Research ExplorerScientific StaffJulia Hannah Quitmann Publications

PD Dr. ID: 69541

Julia Hannah Quitmann

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Publications

  1. 2024

  2. An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries

    International EA-QOL Group, 26.02.2024, In: CHILDREN-BASEL. 11, 3, 286.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  3. DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing

    Zang, J., Witt, S., Johannsen, J., Weiss, D., Denecke, J., Dumitrascu, C., Nießen, A., Quitmann, J. H., Pflug, C. & Flügel, T., 2024, In: J NEUROMUSCULAR DIS. 11, 2, p. 473-483 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  4. 2023

  5. Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): A prospective, controlled trial with a two-phase cohort design

    Hebestreit, H., Lapstich, A-M., Brandstetter, L., Krauth, C., Deckert, J., Haas, K., Pfister, L., Witt, S., Schippers, C., Dieris-Hirche, J., Maisch, T., Tüscher, O., Bârlescu, L., Berger, A., Berneburg, M., Britz, V., Deibele, A., Graeßner, H., Gündel, H., Heuft, G., Lücke, T., Mundlos, C., Quitmann, J., Rutsch, F., Schubert, K., Schulz, J. B., Schweiger, S., Zeidler, C., Zeltner, L., de Zwaan, M. & ZSE-DUO working group, 11.2023, In: ECLINICALMEDICINE. 65, 102260.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  6. Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research

    Lackner, L., Quitmann, J. H., Kristensen, K. & Witt, S., 11.08.2023, In: INT J ENV RES PUB HE. 20, 16, 6558.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  7. Living with a rare disease - experiences and needs in pediatric patients and their parents

    Witt, S., Schuett, K., Wiegand-Grefe, S., Boettcher, J. & Quitmann, J., 11.08.2023, In: ORPHANET J RARE DIS. 18, 1, p. 242

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  8. Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung

    Witt, S., Kristensen, K., Wiegand-Grefe, S. & Quitmann, J., 05.2023, In: INNERE MED. 64, 5, p. 494-499 6 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  9. Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach

    Lackner, L., Quitmann, J. H. & Witt, S., 17.03.2023, In: FRONT ENDOCRINOL. 14, p. 1093983

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  10. Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

    Rautmann, L., Witt, S., Theiding, C., Odenwald, B., Nennstiel-Ratzel, U., Dörr, H-G. & Quitmann, J. H., 03.03.2023, In: INT J ENV RES PUB HE. 20, 5, 4493.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  11. Health-related quality of life and patient-reported outcome measurements in patients with cystinosis

    Witt, S., Kristensen, K., Hohenfellner, K. & Quitmann, J. H., 03.2023, In: JIMD reports. 64, 2, p. 199-211 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  12. Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer

    Höglund, A. T., Witt, S., Quitmann, J. H. & Frygner-Holm, S., 01.02.2023, In: J NURS RES. 31, 1, p. e253

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  13. Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung – erste Erkenntnisse aus der ZSE-DUO Studie

    Witt, S., Kristensen, K., Blömeke, J., Hebestreit, H., Wocker, M., Pfister, L., Bullinger, M., Tüscher, O., Deckert, J., Graessner, H., Lapstich, A-M., Zwaan, M. D., Mundlos, C. & Quitmann, J. H., 01.2023, In: PSYCHOTHER PSYCH MED. 73, 1, p. 9-15 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  14. Bewegungsorientierte Förderung von Lebensqualität in der Kindertagesstätte

    Witt, S., Fiedler, M., Madsen, L. & Quitmann, J. H., 2023, In: Frühe Kindheit. 2023, 04, p. 36-43

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  15. Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish-German Study

    Witt, S., Quitmann, J., Höglund, A. T., Russ, S., Kaman, A., Escherich, G. & Frygner-Holm, S., 2023, In: J PEDIAT HEMAT ONC N. 40, 3, p. 158-169 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  16. Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries

    International EA-QOL Group, 2023, In: FRONT PEDIATR. 11, p. 1253892

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  17. Herausforderungen beim Übergang in die Elternrolle. Begleitung von werdenden Eltern mit dem Elternkurs "Sicherer Hafen"

    Witt, S., Brandi, D., Kristensen, K., Kollmeyer, M. & Quitmann, J. H., 2023, In: Frühe Kindheit. p. 66-71

