Research ExplorerScientific StaffJulia Hannah Quitmann Publications

PD Dr. ID: 69541

Julia Hannah Quitmann

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  1. A brief version of the Quality of Life in Short Stature Youth Questionnaire - the QoLISSY-Brief

    Rohenkohl, A., Bullinger, M., Pleil, A., Kriston, L. & Quitmann, J. H., 2016, In: CHILD INDIC RES. 9, p. 971-984

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  2. Adrenogenitales Syndrom (AGS) mit 21-Hydroxylase-Defekt bei Kleinkindern: Erste Ergebnisse einer Pilotstudie zur psychosozialen Situation der Eltern

    Witt, S., Blömeke, J., Dörr, H-G. & Quitmann, J. H., 06.2018, In: Päd Praxis. 90, 1, p. 29-37

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  3. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    Witt, S., Bloemeke, J., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 11.09.2019, In: BMC PEDIATR. 19, 1, p. 330

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  4. An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)

    Sommer, R., Blömeke, J., Dabs, M., Witt, S., Bullinger, M. & Quitmann, J., 2017, In: DISABIL REHABIL. 39, 24, p. 2499-2503

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  5. An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries

    International EA-QOL Group, 26.02.2024, In: CHILDREN-BASEL. 11, 3, 286.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  6. Assessing the quality of life of health-referred children and adolescents with short stature: development and psychometric testing of the QoLISSY instrument

    Bullinger-Naber, M., Quitmann, J., Power, M., Herdman, M., Mimoun, E., DeBusk, K., Feigerlova, E., Lunde, C., Dellenmark-Blom, M., Sanz, D., Rohenkohl, A., Pleil, A., Wollmann, H. & Chaplin, J. E., 01.01.2013, In: HEALTH QUAL LIFE OUT. 11, p. 76

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  7. Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients' and Parents' Perspectives

    Quitmann, J. H., Bullinger, M., Sommer, R., Rohenkohl, A. & Bernadino Da Silva, N., 2016, In: PLOS ONE. 11, 4, p. e0153953

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  8. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

    Witt, S., Blömeke, J., Bullinger, M., Dingemann, J. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 225-231 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  9. Bewegungsorientierte Förderung von Lebensqualität in der Kindertagesstätte

    Witt, S., Fiedler, M., Madsen, L. & Quitmann, J. H., 2023, In: Frühe Kindheit. 2023, 04, p. 36-43

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  10. Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach

    Lackner, L., Quitmann, J. H. & Witt, S., 17.03.2023, In: FRONT ENDOCRINOL. 14, p. 1093983

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  11. Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

    Rautmann, L., Witt, S., Theiding, C., Odenwald, B., Nennstiel-Ratzel, U., Dörr, H-G. & Quitmann, J. H., 03.03.2023, In: INT J ENV RES PUB HE. 20, 5, 4493.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  12. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress

    Silva, N., Bullinger, M., Sommer, R., Rohenkohl, A., Witt, S. & Quitmann, J., 01.2018, In: CLIN PSYCHOL PSYCHOT. 25, 1, p. e107-e118

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  13. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

    Dellenmark-Blom, M., Quitmann, J., Dingemann, J., Witt, S., Ure, B. M., Bullinger, M., Jönsson, L., Gatzinsky, V. & Dingemann, C., 02.2020, In: EUR J PEDIATR SURG. 30, 1, p. 96-103 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  14. Coping Strategies of Children and Adolescents with Clinically Diagnosed Short Stature

    Quitmann, J. H., Rohenkohl, A., Specht, A., Petersen-Ewert, C., Schillmöller, Z., Bullinger-Naber, M. & QoLISSY Study Group, 01.03.2015, In: J CHILD FAM STUD. 24, 3, p. 703-714

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  15. Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent perspective

    Dellenmark-Blom, M., Chaplin, J. E., Jönsson, L., Gatzinsky, V., Quitmann, J. H. & Abrahamsson, K., 09.2016, In: CHILD CARE HLTH DEV. 42, 5, p. 759-67 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  16. Cross-cultural equivalence of the patient- and parent-reported quality of life in short stature youth (QoLISSY) questionnaire

    Bullinger-Naber, M., Quitmann, J., Silva, N., Rohenkohl, A., Chaplin, J. E., Mimoun, E., DeBusk, K., Feigerlova, E., Herdman, M., Wollmann, H., Sanz, D., Pleil, A. & Power, M., 01.01.2014, In: HORM RES PAEDIAT. 82, 1, p. 18-30 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  17. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

    Bloemeke, J., Sommer, R., Witt, S., Bullinger, M., Nordon, C., Badia, F. J., González, F. L., Leiva-Gea, A., Delgado Rufino, F. D. B., Mayoral-Cleries, F., Romero-Sanchiz, P., Clamagirand Saiz, V., Nogueira-Arjona, R., Mohnike, K. & Quitmann, J., 09.2019, In: QUAL LIFE RES. 28, 9, p. 2553-2563 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  18. Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia

