PD Dr. ID: 69541
Julia Hannah Quitmann
Publications
Validation of the Greek version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire
Antonios Drosatou, C., Vlachopapadopoulou, E-A., Bullinger, M., Quitmann, J. H., Silva, N., Salemi, G., Pavlopoulou, I., Michalacos, S. & Tsoumakas, K., 2019, In: J PEDIATR ENDOCR MET. 2019, 3, p. 215-224Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)
Bloemeke, J., Sommer, R., Witt, S., Dabs, M., Badia, F. J., Bullinger, M. & Quitmann, J., 07.2019, In: DISABIL REHABIL. 41, 15, p. 1815-1825 11 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment
Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Dörr, H-G. & Quitmann, J., 18.03.2019, In: HEALTH QUAL LIFE OUT. 17, 1, p. 49Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia
Bloemeke, J., Sommer, R., Witt, S., Bullinger, M., Nordon, C., Badia, F. J., González, F. L., Leiva-Gea, A., Delgado Rufino, F. D. B., Mayoral-Cleries, F., Romero-Sanchiz, P., Clamagirand Saiz, V., Nogueira-Arjona, R., Mohnike, K. & Quitmann, J., 09.2019, In: QUAL LIFE RES. 28, 9, p. 2553-2563 11 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature
Bloemeke, J., Balacano Valdez, R., Mauras, N., Mericq, V., Ross, J., Permuy, J., Quitmann, J. & Bullinger, M., 25.10.2019, In: J PEDIATR ENDOCR MET. 32, 10, p. 1089-1101 13 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon
Bloemeke, J., Witt, S., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 232-238 7 p.Research output: SCORING: Contribution to journal › SCORING: Review article › Research
Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States
Bullinger, M., Sommer, R., Pleil, A., Mauras, N., Ross, J., Newfield, R., Silverman, L., Rohenkohl, A., Fox, J. & Quitmann, J., 02.04.2015, In: HEALTH QUAL LIFE OUT. 13, p. 43Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Assessing the quality of life of health-referred children and adolescents with short stature: development and psychometric testing of the QoLISSY instrument
Bullinger-Naber, M., Quitmann, J., Power, M., Herdman, M., Mimoun, E., DeBusk, K., Feigerlova, E., Lunde, C., Dellenmark-Blom, M., Sanz, D., Rohenkohl, A., Pleil, A., Wollmann, H. & Chaplin, J. E., 01.01.2013, In: HEALTH QUAL LIFE OUT. 11, p. 76Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Lebensqualität chronisch kranker Jugendlicher
Bullinger-Naber, M., Klasen, F., Wille, N., Brütt, A. L., Rohenkohl, A., Quitmann, J. H. & Ravens-Sieberer, U., 2013, Medizinische Rehabilitation von Jugendlichen: 2., vollständige überarbeitete und erweiterte Auflage. Petermann, F. (ed.). 2 ed. Regensburg: S. Roderer Verlag, p. 117-133 17 p.Research output: SCORING: Contribution to book/anthology › SCORING: Contribution to collected editions/anthologies › Research
Quality of life as patient-reported outcomes: principles of assessment
Bullinger-Naber, M. & Quitmann, J., 01.06.2014, In: DIALOGUES CLIN NEURO. 16, 2, p. 137-45 9 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Cross-cultural equivalence of the patient- and parent-reported quality of life in short stature youth (QoLISSY) questionnaire
Bullinger-Naber, M., Quitmann, J., Silva, N., Rohenkohl, A., Chaplin, J. E., Mimoun, E., DeBusk, K., Feigerlova, E., Herdman, M., Wollmann, H., Sanz, D., Pleil, A. & Power, M., 01.01.2014, In: HORM RES PAEDIAT. 82, 1, p. 18-30 13 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Quality of Life in Short Stature Youth – The QoLISSY Questionnaire User’s Manual
Bullinger-Naber, M., Quitmann, J. H., Chaplin, J. E., Herdman, M., Mimoun, E. & Power, M., 2013, Quality of Life in Short Stature Youth – The QoLISSY Questionnaire User’s Manual. The European QoLISSY Group (ed.). 1 ed. Pabst Publisher, p. 1-144 144 p.Research output: SCORING: Contribution to book/anthology › SCORING: Contribution to collected editions/anthologies › Research
Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia
Dellenmark-Blom, M., Abrahamsson, K., Quitmann, J. H., Sommer, R., Witt, S., Dingemann, J., Flieder, S., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Dingemann, C. & Chaplin, J. E., 01.07.2017, In: DIS ESOPHAGUS. 30, 7, p. 1-9 9 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
The Esophageal-atresia-Quality-of-life questionnaires: feasibility, validity and reliability in Sweden and Germany.