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  18. 2022

  19. The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity

    Li, S., Dellenmark-Blom, M., Zhao, Y., Gu, Y., Li, S., Yang, S., Quitmann, J. H. & Huang, J., 13.11.2022, In: INT J ENV RES PUB HE. 19, 22, 14923.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  20. Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia

    Rozensztrauch, A., Śmigiel, R., Patkowski, D., Gerus, S., Kłaniewska, M., Quitmann, J. H. & Dellenmark-Blom, M., 30.06.2022, In: INT J ENV RES PUB HE. 19, 13, 8047.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  21. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

    Dellenmark-Blom, M., Abrahamsson, K., Dingemann, J., Witt, S., Dingemann, C., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Chaplin, J. E. & Quitmann, J. H., 21.05.2022, In: ORPHANET J RARE DIS. 17, 1, 207.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  22. Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

    Hebestreit, H., Zeidler, C., Schippers, C., de Zwaan, M., Deckert, J., Heuschmann, P., Krauth, C., Bullinger, M., Berger, A., Berneburg, M., Brandstetter, L., Deibele, A., Dieris-Hirche, J., Graessner, H., Gündel, H., Herpertz, S., Heuft, G., Lapstich, A-M., Lücke, T., Maisch, T., Mundlos, C., Petermann-Meyer, A., Müller, S., Ott, S., Pfister, L., Quitmann, J., Romanos, M., Rutsch, F., Schaubert, K., Schubert, K., Schulz, J. B., Schweiger, S., Tüscher, O., Ungethüm, K., Wagner, T. O. F., Haas, K. & ZSE-DUO working group, 14.02.2022, In: ORPHANET J RARE DIS. 17, 1, 47.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  23. 2021

  24. Need for transition medicine in pediatric surgery - health related quality of life in adolescents and young adults with congenital malformations

    Uecker, M., Ure, B., Quitmann, J. H. & Dingemann, J., 01.12.2021, In: INNOV SURG SCI. 6, 4, p. 151-160 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  25. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

    Witt, S., Kristensen, K., Wiegand-Grefe, S., Boettcher, J., Bloemeke, J., Wingartz, C., Bullinger, M., Quitmann, J. & CARE-FAM-NET Studiengruppe, 27.11.2021, In: ORPHANET J RARE DIS. 16, 1, 497.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  26. Patient-Reported Outcomes-The Value of Observational Assessments

    Witt, S., Bloemeke, J., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 10.2021, In: EUR J PEDIATR SURG. 31, 5, p. 454-455 2 p.

    Research output: SCORING: Contribution to journal › Other (editorial matter etc.) › Research

  27. Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia

    Soyer, T., Arslan, U. E., Ulukaya Durakbaşa, Ç., Aydöner, S., Boybeyi-Türer, Ö., Quitmann, J. H., Dingemann, J. & Dellenmark-Blom, M., 08.2021, In: TURK J GASTROENTEROL. 32, 8, p. 640-650 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  28. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study

    Witt, S., Dellenmark-Blom, M., Kuckuck, S., Dingemann, J., Abrahamsson, K., Dingemann, C., Chaplin, J. E., Ure, B., Bullinger, M., Gatzinsky, V., Jönsson, L. & Quitmann, J. H., 06.03.2021, In: ORPHANET J RARE DIS. 16, 1, p. 120

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  29. Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review

    Kristensen, K., Quitmann, J. & Witt, S., 2021, In: FRONT ENDOCRINOL. 12, 784932.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  30. Lebensqualität und Geburtserleben von Müttern und ihren Partnern im Rahmen des Elternkurses »Sicherer Hafen Hamburg«

    Witt, S., Kristensen, K., Brandi, D., Kollmeyer, M. & Quitmann, J. H., 2021, In: Gynäkologische Praxis. 48, 2, p. 242-252

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  31. Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom

    Witt, S., Heiden, J. & Quitmann, J. H., 2021, In: Gynäkologische Praxis. 2021, 47, p. 472-484

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  32. Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia

    Witt, S., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 2021, In: FRONT PEDIATR. 9, 723410.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  33. »Sicherer Hafen« – Modellprojekt zur Steigerung der Lebensqualität und Feinfühligkeit für werdende Eltern

    Witt, S., Kollmeyer, M., Brandi, D. & Quitmann, J. H., 2021, In: Päd Praxis. 2021, 95, p. 332-343

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  34. Wann ist klein zu klein? Und was bedeutet das für die betroffenen Patientinnen/Patienten und ihre Angehörigen?