    Dellenmark-Blom, M., Abrahamsson, K., Quitmann, J. H., Sommer, R., Witt, S., Dingemann, J., Flieder, S., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Dingemann, C. & Chaplin, J. E., 01.07.2017, In: DIS ESOPHAGUS. 30, 7, p. 1-9 9 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  19. Development and Psychometric Evaluation of the MetabQoL 1.0: A Quality of Life Questionnaire for Paediatric Patients with Intoxication-Type Inborn Errors of Metabolism

    Zeltner, N. A., Baumgartner, M. R., Bondarenko, A., Ensenauer, R., Karall, D., Kölker, S., Mühlhausen, C., Scholl-Bürgi, S., Thimm, E., Quitmann, J., Burgard, P., Landolt, M. A. & Huemer, M., 01.03.2017, In: JIMD reports.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  20. Die Lebensqualität junger Erwachsener nach einer Wachstumshormonbehandlung im Kindesalter

    Quitmann, J. H., Rohenkohl, A. C., Kammerer, U., Schöfl, C., Bullinger-Naber, M. & Dörr, H-G., 01.11.2014, In: DEUT MED WOCHENSCHR. 139, 46, p. 2335-8 4 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  21. Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

    Hebestreit, H., Zeidler, C., Schippers, C., de Zwaan, M., Deckert, J., Heuschmann, P., Krauth, C., Bullinger, M., Berger, A., Berneburg, M., Brandstetter, L., Deibele, A., Dieris-Hirche, J., Graessner, H., Gündel, H., Herpertz, S., Heuft, G., Lapstich, A-M., Lücke, T., Maisch, T., Mundlos, C., Petermann-Meyer, A., Müller, S., Ott, S., Pfister, L., Quitmann, J., Romanos, M., Rutsch, F., Schaubert, K., Schubert, K., Schulz, J. B., Schweiger, S., Tüscher, O., Ungethüm, K., Wagner, T. O. F., Haas, K. & ZSE-DUO working group, 14.02.2022, In: ORPHANET J RARE DIS. 17, 1, 47.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  22. DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing

    Zang, J., Witt, S., Johannsen, J., Weiss, D., Denecke, J., Dumitrascu, C., Nießen, A., Quitmann, J. H., Pflug, C. & Flügel, T., 2024, In: J NEUROMUSCULAR DIS. 11, 2, p. 473-483 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  23. Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): A prospective, controlled trial with a two-phase cohort design

    Hebestreit, H., Lapstich, A-M., Brandstetter, L., Krauth, C., Deckert, J., Haas, K., Pfister, L., Witt, S., Schippers, C., Dieris-Hirche, J., Maisch, T., Tüscher, O., Bârlescu, L., Berger, A., Berneburg, M., Britz, V., Deibele, A., Graeßner, H., Gündel, H., Heuft, G., Lücke, T., Mundlos, C., Quitmann, J., Rutsch, F., Schubert, K., Schulz, J. B., Schweiger, S., Zeidler, C., Zeltner, L., de Zwaan, M. & ZSE-DUO working group, 11.2023, In: ECLINICALMEDICINE. 65, 102260.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  24. Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish-German Study

    Witt, S., Quitmann, J., Höglund, A. T., Russ, S., Kaman, A., Escherich, G. & Frygner-Holm, S., 2023, In: J PEDIAT HEMAT ONC N. 40, 3, p. 158-169 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  25. Eine Diagnose überbringen? Warum gerade ich?

    Witt, S. & Quitmann, J. H., 24.09.2019, In: Deutsche Hebammenzeitschrift. 71, 10, p. 30-35

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Transfer

  26. Emotionsregulation, psychische Auffälligkeiten und Lebensqualität von Kindern mit endokrinem Kleinwuchs

    Witt, S., Bullinger, M. & Quitmann, J. H., 2018, In: Päd Praxis. 90, 2, p. 200-210

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  27. Erfassung der gesundheitsbezogenen Lebensqualität von Kindern und Jugendlichen

    Ravens-Sieberer, U., Klasen, F., Bichmann, H., Otto, C., Quitmann, J. & Bullinger-Naber, M., 01.10.2013, In: GESUNDHEITSWESEN. 75, 10, p. 667-78 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  28. Erfassung der gesundheitsbezogenen Lebensqualität von kleinwüchsigen Kindern und Jugendlichen. Psychometrische Analyse des deutschen QoLISSY Fragebogens

    Rohenkohl, A., Bullinger-Naber, M., Doerr, H-G., Jakisch, B., Noeker, M., Partsch, C-J., Stahnke, N., Rolf, P. W., Wüsthof, A. & Quitmann, J. H., 2014, In: Z GESUNDHEITSPSYCHOL. 22, 1, p. 21-30

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  29. Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries

    International EA-QOL Group, 2023, In: FRONT PEDIATR. 11, p. 1253892

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  30. Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs

    Rohenkohl, A. C., Sommer, R., Kahrs, S., Bullinger, M., Klingebiel, K-H. & Quitmann, J. H., 2016, In: KLIN PADIATR. 228, 1, p. 17-23

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  31. Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States

    Bullinger, M., Sommer, R., Pleil, A., Mauras, N., Ross, J., Newfield, R., Silverman, L., Rohenkohl, A., Fox, J. & Quitmann, J., 02.04.2015, In: HEALTH QUAL LIFE OUT. 13, p. 43

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  32. Experiencing health-related quality of life in paediatric short stature - a cross-cultural analysis of statements from patients and parents

    Sommer, R., Bullinger, M., Chaplin, J., Do, J-K., Power, M., Pleil, A. & Quitmann, J., 2017, In: CLIN PSYCHOL PSYCHOT. 24, 6, p. 1370-1376

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  33. Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter?