Dellenmark-Blom, M., Dingemann, J., Witt, S., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Bullinger-Naber, M., Flieder, S., Ure, B. M., Dingemann, C. & Abrahamsson, K., 10.2018, In: J PEDIATR GASTR NUTR. 67, 4, p. 469-477 9 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study
Dellenmark-Blom, M., Quitmann, J., Dingemann, J., Witt, S., Ure, B. M., Bullinger, M., Jönsson, L., Gatzinsky, V. & Dingemann, C., 02.2020, In: EUR J PEDIATR SURG. 30, 1, p. 96-103 8 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific approach
Dellenmark-Blom, M., Chaplin, J. E., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Dingemann, J. & Abrahamsson, K., 01.07.2019, In: DIS ESOPHAGUS. 32, 7Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature
Dellenmark-Blom, M., Quitmann, J. & Dingemann, C., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 239-250 12 p.Research output: SCORING: Contribution to journal › SCORING: Review article › Research
Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent perspective
Dellenmark-Blom, M., Chaplin, J. E., Jönsson, L., Gatzinsky, V., Quitmann, J. H. & Abrahamsson, K., 09.2016, In: CHILD CARE HLTH DEV. 42, 5, p. 759-67 9 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Factors of family impact in a Swedish-German cohort of children born with esophageal atresia
Dellenmark-Blom, M., Abrahamsson, K., Dingemann, J., Witt, S., Dingemann, C., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Chaplin, J. E. & Quitmann, J. H., 21.05.2022, In: ORPHANET J RARE DIS. 17, 1, 207.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Health-Related Quality of Life in Pediatric Surgical Patients and their Caretakers
Dingemann, J., Dellenmark-Blom, M. & Quitmann, J. H., 2020, In: EUR J PEDIATR SURG. 2020, 30, p. 223-224Research output: SCORING: Contribution to journal › Other (editorial matter etc.) › Research
Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease
Feng, X., Lacher, M., Quitmann, J., Witt, S., Witvliet, M. J. & Mayer, S., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 279-286 8 p.Research output: SCORING: Contribution to journal › SCORING: Review article › Research
Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort
Flieder, S., Dellenmark-Blom, M., Witt, S., Dingemann, C., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Dammeier, B. G., Bullinger, M., Ure, B. M., Abrahamsson, K. & Dingemann, J., 02.2019, In: EUR J PEDIATR SURG. 29, 1, p. 75-84 10 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Pretend Play as an Intervention for Children With Cancer: A Feasibility Study
Frygner-Holm, S., Russ, S., Quitmann, J., Ring, L., Zyga, O., Hansson, M., Ljungman, G. & Höglund, A. T., 22.09.2019, In: J PEDIATR ONCOL NURS. 37, 1, p. 65-75 11 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study
Hebestreit, H., Zeidler, C., Schippers, C., de Zwaan, M., Deckert, J., Heuschmann, P., Krauth, C., Bullinger, M., Berger, A., Berneburg, M., Brandstetter, L., Deibele, A., Dieris-Hirche, J., Graessner, H., Gündel, H., Herpertz, S., Heuft, G., Lapstich, A-M., Lücke, T., Maisch, T., Mundlos, C., Petermann-Meyer, A., Müller, S., Ott, S., Pfister, L., Quitmann, J., Romanos, M., Rutsch, F., Schaubert, K., Schubert, K., Schulz, J. B., Schweiger, S., Tüscher, O., Ungethüm, K., Wagner, T. O. F., Haas, K. & ZSE-DUO working group, 14.02.2022, In: ORPHANET J RARE DIS. 17, 1, 47.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): A prospective, controlled trial with a two-phase cohort design
Hebestreit, H., Lapstich, A-M., Brandstetter, L., Krauth, C., Deckert, J., Haas, K., Pfister, L., Witt, S., Schippers, C., Dieris-Hirche, J., Maisch, T., Tüscher, O., Bârlescu, L., Berger, A., Berneburg, M., Britz, V., Deibele, A., Graeßner, H., Gündel, H., Heuft, G., Lücke, T., Mundlos, C., Quitmann, J., Rutsch, F., Schubert, K., Schulz, J. B., Schweiger, S., Zeidler, C., Zeltner, L., de Zwaan, M. & ZSE-DUO working group, 11.2023, In: ECLINICALMEDICINE. 65, 102260.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Stunted Growth. Proceedings of the 23rd Aschauer Soiree, Held at Aschauhof, Germany, November 7th 2015