    Witt, S., Kristensen, K. & Quitmann, J. H., 2021, In: GLANDULA. 53, 2/21, p. 40-42

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  35. 2020

  36. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

    Witt, S., Blömeke, J., Bullinger, M., Dingemann, J. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 225-231 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  37. Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease

    Feng, X., Lacher, M., Quitmann, J., Witt, S., Witvliet, M. J. & Mayer, S., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 279-286 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  38. Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon

    Bloemeke, J., Witt, S., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 232-238 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  39. Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature

    Dellenmark-Blom, M., Quitmann, J. & Dingemann, C., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 239-250 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  40. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

    Dellenmark-Blom, M., Quitmann, J., Dingemann, J., Witt, S., Ure, B. M., Bullinger, M., Jönsson, L., Gatzinsky, V. & Dingemann, C., 02.2020, In: EUR J PEDIATR SURG. 30, 1, p. 96-103 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  41. Health-Related Quality of Life in Pediatric Surgical Patients and their Caretakers

    Dingemann, J., Dellenmark-Blom, M. & Quitmann, J. H., 2020, In: EUR J PEDIATR SURG. 2020, 30, p. 223-224

    Research output: SCORING: Contribution to journal › Other (editorial matter etc.) › Research

  42. Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom

    Witt, S., Heiden, J. & Quitmann, J. H., 2020, In: Päd Praxis. 93, 03, p. 385-397

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  43. „Sicherer Hafen“ – Elternkurs zur Steigerung der elterlichen Lebensqualität und Feinfühligkeit für werdende Eltern

    Witt, S., Kollmeyer, M., Brandi, D. & Quitmann, J. H., 2020, In: gyne. 2020, 06, p. 13-21

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  44. 2019

  45. Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature

    Bloemeke, J., Balacano Valdez, R., Mauras, N., Mericq, V., Ross, J., Permuy, J., Quitmann, J. & Bullinger, M., 25.10.2019, In: J PEDIATR ENDOCR MET. 32, 10, p. 1089-1101 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  46. Eine Diagnose überbringen? Warum gerade ich?

    Witt, S. & Quitmann, J. H., 24.09.2019, In: Deutsche Hebammenzeitschrift. 71, 10, p. 30-35

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Transfer

  47. Pretend Play as an Intervention for Children With Cancer: A Feasibility Study

    Frygner-Holm, S., Russ, S., Quitmann, J., Ring, L., Zyga, O., Hansson, M., Ljungman, G. & Höglund, A. T., 22.09.2019, In: J PEDIATR ONCOL NURS. 37, 1, p. 65-75 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  48. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    Witt, S., Bloemeke, J., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 11.09.2019, In: BMC PEDIATR. 19, 1, p. 330

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  49. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

    Bloemeke, J., Sommer, R., Witt, S., Bullinger, M., Nordon, C., Badia, F. J., González, F. L., Leiva-Gea, A., Delgado Rufino, F. D. B., Mayoral-Cleries, F., Romero-Sanchiz, P., Clamagirand Saiz, V., Nogueira-Arjona, R., Mohnike, K. & Quitmann, J., 09.2019, In: QUAL LIFE RES. 28, 9, p. 2553-2563 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  50. First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone

    Quitmann, J., Bloemeke, J., Dörr, H-G., Bullinger, M., Witt, S. & Silva, N., 09.2019, In: J ENDOCRINOL INVEST. 42, 9, p. 1067-1076 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  51. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

    Witt, S., Kolb, B., Bloemeke, J., Mohnike, K., Bullinger, M. & Quitmann, J., 09.08.2019, In: ORPHANET J RARE DIS. 14, 1, p. 194

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  52. The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific approach

    Dellenmark-Blom, M., Chaplin, J. E., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Dingemann, J. & Abrahamsson, K., 01.07.2019, In: DIS ESOPHAGUS. 32, 7

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  53. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

    Bloemeke, J., Sommer, R., Witt, S., Dabs, M., Badia, F. J., Bullinger, M. & Quitmann, J., 07.2019, In: DISABIL REHABIL. 41, 15, p. 1815-1825 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  54. Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment

    Quitmann, J. H., Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Akkurt, I., Dunstheimer, D., Vogel, C., Böttcher, V., Kuhnle Krahl, U., Bettendorf, M., Schönau, E., Fricke-Otto, S., Keller, A., Mohnike, K. & Dörr, H-G., 29.04.2019, In: FRONT PEDIATR. 7, p. 164

