Does the Dermatology Life Quality Index (DLQI) underestimate the disease-specific burden of psoriasis patients?

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Does the Dermatology Life Quality Index (DLQI) underestimate the disease-specific burden of psoriasis patients? / Langenbruch, A; Radtke, M A; Gutknecht, M; Augustin, M.

in: J EUR ACAD DERMATOL, Jahrgang 33, Nr. 1, 01.2019, S. 123-127.

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@article{d7fae60c91fd42a9bdda7a719ff56308,
title = "Does the Dermatology Life Quality Index (DLQI) underestimate the disease-specific burden of psoriasis patients?",
abstract = "BACKGROUND: The Dermatology Life Quality Index (DLQI) is the most frequently used health-related quality of life (HRQoL) instrument for skin diseases. According to the DLQI instructions, the responses 'not relevant' and 'my skin problem has not at all affected this aspect of life' ('not at all') have to be scored as 0 = no HRQoL impairments.OBJECTIVE: The aim of this study was to estimate potential bias of DLQI measurements for patients with psoriasis based on items considered to be not relevant.METHODS: One thousand two hundred forty-three patients with psoriasis were surveyed in a cross-sectional study. Disease severity (Psoriasis Area and Severity Index, PASI) and subjective health state (EuroQoL Visual Analogue Scale, EQ VAS) were compared per DLQI item between patients who answered the respective question 'not relevant' and those who answered 'not at all'.RESULTS: Patients who declared a DLQI item to be not relevant showed a higher disease severity and a lower health state.CONCLUSION: Results indicate that patients who declare a DLQI item to be not relevant have a higher disease-related burden than those who do not feel affected by their psoriasis in the same aspect of life. If aspects of life are considered to be not relevant due to high disease burden, this should be reflected by a HRQoL instrument.",
keywords = "Journal Article, Severity of Illness Index, Cross-Sectional Studies, Bias, Humans, Middle Aged, Cost of Illness, Male, Quality of Life, Adult, Female, Psoriasis/psychology, Surveys and Questionnaires, Aged, Health Status",
author = "A Langenbruch and Radtke, {M A} and M Gutknecht and M Augustin",
note = "{\textcopyright} 2018 European Academy of Dermatology and Venereology.",
year = "2019",
month = jan,
doi = "10.1111/jdv.15226",
language = "English",
volume = "33",
pages = "123--127",
journal = "J EUR ACAD DERMATOL",
issn = "0926-9959",
publisher = "Wiley-Blackwell",
number = "1",

}

RIS

TY - JOUR

T1 - Does the Dermatology Life Quality Index (DLQI) underestimate the disease-specific burden of psoriasis patients?

AU - Langenbruch, A

AU - Radtke, M A

AU - Gutknecht, M

AU - Augustin, M

N1 - © 2018 European Academy of Dermatology and Venereology.

PY - 2019/1

Y1 - 2019/1

N2 - BACKGROUND: The Dermatology Life Quality Index (DLQI) is the most frequently used health-related quality of life (HRQoL) instrument for skin diseases. According to the DLQI instructions, the responses 'not relevant' and 'my skin problem has not at all affected this aspect of life' ('not at all') have to be scored as 0 = no HRQoL impairments.OBJECTIVE: The aim of this study was to estimate potential bias of DLQI measurements for patients with psoriasis based on items considered to be not relevant.METHODS: One thousand two hundred forty-three patients with psoriasis were surveyed in a cross-sectional study. Disease severity (Psoriasis Area and Severity Index, PASI) and subjective health state (EuroQoL Visual Analogue Scale, EQ VAS) were compared per DLQI item between patients who answered the respective question 'not relevant' and those who answered 'not at all'.RESULTS: Patients who declared a DLQI item to be not relevant showed a higher disease severity and a lower health state.CONCLUSION: Results indicate that patients who declare a DLQI item to be not relevant have a higher disease-related burden than those who do not feel affected by their psoriasis in the same aspect of life. If aspects of life are considered to be not relevant due to high disease burden, this should be reflected by a HRQoL instrument.

AB - BACKGROUND: The Dermatology Life Quality Index (DLQI) is the most frequently used health-related quality of life (HRQoL) instrument for skin diseases. According to the DLQI instructions, the responses 'not relevant' and 'my skin problem has not at all affected this aspect of life' ('not at all') have to be scored as 0 = no HRQoL impairments.OBJECTIVE: The aim of this study was to estimate potential bias of DLQI measurements for patients with psoriasis based on items considered to be not relevant.METHODS: One thousand two hundred forty-three patients with psoriasis were surveyed in a cross-sectional study. Disease severity (Psoriasis Area and Severity Index, PASI) and subjective health state (EuroQoL Visual Analogue Scale, EQ VAS) were compared per DLQI item between patients who answered the respective question 'not relevant' and those who answered 'not at all'.RESULTS: Patients who declared a DLQI item to be not relevant showed a higher disease severity and a lower health state.CONCLUSION: Results indicate that patients who declare a DLQI item to be not relevant have a higher disease-related burden than those who do not feel affected by their psoriasis in the same aspect of life. If aspects of life are considered to be not relevant due to high disease burden, this should be reflected by a HRQoL instrument.

KW - Journal Article

KW - Severity of Illness Index

KW - Cross-Sectional Studies

KW - Bias

KW - Humans

KW - Middle Aged

KW - Cost of Illness

KW - Male

KW - Quality of Life

KW - Adult

KW - Female

KW - Psoriasis/psychology

KW - Surveys and Questionnaires

KW - Aged

KW - Health Status

U2 - 10.1111/jdv.15226

DO - 10.1111/jdv.15226

M3 - SCORING: Journal article

C2 - 30160802

VL - 33

SP - 123

EP - 127

JO - J EUR ACAD DERMATOL

JF - J EUR ACAD DERMATOL

SN - 0926-9959

IS - 1

ER -