPHAGUS. 30, 7, p. 1-9 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  57. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

    Sommer, R., Blömeke, J., Dabs, M., Witt, S., Bullinger, M. & Quitmann, J., 2017, In: DISABIL REHABIL. 39, 24, p. 2499-2503

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  58. 2014

  59. Lebensqualität junger Menschen mit Achondroplasie: Qualitativer Vergleich der Perspektiven Betroffener und Eltern

    Quitmann, J. H., Witt, S., Rohenkohl, A., Bullinger, M., Sommer, R., Klingebiel, R., Klingebiel, K-H. & Bergs-Winkels, D., 2014, In: MONATSSCHR KINDERH. 162, 5, p. 428-434

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review