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  55. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

    Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Dörr, H-G. & Quitmann, J., 18.03.2019, In: HEALTH QUAL LIFE OUT. 17, 1, p. 49

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  56. Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort

    Flieder, S., Dellenmark-Blom, M., Witt, S., Dingemann, C., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Dammeier, B. G., Bullinger, M., Ure, B. M., Abrahamsson, K. & Dingemann, J., 02.2019, In: EUR J PEDIATR SURG. 29, 1, p. 75-84 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  57. Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study

    Witt, S., Dellenmark-Blom, M., Flieder, S., Dingemann, J., Abrahamsson, K., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Ure, B., Dingemann, C., Bullinger, M., Sommer, R. & Quitmann, J. H., 01.2019, In: CHILD CARE HLTH DEV. 45, 1, p. 79-88 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  58. Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire

    Antonios Drosatou, C., Vlachopapadopoulou, E-A., Bullinger, M., Quitmann, J. H., Silva, N., Salemi, G., Pavlopoulou, I., Michalacos, S. & Tsoumakas, K., 2019, In: J PEDIATR ENDOCR MET. 2019, 3, p. 215-224

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  59. 2018

  60. The Esophageal-atresia-Quality-of-life questionnaires: feasibility, validity and reliability in Sweden and Germany.

    Dellenmark-Blom, M., Dingemann, J., Witt, S., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Bullinger-Naber, M., Flieder, S., Ure, B. M., Dingemann, C. & Abrahamsson, K., 10.2018, In: J PEDIATR GASTR NUTR. 67, 4, p. 469-477 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  61. The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age

    Sommer, R., Blömeke, J., Bullinger, M. & Quitmann, J., 10.2018, In: J ENDOCRINOL INVEST. 41, 10, p. 1185-1191 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  62. Adrenogenitales Syndrom (AGS) mit 21-Hydroxylase-Defekt bei Kleinkindern: Erste Ergebnisse einer Pilotstudie zur psychosozialen Situation der Eltern

    Witt, S., Blömeke, J., Dörr, H-G. & Quitmann, J. H., 06.2018, In: Päd Praxis. 90, 1, p. 29-37

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  63. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

    Silva, N., Bullinger, M., Sommer, R., Rohenkohl, A., Witt, S. & Quitmann, J., 01.2018, In: CLIN PSYCHOL PSYCHOT. 25, 1, p. e107-e118

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  64. Emotionsregulation, psychische Auffälligkeiten und Lebensqualität von Kindern mit endokrinem Kleinwuchs

    Witt, S., Bullinger, M. & Quitmann, J. H., 2018, In: Päd Praxis. 90, 2, p. 200-210

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  65. Exploring the potential of a pretend play intervention in young patients with leukemia

    Witt, S., Escherich, G., Rutkowski, S. J., Kappelhoff, G., Frygner-Holm, S., Russ, S., Bullinger, M. & Quitmann, J. H., 2018, In: J PEDIATR NURS. 44, p. E98-E106

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  66. 2017

  67. Understanding, Assessing and Improving Health-Related Quality of Life of Young People with Achondroplasia- A Collaboration between a Patient Organization and Academic Medicine

    Witt, S., Rohenkohl, A., Bullinger, M., Sommer, R., Kahrs, S., Klingebiel, K-H., Klingebiel, R. & Quitmann, J., 11.2017, In: PEDIATR ENDOCRINOL REV. 15, Suppl 1, p. 109-118 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  68. Validation of the Italian Quality of Life in Short Stature Youth (QoLISSY) questionnaire

    Quitmann, J., Giammarco, A., Maghnie, M., Napoli, F., Di Giovanni, I., Carducci, C., Mohn, A., Bullinger, M. & Sommer, R., 10.2017, In: J ENDOCRINOL INVEST. 40, 10, p. 1077-1084

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  69. Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia

    Dellenmark-Blom, M., Abrahamsson, K., Quitmann, J. H., Sommer, R., Witt, S., Dingemann, J., Flieder, S., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Dingemann, C. & Chaplin, J. E., 01.07.2017, In: DIS ESOPHAGUS. 30, 7, p. 1-9 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  70. Development and Psychometric Evaluation of the MetabQoL 1.0: A Quality of Life Questionnaire for Paediatric Patients with Intoxication-Type Inborn Errors of Metabolism