Hermanussen, M., Ipsen, J., Mumm, R., Assmann, C., Quitmann, J., Gomula, A., Lehmann, A., Jasch, I., Tassenaar, V., Bogin, B., Satake, T., Scheffler, C., Núñez, J., Godina, E., Hardeland, R., Boldsen, J., El-Shabrawi, M., Elhusseini, M., Barbu, C. G., Pop, R., Söderhäll, J., Merker, A., Swanson, J. & Groth, D., 06.2016, In: PEDIATR ENDOCRINOL REV. 13, 4, p. 756-67 12 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer
Höglund, A. T., Witt, S., Quitmann, J. H. & Frygner-Holm, S., 01.02.2023, In: J NURS RES. 31, 1, p. e253Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review
Kristensen, K., Quitmann, J. & Witt, S., 2021, In: FRONT ENDOCRINOL. 12, 784932.Research output: SCORING: Contribution to journal › SCORING: Review article › Research
Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach
Lackner, L., Quitmann, J. H. & Witt, S., 17.03.2023, In: FRONT ENDOCRINOL. 14, p. 1093983Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research
Lackner, L., Quitmann, J. H., Kristensen, K. & Witt, S., 11.08.2023, In: INT J ENV RES PUB HE. 20, 16, 6558.Research output: SCORING: Contribution to journal › SCORING: Review article › Research
The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity
Li, S., Dellenmark-Blom, M., Zhao, Y., Gu, Y., Li, S., Yang, S., Quitmann, J. H. & Huang, J., 13.11.2022, In: INT J ENV RES PUB HE. 19, 22, 14923.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
The Capacity to See Things from the Child's Point of View-Assessing Insightfulness in Mothers with and without a Diagnosis of Depression.
Quitman, J. H., Kriston, L., Romer, G. & Ramsauer, B., 2012, In: CLIN PSYCHOL PSYCHOT. 19, 6, p. 508-517 6.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Reflexives Empathievermögen von Müttern mit postpartalen Depressionen
Quitman, J. H., Romer, G. & Ramsauer, B., 2010, In: PSYCHOTHERAPEUT. p. 1-5Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Gesundheitsbezogene Lebensqualität und psychische Gesundheit von kleinwüchsigen Kindern und Jugendlichen
Quitman, J. H., Behncke, J., Dörr, H-G., Rolf, P. W., Wüsthof, A., Stahnke, N., Jakisch, B., Partsch, C-J., Nöker, M., Kuhnle-Krahl, U., Rohenkohl, A. C. & Bullinger, M., 2012, In: Z Med Psychol. 31, 3, p. 132-139 3.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Insightfulness Assessment - Erfassung des reflexiven Empathievermögens von Eltern
Quitman, J. H., Romer, G. & Ramsauer, B., 2010, In: PSYCHOTHERAPEUT. 55, p. 291-298Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Parental perception of health-related quality of life in children and adolescents with short stature: literature review and introduction of the parent-reported QoLISSY instrument
Quitmann, J., Rohenkohl, A., Bullinger-Naber, M., Chaplin, J. E., Herdman, M., Sanz, D., Mimoun, E., Feigerlova, E., DeBusk, K., Power, M., Wollmann, H. & Pleil, A., 01.12.2013, In: PEDIATR ENDOCRINOL REV. 11, 2, p. 147-60 14 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Coping Strategies of Children and Adolescents with Clinically Diagnosed Short Stature
Quitmann, J. H., Rohenkohl, A., Specht, A., Petersen-Ewert, C., Schillmöller, Z., Bullinger-Naber, M. & QoLISSY Study Group, 01.03.2015, In: J CHILD FAM STUD. 24, 3, p. 703-714Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Die Lebensqualität junger Erwachsener nach einer Wachstumshormonbehandlung im Kindesalter
Quitmann, J. H., Rohenkohl, A. C., Kammerer, U., Schöfl, C., Bullinger-Naber, M. & Dörr, H-G., 01.11.2014, In: DEUT MED WOCHENSCHR. 139, 46, p. 2335-8 4 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Wie erleben betroffene Kinder und Jugendliche ihren Kleinwuchs, und wie ist die Sicht ihrer Eltern?
