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What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0)

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What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0). / Heesen, C; Pöttgen, J; Rahn, A C; Liethmann, K; Kasper, J; Vahter, L; Drulovic, J; Van Nunen, A; Wilkie, D; Beckmann, Y; Paul, F; Giordano, A; Solari, A; AutoMS-group.

In: MULT SCLER RELAT DIS, Vol. 18, 11.2017, p. 186-195.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Heesen, C, Pöttgen, J, Rahn, AC, Liethmann, K, Kasper, J, Vahter, L, Drulovic, J, Van Nunen, A, Wilkie, D, Beckmann, Y, Paul, F, Giordano, A, Solari, A & AutoMS-group 2017, 'What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0)', MULT SCLER RELAT DIS, vol. 18, pp. 186-195. https://doi.org/10.1016/j.msard.2017.09.020

APA

Heesen, C., Pöttgen, J., Rahn, A. C., Liethmann, K., Kasper, J., Vahter, L., Drulovic, J., Van Nunen, A., Wilkie, D., Beckmann, Y., Paul, F., Giordano, A., Solari, A., & AutoMS-group (2017). What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0). MULT SCLER RELAT DIS, 18, 186-195. https://doi.org/10.1016/j.msard.2017.09.020

Vancouver

Heesen C, Pöttgen J, Rahn AC, Liethmann K, Kasper J, Vahter L et al. What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0). MULT SCLER RELAT DIS. 2017 Nov;18:186-195. https://doi.org/10.1016/j.msard.2017.09.020

Bibtex

@article{0252142a554945c5bf816c963900d38f,
title = "What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0)",
abstract = "BACKGROUND: Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was developed and piloted in Germany.OBJECTIVE: To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting.METHODS: The questionnaire was translated in seven languages. MS patient and health professional (HP) expert feedback was obtained from Germany, Italy, Estonia, Serbia, and the UK. A German web-based survey of RIKNO 2.0 compared the tool with the MS Knowledge Questionnaire (MSKQ), each one used with two versions (with/without a {"}don't know{"} DN option).RESULTS: While RIKNO 2.0 was considered difficult, it was rated as highly educational. One item was reframed, and two new items were added. The web-based German survey (n = 708 completers) showed that the DN version did not increase participation rate and did not produce significantly higher scores. Internal consistency (Cronbach alpha) without SN response was 0.73. RIKNO 2.0 scores showed normality distribution irrespective of the answering format. Item difficulty was high ranging from 0.07 to 0.79. Less than 50% of questions were answered correctly (mean 8.9) compared to 80.4% in the MSKQ (mean 20.1). Higher numeracy competency and education were significantly, albeit weakly, associated to higher scores for both RIKNO 2.0 and MSKQ.CONCLUSION: Including {"}don't know{"} options in knowledge questionnaires does not increase percentage of correct replies. RIKNO 2.0 is a complex questionnaire to be used in an educational context and studies on patient information. The tool is now available in seven languages.",
keywords = "Journal Article",
author = "C Heesen and J P{\"o}ttgen and Rahn, {A C} and K Liethmann and J Kasper and L Vahter and J Drulovic and {Van Nunen}, A and D Wilkie and Y Beckmann and F Paul and A Giordano and A Solari and AutoMS-group",
note = "Copyright {\textcopyright} 2017. Published by Elsevier B.V.",
year = "2017",
month = nov,
doi = "10.1016/j.msard.2017.09.020",
language = "English",
volume = "18",
pages = "186--195",
journal = "MULT SCLER RELAT DIS",
issn = "2211-0348",
publisher = "Elsevier",

}

RIS

TY - JOUR

T1 - What should a person with relapsing-remitting multiple sclerosis know? - Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0)

AU - Heesen, C

AU - Pöttgen, J

AU - Rahn, A C

AU - Liethmann, K

AU - Kasper, J

AU - Vahter, L

AU - Drulovic, J

AU - Van Nunen, A

AU - Wilkie, D

AU - Beckmann, Y

AU - Paul, F

AU - Giordano, A

AU - Solari, A

AU - AutoMS-group

N1 - Copyright © 2017. Published by Elsevier B.V.

PY - 2017/11

Y1 - 2017/11

N2 - BACKGROUND: Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was developed and piloted in Germany.OBJECTIVE: To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting.METHODS: The questionnaire was translated in seven languages. MS patient and health professional (HP) expert feedback was obtained from Germany, Italy, Estonia, Serbia, and the UK. A German web-based survey of RIKNO 2.0 compared the tool with the MS Knowledge Questionnaire (MSKQ), each one used with two versions (with/without a "don't know" DN option).RESULTS: While RIKNO 2.0 was considered difficult, it was rated as highly educational. One item was reframed, and two new items were added. The web-based German survey (n = 708 completers) showed that the DN version did not increase participation rate and did not produce significantly higher scores. Internal consistency (Cronbach alpha) without SN response was 0.73. RIKNO 2.0 scores showed normality distribution irrespective of the answering format. Item difficulty was high ranging from 0.07 to 0.79. Less than 50% of questions were answered correctly (mean 8.9) compared to 80.4% in the MSKQ (mean 20.1). Higher numeracy competency and education were significantly, albeit weakly, associated to higher scores for both RIKNO 2.0 and MSKQ.CONCLUSION: Including "don't know" options in knowledge questionnaires does not increase percentage of correct replies. RIKNO 2.0 is a complex questionnaire to be used in an educational context and studies on patient information. The tool is now available in seven languages.

AB - BACKGROUND: Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was developed and piloted in Germany.OBJECTIVE: To produce a revised RIKNO 2.0 questionnaire using mixed methodology in a European setting.METHODS: The questionnaire was translated in seven languages. MS patient and health professional (HP) expert feedback was obtained from Germany, Italy, Estonia, Serbia, and the UK. A German web-based survey of RIKNO 2.0 compared the tool with the MS Knowledge Questionnaire (MSKQ), each one used with two versions (with/without a "don't know" DN option).RESULTS: While RIKNO 2.0 was considered difficult, it was rated as highly educational. One item was reframed, and two new items were added. The web-based German survey (n = 708 completers) showed that the DN version did not increase participation rate and did not produce significantly higher scores. Internal consistency (Cronbach alpha) without SN response was 0.73. RIKNO 2.0 scores showed normality distribution irrespective of the answering format. Item difficulty was high ranging from 0.07 to 0.79. Less than 50% of questions were answered correctly (mean 8.9) compared to 80.4% in the MSKQ (mean 20.1). Higher numeracy competency and education were significantly, albeit weakly, associated to higher scores for both RIKNO 2.0 and MSKQ.CONCLUSION: Including "don't know" options in knowledge questionnaires does not increase percentage of correct replies. RIKNO 2.0 is a complex questionnaire to be used in an educational context and studies on patient information. The tool is now available in seven languages.

KW - Journal Article

U2 - 10.1016/j.msard.2017.09.020

DO - 10.1016/j.msard.2017.09.020

M3 - SCORING: Journal article

C2 - 29141808

VL - 18

SP - 186

EP - 195

JO - MULT SCLER RELAT DIS

JF - MULT SCLER RELAT DIS

SN - 2211-0348

ER -