    Zeltner, N. A., Baumgartner, M. R., Bondarenko, A., Ensenauer, R., Karall, D., Kölker, S., Mühlhausen, C., Scholl-Bürgi, S., Thimm, E., Quitmann, J., Burgard, P., Landolt, M. A. & Huemer, M., 01.03.2017, In: JIMD reports.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  71. Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents

    Zeltner, N. A., Landolt, M. A., Baumgartner, M. R., Lageder, S., Quitmann, J., Sommer, R., Karall, D., Mühlhausen, C., Schlune, A., Scholl-Bürgi, S. & Huemer, M., 02.2017, In: JIMD reports. 31, p. 1-9

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  72. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

    Sommer, R., Blömeke, J., Dabs, M., Witt, S., Bullinger, M. & Quitmann, J., 2017, In: DISABIL REHABIL. 39, 24, p. 2499-2503

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  73. Experiencing health-related quality of life in paediatric short stature - a cross-cultural analysis of statements from patients and parents

    Sommer, R., Bullinger, M., Chaplin, J., Do, J-K., Power, M., Pleil, A. & Quitmann, J., 2017, In: CLIN PSYCHOL PSYCHOT. 24, 6, p. 1370-1376

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  74. 2016

  75. Talking about Height and Quality of Life: A Content - Analysis of Focus Group Discussions with Short - Statured Children and Their Parents in the US

    Sommer, R., Bullinger, M., Pleil, A., Mauras, N., Ross, J., Newfield, R., Fox, J. & Quitmann, J. H., 11.2016, In: Open J Endocr Metab Dis. 6, 11, p. 229-241

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  76. Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter?

    Quitmann, J., Rohenkohl, A., Sommer, R., Bullinger, M. & Silva, N., 21.10.2016, In: HEALTH QUAL LIFE OUT. 14, p. 150

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  77. Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent perspective

    Dellenmark-Blom, M., Chaplin, J. E., Jönsson, L., Gatzinsky, V., Quitmann, J. H. & Abrahamsson, K., 09.2016, In: CHILD CARE HLTH DEV. 42, 5, p. 759-67 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  78. Stunted Growth. Proceedings of the 23rd Aschauer Soiree, Held at Aschauhof, Germany, November 7th 2015

    Hermanussen, M., Ipsen, J., Mumm, R., Assmann, C., Quitmann, J., Gomula, A., Lehmann, A., Jasch, I., Tassenaar, V., Bogin, B., Satake, T., Scheffler, C., Núñez, J., Godina, E., Hardeland, R., Boldsen, J., El-Shabrawi, M., Elhusseini, M., Barbu, C. G., Pop, R., Söderhäll, J., Merker, A., Swanson, J. & Groth, D., 06.2016, In: PEDIATR ENDOCRINOL REV. 13, 4, p. 756-67 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  79. Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire in the Netherlands

    Rohenkohl, A., Stahlmann, S., Kamp, G., Bullinger, M. & Quitmann, J. H., 03.2016, In: EUR J PEDIATR. 175, 3, p. 347-54

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  80. A brief version of the Quality of Life in Short Stature Youth Questionnaire - the QoLISSY-Brief

    Rohenkohl, A., Bullinger, M., Pleil, A., Kriston, L. & Quitmann, J. H., 2016, In: CHILD INDIC RES. 9, p. 971-984

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  81. Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients' and Parents' Perspectives

    Quitmann, J. H., Bullinger, M., Sommer, R., Rohenkohl, A. & Bernadino Da Silva, N., 2016, In: PLOS ONE. 11, 4, p. e0153953

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  82. Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs

    Rohenkohl, A. C., Sommer, R., Kahrs, S., Bullinger, M., Klingebiel, K-H. & Quitmann, J. H., 2016, In: KLIN PADIATR. 228, 1, p. 17-23

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  83. 2015

  84. Understanding the impact of statural height on health-related quality of life in German adolescents: a population-based analysis

    Sommer, R., Daubmann, A., Quitmann, J., Ravens-Sieberer, U. & Bullinger-Naber, M., 07.2015, In: EUR J PEDIATR. 174, 7, p. 875-882

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  85. Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States

