Quality of life measurement in rosacea: Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa

  • P V Chernyshov
  • A Y Finlay
  • L Tomas-Aragones
  • M Steinhoff
  • L Manolache
  • N Pustisek
  • C Dessinioti
  • A Svensson
  • S E Marron
  • A Bewley
  • C Salavastru
  • B Dréno
  • A Suru
  • D Koumaki
  • D Linder
  • A W M Evers
  • D Abeni
  • M Augustin
  • S S Salek
  • A Nassif
  • V Bettoli
  • J С Szepietowski
  • C C Zouboulis

Abstract

The European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on Quality of Life (QoL) and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa (ARHS) do not recommend the use of any generic instrument as a single method of Health Related (HR) QoL assessment in rosacea, except when comparing quimp (quality of life impairment) in rosacea patients with that in other non-dermatologic skin diseases and/or healthy controls. The EADV TFs on QoL and Patient-Oriented Outcomes and ARHS recommend the use of the dermatology-specific HRQoL instrument the Dermatology Life Quality Index (DLQI) and the rosacea-specific HRQoL instrument RosaQoL in rosacea patients. The DLQI minimal clinically important difference may be used as a marker of clinical efficacy of the treatment and DLQI score banding of 0 or 1 corresponding to no effect on patients' HRQoL could be an important treatment goal. This information may be added to consensuses and guidelines for rosacea.

Bibliografische Daten

OriginalspracheEnglisch
ISSN0926-9959
DOIs
StatusVeröffentlicht - 05.2023

Anmerkungen des Dekanats

© 2023 European Academy of Dermatology and Venereology.

PubMed 36744752