Quality of life measurement in rosacea: Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa
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Quality of life measurement in rosacea: Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa. / Chernyshov, P V; Finlay, A Y; Tomas-Aragones, L; Steinhoff, M; Manolache, L; Pustisek, N; Dessinioti, C; Svensson, A; Marron, S E; Bewley, A; Salavastru, C; Dréno, B; Suru, A; Koumaki, D; Linder, D; Evers, A W M; Abeni, D; Augustin, M; Salek, S S; Nassif, A; Bettoli, V; Szepietowski, J С; Zouboulis, C C.
in: J EUR ACAD DERMATOL, Jahrgang 37, Nr. 5, 05.2023, S. 954-964.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › Leitlinie, Empfehlung, Stellungnahme › Forschung › Begutachtung
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TY - JOUR
T1 - Quality of life measurement in rosacea: Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa
AU - Chernyshov, P V
AU - Finlay, A Y
AU - Tomas-Aragones, L
AU - Steinhoff, M
AU - Manolache, L
AU - Pustisek, N
AU - Dessinioti, C
AU - Svensson, A
AU - Marron, S E
AU - Bewley, A
AU - Salavastru, C
AU - Dréno, B
AU - Suru, A
AU - Koumaki, D
AU - Linder, D
AU - Evers, A W M
AU - Abeni, D
AU - Augustin, M
AU - Salek, S S
AU - Nassif, A
AU - Bettoli, V
AU - Szepietowski, J С
AU - Zouboulis, C C
N1 - © 2023 European Academy of Dermatology and Venereology.
PY - 2023/5
Y1 - 2023/5
N2 - The European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on Quality of Life (QoL) and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa (ARHS) do not recommend the use of any generic instrument as a single method of Health Related (HR) QoL assessment in rosacea, except when comparing quimp (quality of life impairment) in rosacea patients with that in other non-dermatologic skin diseases and/or healthy controls. The EADV TFs on QoL and Patient-Oriented Outcomes and ARHS recommend the use of the dermatology-specific HRQoL instrument the Dermatology Life Quality Index (DLQI) and the rosacea-specific HRQoL instrument RosaQoL in rosacea patients. The DLQI minimal clinically important difference may be used as a marker of clinical efficacy of the treatment and DLQI score banding of 0 or 1 corresponding to no effect on patients' HRQoL could be an important treatment goal. This information may be added to consensuses and guidelines for rosacea.
AB - The European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on Quality of Life (QoL) and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa (ARHS) do not recommend the use of any generic instrument as a single method of Health Related (HR) QoL assessment in rosacea, except when comparing quimp (quality of life impairment) in rosacea patients with that in other non-dermatologic skin diseases and/or healthy controls. The EADV TFs on QoL and Patient-Oriented Outcomes and ARHS recommend the use of the dermatology-specific HRQoL instrument the Dermatology Life Quality Index (DLQI) and the rosacea-specific HRQoL instrument RosaQoL in rosacea patients. The DLQI minimal clinically important difference may be used as a marker of clinical efficacy of the treatment and DLQI score banding of 0 or 1 corresponding to no effect on patients' HRQoL could be an important treatment goal. This information may be added to consensuses and guidelines for rosacea.
KW - Humans
KW - Hidradenitis Suppurativa/therapy
KW - Quality of Life
KW - Venereology
KW - Dermatology
KW - Acne Vulgaris
KW - Rosacea/therapy
U2 - 10.1111/jdv.18918
DO - 10.1111/jdv.18918
M3 - Guideline, recommendation, statement
C2 - 36744752
VL - 37
SP - 954
EP - 964
JO - J EUR ACAD DERMATOL
JF - J EUR ACAD DERMATOL
SN - 0926-9959
IS - 5
ER -