    Bullinger, M., Sommer, R., Pleil, A., Mauras, N., Ross, J., Newfield, R., Silverman, L., Rohenkohl, A., Fox, J. & Quitmann, J., 02.04.2015, In: HEALTH QUAL LIFE OUT. 13, p. 43

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  86. Coping Strategies of Children and Adolescents with Clinically Diagnosed Short Stature

    Quitmann, J. H., Rohenkohl, A., Specht, A., Petersen-Ewert, C., Schillmöller, Z., Bullinger-Naber, M. & QoLISSY Study Group, 01.03.2015, In: J CHILD FAM STUD. 24, 3, p. 703-714

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  87. Leben mit Achondroplasie: Wie beurteilen junge Menschen mit disproportioniertem Kleinwuchs ihre Lebensqualität und mit welchen Faktoren ist sie assoziiert?

    Rohenkohl, A., Sommer, R., Bestges, S., Kahrs, S., Klingebiel, K-H., Bullinger, M. & Quitmann, J. H., 2015, In: Z KINDER JUG-PSYCH. 43, 6, p. 433–441

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  88. Linking a short-stature specific health-related quality of life measure (QoLISSY) to the International Classification of Functioning - Children and Youth (ICF-CY)

    Sommer, R., Bullinger-Naber, M., Rohenkohl, A., Quitmann, J. & Brütt, A. L., 2015, In: DISABIL REHABIL. 37, 5, p. 439-446 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  89. 2014

  90. Die Lebensqualität junger Erwachsener nach einer Wachstumshormonbehandlung im Kindesalter

    Quitmann, J. H., Rohenkohl, A. C., Kammerer, U., Schöfl, C., Bullinger-Naber, M. & Dörr, H-G., 01.11.2014, In: DEUT MED WOCHENSCHR. 139, 46, p. 2335-8 4 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  91. Wie erleben betroffene Kinder und Jugendliche ihren Kleinwuchs, und wie ist die Sicht ihrer Eltern?

    Quitmann, J. H., Rohenkohl, A., Sommer, R., Petzold, S., Bullinger-Naber, M. & QoLISSY Study Group, 10.2014, In: PRAX KINDERPSYCHOL K. 63, 8, p. 635-648

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  92. Lebensqualität bei Kindern, Jugendlichen und jungen Erwachsenen mit Achondroplasie

    Rohenkohl, A. C., Bullinger-Naber, M. & Quitmann, J., 13.09.2014, In: ORTHOPADE.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  93. Quality of life as patient-reported outcomes: principles of assessment

    Bullinger-Naber, M. & Quitmann, J., 01.06.2014, In: DIALOGUES CLIN NEURO. 16, 2, p. 137-45 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  94. Validation of the Flemish version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire

    Rohenkohl, A. C., De Schepper, J., Vanderfaeillie, J., Fricke, K., Hendrickx, S., Lagrou, K., Bullinger-Naber, M., Quitmann, J. & QoLISSY Study Group, 06.2014, In: ACTA CLIN BELG. 69, 3, p. 177-182

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  95. Insightfulness and later infant attachment in clinically depressed and nonclinical mothers

    Ramsauer, B., Lotzin, A., Quitmann, J. H., Becker-Stoll, F., Tharner, A. & Romer, G., 01.05.2014, In: INFANT MENT HEALTH J. 35, 3, p. 210-219 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  96. Cross-cultural equivalence of the patient- and parent-reported quality of life in short stature youth (QoLISSY) questionnaire

    Bullinger-Naber, M., Quitmann, J., Silva, N., Rohenkohl, A., Chaplin, J. E., Mimoun, E., DeBusk, K., Feigerlova, E., Herdman, M., Wollmann, H., Sanz, D., Pleil, A. & Power, M., 01.01.2014, In: HORM RES PAEDIAT. 82, 1, p. 18-30 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  97. Erfassung der gesundheitsbezogenen Lebensqualität von kleinwüchsigen Kindern und Jugendlichen. Psychometrische Analyse des deutschen QoLISSY Fragebogens

    Rohenkohl, A., Bullinger-Naber, M., Doerr, H-G., Jakisch, B., Noeker, M., Partsch, C-J., Stahnke, N., Rolf, P. W., Wüsthof, A. & Quitmann, J. H., 2014, In: Z GESUNDHEITSPSYCHOL. 22, 1, p. 21-30

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  98. Lebensqualität junger Menschen mit Achondroplasie: Qualitativer Vergleich der Perspektiven Betroffener und Eltern

