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Satisfaction with information and unmet information needs in men and women with cancer

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Satisfaction with information and unmet information needs in men and women with cancer. / Faller, Hermann; Koch, Uwe; Brähler, Elmar; Härter, Martin; Keller, Monika; Schulz, Holger; Wegscheider, Karl; Weis, Joachim; Boehncke, Anna; Hund, Bianca; Reuter, Katrin; Richard, Matthias; Sehner, Susanne; Szalai, Carina; Wittchen, Hans-Ulrich; Mehnert, Anja.

In: J CANCER SURVIV, Vol. 10, No. 1, 02.2016, p. 62-70.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Faller, H, Koch, U, Brähler, E, Härter, M, Keller, M, Schulz, H, Wegscheider, K, Weis, J, Boehncke, A, Hund, B, Reuter, K, Richard, M, Sehner, S, Szalai, C, Wittchen, H-U & Mehnert, A 2016, 'Satisfaction with information and unmet information needs in men and women with cancer', J CANCER SURVIV, vol. 10, no. 1, pp. 62-70. https://doi.org/10.1007/s11764-015-0451-1

APA

Faller, H., Koch, U., Brähler, E., Härter, M., Keller, M., Schulz, H., Wegscheider, K., Weis, J., Boehncke, A., Hund, B., Reuter, K., Richard, M., Sehner, S., Szalai, C., Wittchen, H-U., & Mehnert, A. (2016). Satisfaction with information and unmet information needs in men and women with cancer. J CANCER SURVIV, 10(1), 62-70. https://doi.org/10.1007/s11764-015-0451-1

Vancouver

Faller H, Koch U, Brähler E, Härter M, Keller M, Schulz H et al. Satisfaction with information and unmet information needs in men and women with cancer. J CANCER SURVIV. 2016 Feb;10(1):62-70. https://doi.org/10.1007/s11764-015-0451-1

Bibtex

@article{d7b722c0a5a64031a9e43fd60a801959,
title = "Satisfaction with information and unmet information needs in men and women with cancer",
abstract = "PURPOSE: Information needs in cancer patients are high but often not fulfilled. This study aimed to examine the level of perceived information, information satisfaction, and unmet needs in a large sample of cancer patients. Further, we explored associations with emotional distress and quality of life accounting for gender.METHODS: In a multicenter, cross-sectional study in Germany, 4020 cancer patients (mean age 58 years, 51 % women) were evaluated. We obtained self-reports of information level, information satisfaction, and unmet needs, measured depressive symptoms with the Patient Health Questionnaire (PHQ-9), symptoms of anxiety with the Generalized Anxiety Disorder Scale (GAD-7), and health-related quality of life with the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (EORTC QLQ-C30).RESULTS: Seventy-two to 88 % of participants reported to be well informed regarding various aspects of their disease, except of psychological support (38 %). However, unmet information needs were also prevalent in 36 to 48 %. Gender differences found were generally small. Although men felt less informed about psychological support, they expressed fewer needs for further information regarding this topic. Irrespective of gender, patients who were less satisfied with information received and had more unmet needs reported more anxiety, depression, and lower quality of life. Up to three quarters of those classified as most severely distressed reported unmet needs for information about psychological support.CONCLUSIONS: In this largest study to date, we found high levels of both information received and satisfaction with information, but also considerable amounts of unmet needs, particularly regarding psychological support.IMPLICATIONS FOR CANCER SURVIVORS: Provision of information about psychosocial support seems important to increase utilization of support offers among distressed cancer survivors.",
author = "Hermann Faller and Uwe Koch and Elmar Br{\"a}hler and Martin H{\"a}rter and Monika Keller and Holger Schulz and Karl Wegscheider and Joachim Weis and Anna Boehncke and Bianca Hund and Katrin Reuter and Matthias Richard and Susanne Sehner and Carina Szalai and Hans-Ulrich Wittchen and Anja Mehnert",
year = "2016",
month = feb,
doi = "10.1007/s11764-015-0451-1",
language = "English",
volume = "10",
pages = "62--70",
journal = "J CANCER SURVIV",
issn = "1932-2259",
publisher = "Springer New York",
number = "1",