Quitmann, J. H., Rohenkohl, A., Sommer, R., Petzold, S., Bullinger-Naber, M. & QoLISSY Study Group, 10.2014, In: PRAX KINDERPSYCHOL K. 63, 8, p. 635-648Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Lebensqualität junger Menschen mit Achondroplasie: Qualitativer Vergleich der Perspektiven Betroffener und Eltern
Quitmann, J. H., Witt, S., Rohenkohl, A., Bullinger, M., Sommer, R., Klingebiel, R., Klingebiel, K-H. & Bergs-Winkels, D., 2014, In: MONATSSCHR KINDERH. 162, 5, p. 428-434Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Associations between Psychological Problems and Quality of Life in Pediatric Short Stature from Patients' and Parents' Perspectives
Quitmann, J. H., Bullinger, M., Sommer, R., Rohenkohl, A. & Bernadino Da Silva, N., 2016, In: PLOS ONE. 11, 4, p. e0153953Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter?
Quitmann, J., Rohenkohl, A., Sommer, R., Bullinger, M. & Silva, N., 21.10.2016, In: HEALTH QUAL LIFE OUT. 14, p. 150Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Validation of the Italian Quality of Life in Short Stature Youth (QoLISSY) questionnaire
Quitmann, J., Giammarco, A., Maghnie, M., Napoli, F., Di Giovanni, I., Carducci, C., Mohn, A., Bullinger, M. & Sommer, R., 10.2017, In: J ENDOCRINOL INVEST. 40, 10, p. 1077-1084Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone
Quitmann, J., Bloemeke, J., Dörr, H-G., Bullinger, M., Witt, S. & Silva, N., 09.2019, In: J ENDOCRINOL INVEST. 42, 9, p. 1067-1076 10 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment
Quitmann, J. H., Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Akkurt, I., Dunstheimer, D., Vogel, C., Böttcher, V., Kuhnle Krahl, U., Bettendorf, M., Schönau, E., Fricke-Otto, S., Keller, A., Mohnike, K. & Dörr, H-G., 29.04.2019, In: FRONT PEDIATR. 7, p. 164Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Insightfulness and later infant attachment in clinically depressed and nonclinical mothers
Ramsauer, B., Lotzin, A., Quitmann, J. H., Becker-Stoll, F., Tharner, A. & Romer, G., 01.05.2014, In: INFANT MENT HEALTH J. 35, 3, p. 210-219 10 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs
Rautmann, L., Witt, S., Theiding, C., Odenwald, B., Nennstiel-Ratzel, U., Dörr, H-G. & Quitmann, J. H., 03.03.2023, In: INT J ENV RES PUB HE. 20, 5, 4493.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Erfassung der gesundheitsbezogenen Lebensqualität von Kindern und Jugendlichen
Ravens-Sieberer, U., Klasen, F., Bichmann, H., Otto, C., Quitmann, J. & Bullinger-Naber, M., 01.10.2013, In: GESUNDHEITSWESEN. 75, 10, p. 667-78 12 p.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Validation of the Flemish version of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire
Rohenkohl, A. C., De Schepper, J., Vanderfaeillie, J., Fricke, K., Hendrickx, S., Lagrou, K., Bullinger-Naber, M., Quitmann, J. & QoLISSY Study Group, 06.2014, In: ACTA CLIN BELG. 69, 3, p. 177-182Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
Lebensqualität bei Kindern, Jugendlichen und jungen Erwachsenen mit Achondroplasie
Rohenkohl, A. C., Bullinger-Naber, M. & Quitmann, J., 13.09.2014, In: ORTHOPADE.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review