    Quitmann, J. H., Witt, S., Rohenkohl, A., Bullinger, M., Sommer, R., Klingebiel, R., Klingebiel, K-H. & Bergs-Winkels, D., 2014, In: MONATSSCHR KINDERH. 162, 5, p. 428-434

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  99. 2013

  100. HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments

    Silva, N., Bullinger-Naber, M., Quitmann, J., Ravens-Sieberer, U., Rohenkohl, A. & QoLISSY Study Group, 01.12.2013, In: EXPERT REV PHARM OUT. 13, 6, p. 817-27 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  101. Parental perception of health-related quality of life in children and adolescents with short stature: literature review and introduction of the parent-reported QoLISSY instrument

    Quitmann, J., Rohenkohl, A., Bullinger-Naber, M., Chaplin, J. E., Herdman, M., Sanz, D., Mimoun, E., Feigerlova, E., DeBusk, K., Power, M., Wollmann, H. & Pleil, A., 01.12.2013, In: PEDIATR ENDOCRINOL REV. 11, 2, p. 147-60 14 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  102. Erfassung der gesundheitsbezogenen Lebensqualität von Kindern und Jugendlichen

    Ravens-Sieberer, U., Klasen, F., Bichmann, H., Otto, C., Quitmann, J. & Bullinger-Naber, M., 01.10.2013, In: GESUNDHEITSWESEN. 75, 10, p. 667-78 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  103. Assessing the quality of life of health-referred children and adolescents with short stature: development and psychometric testing of the QoLISSY instrument

    Bullinger-Naber, M., Quitmann, J., Power, M., Herdman, M., Mimoun, E., DeBusk, K., Feigerlova, E., Lunde, C., Dellenmark-Blom, M., Sanz, D., Rohenkohl, A., Pleil, A., Wollmann, H. & Chaplin, J. E., 01.01.2013, In: HEALTH QUAL LIFE OUT. 11, p. 76

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  104. Lebensqualität chronisch kranker Jugendlicher

    Bullinger-Naber, M., Klasen, F., Wille, N., Brütt, A. L., Rohenkohl, A., Quitmann, J. H. & Ravens-Sieberer, U., 2013, Medizinische Rehabilitation von Jugendlichen: 2., vollständige überarbeitete und erweiterte Auflage. Petermann, F. (ed.). 2 ed. Regensburg: S. Roderer Verlag, p. 117-133 17 p.

    Research output: SCORING: Contribution to book/anthology › SCORING: Contribution to collected editions/anthologies › Research

  105. Quality of Life in Short Stature Youth – The QoLISSY Questionnaire User’s Manual

    Bullinger-Naber, M., Quitmann, J. H., Chaplin, J. E., Herdman, M., Mimoun, E. & Power, M., 2013, Quality of Life in Short Stature Youth – The QoLISSY Questionnaire User’s Manual. The European QoLISSY Group (ed.). 1 ed. Pabst Publisher, p. 1-144 144 p.

    Research output: SCORING: Contribution to book/anthology › SCORING: Contribution to collected editions/anthologies › Research

  106. 2012

  107. Gesundheitsbezogene Lebensqualität und psychische Gesundheit von kleinwüchsigen Kindern und Jugendlichen

    Quitman, J. H., Behncke, J., Dörr, H-G., Rolf, P. W., Wüsthof, A., Stahnke, N., Jakisch, B., Partsch, C-J., Nöker, M., Kuhnle-Krahl, U., Rohenkohl, A. C. & Bullinger, M., 2012, In: Z Med Psychol. 31, 3, p. 132-139 3.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  108. The Capacity to See Things from the Child's Point of View-Assessing Insightfulness in Mothers with and without a Diagnosis of Depression.

    Quitman, J. H., Kriston, L., Romer, G. & Ramsauer, B., 2012, In: CLIN PSYCHOL PSYCHOT. 19, 6, p. 508-517 6.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  109. 2010

  110. Insightfulness Assessment - Erfassung des reflexiven Empathievermögens von Eltern

    Quitman, J. H., Romer, G. & Ramsauer, B., 2010, In: PSYCHOTHERAPEUT. 55, p. 291-298

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  111. Reflexives Empathievermögen von Müttern mit postpartalen Depressionen

    Quitman, J. H., Romer, G. & Ramsauer, B., 2010, In: PSYCHOTHERAPEUT. p. 1-5

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review