}

RIS

TY - JOUR

T1 - Satisfaction with information and unmet information needs in men and women with cancer

AU - Faller, Hermann

AU - Koch, Uwe

AU - Brähler, Elmar

AU - Härter, Martin

AU - Keller, Monika

AU - Schulz, Holger

AU - Wegscheider, Karl

AU - Weis, Joachim

AU - Boehncke, Anna

AU - Hund, Bianca

AU - Reuter, Katrin

AU - Richard, Matthias

AU - Sehner, Susanne

AU - Szalai, Carina

AU - Wittchen, Hans-Ulrich

AU - Mehnert, Anja

PY - 2016/2

Y1 - 2016/2

N2 - PURPOSE: Information needs in cancer patients are high but often not fulfilled. This study aimed to examine the level of perceived information, information satisfaction, and unmet needs in a large sample of cancer patients. Further, we explored associations with emotional distress and quality of life accounting for gender.METHODS: In a multicenter, cross-sectional study in Germany, 4020 cancer patients (mean age 58 years, 51 % women) were evaluated. We obtained self-reports of information level, information satisfaction, and unmet needs, measured depressive symptoms with the Patient Health Questionnaire (PHQ-9), symptoms of anxiety with the Generalized Anxiety Disorder Scale (GAD-7), and health-related quality of life with the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (EORTC QLQ-C30).RESULTS: Seventy-two to 88 % of participants reported to be well informed regarding various aspects of their disease, except of psychological support (38 %). However, unmet information needs were also prevalent in 36 to 48 %. Gender differences found were generally small. Although men felt less informed about psychological support, they expressed fewer needs for further information regarding this topic. Irrespective of gender, patients who were less satisfied with information received and had more unmet needs reported more anxiety, depression, and lower quality of life. Up to three quarters of those classified as most severely distressed reported unmet needs for information about psychological support.CONCLUSIONS: In this largest study to date, we found high levels of both information received and satisfaction with information, but also considerable amounts of unmet needs, particularly regarding psychological support.IMPLICATIONS FOR CANCER SURVIVORS: Provision of information about psychosocial support seems important to increase utilization of support offers among distressed cancer survivors.

AB - PURPOSE: Information needs in cancer patients are high but often not fulfilled. This study aimed to examine the level of perceived information, information satisfaction, and unmet needs in a large sample of cancer patients. Further, we explored associations with emotional distress and quality of life accounting for gender.METHODS: In a multicenter, cross-sectional study in Germany, 4020 cancer patients (mean age 58 years, 51 % women) were evaluated. We obtained self-reports of information level, information satisfaction, and unmet needs, measured depressive symptoms with the Patient Health Questionnaire (PHQ-9), symptoms of anxiety with the Generalized Anxiety Disorder Scale (GAD-7), and health-related quality of life with the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (EORTC QLQ-C30).RESULTS: Seventy-two to 88 % of participants reported to be well informed regarding various aspects of their disease, except of psychological support (38 %). However, unmet information needs were also prevalent in 36 to 48 %. Gender differences found were generally small. Although men felt less informed about psychological support, they expressed fewer needs for further information regarding this topic. Irrespective of gender, patients who were less satisfied with information received and had more unmet needs reported more anxiety, depression, and lower quality of life. Up to three quarters of those classified as most severely distressed reported unmet needs for information about psychological support.CONCLUSIONS: In this largest study to date, we found high levels of both information received and satisfaction with information, but also considerable amounts of unmet needs, particularly regarding psychological support.IMPLICATIONS FOR CANCER SURVIVORS: Provision of information about psychosocial support seems important to increase utilization of support offers among distressed cancer survivors.

U2 - 10.1007/s11764-015-0451-1

DO - 10.1007/s11764-015-0451-1

M3 - SCORING: Journal article

C2 - 25956402

VL - 10

SP - 62

EP - 70

JO - J CANCER SURVIV

JF - J CANCER SURVIV

SN - 1932-2259

IS - 1

ER -