Attitudes of patients with schizophrenia and depression to psychiatric research: a study in seven European countries.
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Attitudes of patients with schizophrenia and depression to psychiatric research: a study in seven European countries. / Schäfer, Ingo; Burns, Tom; Fleischhacker, W Wolfgang; Galderisi, Silvana; Rybakowski, Janusz K; Libiger, Jan; Rössler, Wulf; Molodynski, Andrew; Edlinger, Monika; Piegari, Giuseppe; Jela, Hrn Iarova; Gorna, Krystyna; Jaeger, Matthias; Fett, Anne-Kathrin; Hissbach, Johanna; Naber, Dieter.
in: SOC PSYCH PSYCH EPID, Jahrgang 46, Nr. 2, 2, 2011, S. 159-165.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Attitudes of patients with schizophrenia and depression to psychiatric research: a study in seven European countries.
AU - Schäfer, Ingo
AU - Burns, Tom
AU - Fleischhacker, W Wolfgang
AU - Galderisi, Silvana
AU - Rybakowski, Janusz K
AU - Libiger, Jan
AU - Rössler, Wulf
AU - Molodynski, Andrew
AU - Edlinger, Monika
AU - Piegari, Giuseppe
AU - Jela, Hrn Iarova
AU - Gorna, Krystyna
AU - Jaeger, Matthias
AU - Fett, Anne-Kathrin
AU - Hissbach, Johanna
AU - Naber, Dieter
PY - 2011
Y1 - 2011
N2 - BACKGROUND: Relatively few studies have examined how patients with schizophrenia and depression view psychiatric research and what influences their readiness to participate. METHODS: A total of 763 patients (48% schizophrenia, 52% depression) from 7 European countries were examined using a specifically designed self-report questionnaire ["Hamburg Attitudes to Psychiatric Research Questionnaire" (HAPRQ)]. RESULTS: Most patients (98%) approved of psychiatric research, in general, at least "a little". There was a tendency to approve psychosocial rather than biological research topics (e.g. research on the role of the family by 91% of patients compared to 79% in genetics). Reasons to participate were mainly altruistic. Only a minority (28%) considered monetary incentives important. Patients wanted extensive background information and a feedback of the results; both were significantly more expressed by schizophrenia as compared to depressive patients, although these findings need to be interpreted with care because of age and gender differences between the diagnostic groups. CONCLUSION: While patients expressed discerning views of psychiatric research, only few differences were apparent between the two diagnostic groups. Patients' research priorities are not the same as those of many professionals and funding bodies. Their demonstrated critical appraisal should inform future research ensuring an increased patient role in the research process.
AB - BACKGROUND: Relatively few studies have examined how patients with schizophrenia and depression view psychiatric research and what influences their readiness to participate. METHODS: A total of 763 patients (48% schizophrenia, 52% depression) from 7 European countries were examined using a specifically designed self-report questionnaire ["Hamburg Attitudes to Psychiatric Research Questionnaire" (HAPRQ)]. RESULTS: Most patients (98%) approved of psychiatric research, in general, at least "a little". There was a tendency to approve psychosocial rather than biological research topics (e.g. research on the role of the family by 91% of patients compared to 79% in genetics). Reasons to participate were mainly altruistic. Only a minority (28%) considered monetary incentives important. Patients wanted extensive background information and a feedback of the results; both were significantly more expressed by schizophrenia as compared to depressive patients, although these findings need to be interpreted with care because of age and gender differences between the diagnostic groups. CONCLUSION: While patients expressed discerning views of psychiatric research, only few differences were apparent between the two diagnostic groups. Patients' research priorities are not the same as those of many professionals and funding bodies. Their demonstrated critical appraisal should inform future research ensuring an increased patient role in the research process.
M3 - SCORING: Zeitschriftenaufsatz
VL - 46
SP - 159
EP - 165
JO - SOC PSYCH PSYCH EPID
JF - SOC PSYCH PSYCH EPID
SN - 0933-7954
IS - 2
M1 - 2
ER -