    Quitmann, J., Rohenkohl, A., Sommer, R., Bullinger, M. & Silva, N., 21.10.2016, In: HEALTH QUAL LIFE OUT. 14, p. 150

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  34. Exploring the potential of a pretend play intervention in young patients with leukemia

    Witt, S., Escherich, G., Rutkowski, S. J., Kappelhoff, G., Frygner-Holm, S., Russ, S., Bullinger, M. & Quitmann, J. H., 2018, In: J PEDIATR NURS. 44, p. E98-E106

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  35. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

    Dellenmark-Blom, M., Abrahamsson, K., Dingemann, J., Witt, S., Dingemann, C., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Chaplin, J. E. & Quitmann, J. H., 21.05.2022, In: ORPHANET J RARE DIS. 17, 1, 207.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  36. Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia

    Soyer, T., Arslan, U. E., Ulukaya Durakbaşa, Ç., Aydöner, S., Boybeyi-Türer, Ö., Quitmann, J. H., Dingemann, J. & Dellenmark-Blom, M., 08.2021, In: TURK J GASTROENTEROL. 32, 8, p. 640-650 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  37. First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone

    Quitmann, J., Bloemeke, J., Dörr, H-G., Bullinger, M., Witt, S. & Silva, N., 09.2019, In: J ENDOCRINOL INVEST. 42, 9, p. 1067-1076 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  38. Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort

    Flieder, S., Dellenmark-Blom, M., Witt, S., Dingemann, C., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Dammeier, B. G., Bullinger, M., Ure, B. M., Abrahamsson, K. & Dingemann, J., 02.2019, In: EUR J PEDIATR SURG. 29, 1, p. 75-84 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  39. Gesundheitsbezogene Lebensqualität und psychische Gesundheit von kleinwüchsigen Kindern und Jugendlichen

    Quitman, J. H., Behncke, J., Dörr, H-G., Rolf, P. W., Wüsthof, A., Stahnke, N., Jakisch, B., Partsch, C-J., Nöker, M., Kuhnle-Krahl, U., Rohenkohl, A. C. & Bullinger, M., 2012, In: Z Med Psychol. 31, 3, p. 132-139 3.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  40. Health-related quality of life and patient-reported outcome measurements in patients with cystinosis

    Witt, S., Kristensen, K., Hohenfellner, K. & Quitmann, J. H., 03.2023, In: JIMD reports. 64, 2, p. 199-211 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  41. Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease

    Feng, X., Lacher, M., Quitmann, J., Witt, S., Witvliet, M. J. & Mayer, S., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 279-286 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  42. Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon

    Bloemeke, J., Witt, S., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 232-238 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  43. Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study

    Witt, S., Dellenmark-Blom, M., Flieder, S., Dingemann, J., Abrahamsson, K., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Ure, B., Dingemann, C., Bullinger, M., Sommer, R. & Quitmann, J. H., 01.2019, In: CHILD CARE HLTH DEV. 45, 1, p. 79-88 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  44. Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature

    Dellenmark-Blom, M., Quitmann, J. & Dingemann, C., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 239-250 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  45. Health-Related Quality of Life in Pediatric Surgical Patients and their Caretakers

    Dingemann, J., Dellenmark-Blom, M. & Quitmann, J. H., 2020, In: EUR J PEDIATR SURG. 2020, 30, p. 223-224

    Research output: SCORING: Contribution to journal › Other (editorial matter etc.) › Research

  46. Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review

    Kristensen, K., Quitmann, J. & Witt, S., 2021, In: FRONT ENDOCRINOL. 12, 784932.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  47. Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research

    Lackner, L., Quitmann, J. H., Kristensen, K. & Witt, S., 11.08.2023, In: INT J ENV RES PUB HE. 20, 16, 6558.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  48. Herausforderungen beim Übergang in die Elternrolle. Begleitung von werdenden Eltern mit dem Elternkurs "Sicherer Hafen"

    Witt, S., Brandi, D., Kristensen, K., Kollmeyer, M. & Quitmann, J. H., 2023, In: Frühe Kindheit. p. 66-71

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  49. HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments

    Silva, N., Bullinger-Naber, M., Quitmann, J., Ravens-Sieberer, U., Rohenkohl, A. & QoLISSY Study Group, 01.12.2013, In: EXPERT REV PHARM OUT. 13, 6, p. 817-27 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  50. Insightfulness and later infant attachment in clinically depressed and nonclinical mothers

    Ramsauer, B., Lotzin, A., Quitmann, J. H., Becker-Stoll, F., Tharner, A. & Romer, G., 01.05.2014, In: INFANT MENT HEALTH J. 35, 3, p. 210-219 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

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