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Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin

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Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin. / de Zeeuw, Janine; Omansen, Till F.; Douwstra, Marlies; Barogui, Yves T; Agossadou, Chantal; Sopoh, Ghislain E; Phillips, Richard O; Johnson, Christian; Abass, K Mohammed; Saunderson, Paul; Dijkstra, Pieter U; van der Werf, Tjip S; Stienstra, Ymkje.

In: PLOS NEGLECT TROP D, Vol. 8, No. 11, 11.2014, p. e3303.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

de Zeeuw, J, Omansen, TF, Douwstra, M, Barogui, YT, Agossadou, C, Sopoh, GE, Phillips, RO, Johnson, C, Abass, KM, Saunderson, P, Dijkstra, PU, van der Werf, TS & Stienstra, Y 2014, 'Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin', PLOS NEGLECT TROP D, vol. 8, no. 11, pp. e3303. https://doi.org/10.1371/journal.pntd.0003303

APA

de Zeeuw, J., Omansen, T. F., Douwstra, M., Barogui, Y. T., Agossadou, C., Sopoh, G. E., Phillips, R. O., Johnson, C., Abass, K. M., Saunderson, P., Dijkstra, P. U., van der Werf, T. S., & Stienstra, Y. (2014). Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin. PLOS NEGLECT TROP D, 8(11), e3303. https://doi.org/10.1371/journal.pntd.0003303

Vancouver

de Zeeuw J, Omansen TF, Douwstra M, Barogui YT, Agossadou C, Sopoh GE et al. Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin. PLOS NEGLECT TROP D. 2014 Nov;8(11):e3303. https://doi.org/10.1371/journal.pntd.0003303

Bibtex

@article{90517b4b96d240bb92e3e77f5a1f0ace,
title = "Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin",
abstract = "BACKGROUND: Buruli ulcer may induce severe disabilities impacting on a person's well-being and quality of life. Information about long-term disabilities and participation restrictions is scanty. The objective of this study was to gain insight into participation restrictions among former Buruli ulcer patients in Ghana and Benin.METHODS: In this cross-sectional study, former Buruli ulcer patients were interviewed using the Participation Scale, the Buruli Ulcer Functional Limitation Score to measure functional limitations, and the Explanatory Model Interview Catalogue to measure perceived stigma. Healthy community controls were also interviewed using the Participation Scale. Trained native interviewers conducted the interviews. Former Buruli ulcer patients were eligible for inclusion if they had been treated between 2005 and 2011, had ended treatment at least 3 months before the interview, and were at least 15 years of age.RESULTS: In total, 143 former Buruli ulcer patients and 106 community controls from Ghana and Benin were included in the study. Participation restrictions were experienced by 67 former patients (median score, 30, IQR; 23;43) while 76 participated in social life without problems (median score 5, IQR; 2;9). Most restrictions encountered related to employment. Linear regression showed being female, perceived stigma, functional limitations, and larger lesions (category II) as predictors of more participation restrictions.CONCLUSION: Persisting participation restrictions were experienced by former BU patients in Ghana and Benin. Most important predictors of participation restrictions were being female, perceived stigma, functional limitations and larger lesions.",
keywords = "Adolescent, Adult, Benin/epidemiology, Buruli Ulcer/epidemiology, Case-Control Studies, Cross-Sectional Studies, Female, Ghana/epidemiology, Humans, Linear Models, Male, Sex Factors, Social Participation/psychology, Social Stigma, Young Adult",
author = "{de Zeeuw}, Janine and Omansen, {Till F.} and Marlies Douwstra and Barogui, {Yves T} and Chantal Agossadou and Sopoh, {Ghislain E} and Phillips, {Richard O} and Christian Johnson and Abass, {K Mohammed} and Paul Saunderson and Dijkstra, {Pieter U} and {van der Werf}, {Tjip S} and Ymkje Stienstra",
year = "2014",
month = nov,
doi = "10.1371/journal.pntd.0003303",
language = "English",
volume = "8",
pages = "e3303",
journal = "PLOS NEGLECT TROP D",
issn = "1935-2735",
publisher = "Public Library of Science",
number = "11",

}

RIS

TY - JOUR

T1 - Persisting social participation restrictions among former Buruli ulcer patients in Ghana and Benin

AU - de Zeeuw, Janine

AU - Omansen, Till F.

AU - Douwstra, Marlies

AU - Barogui, Yves T

AU - Agossadou, Chantal

AU - Sopoh, Ghislain E

AU - Phillips, Richard O

AU - Johnson, Christian

AU - Abass, K Mohammed

AU - Saunderson, Paul

AU - Dijkstra, Pieter U

AU - van der Werf, Tjip S

AU - Stienstra, Ymkje

PY - 2014/11

Y1 - 2014/11

N2 - BACKGROUND: Buruli ulcer may induce severe disabilities impacting on a person's well-being and quality of life. Information about long-term disabilities and participation restrictions is scanty. The objective of this study was to gain insight into participation restrictions among former Buruli ulcer patients in Ghana and Benin.METHODS: In this cross-sectional study, former Buruli ulcer patients were interviewed using the Participation Scale, the Buruli Ulcer Functional Limitation Score to measure functional limitations, and the Explanatory Model Interview Catalogue to measure perceived stigma. Healthy community controls were also interviewed using the Participation Scale. Trained native interviewers conducted the interviews. Former Buruli ulcer patients were eligible for inclusion if they had been treated between 2005 and 2011, had ended treatment at least 3 months before the interview, and were at least 15 years of age.RESULTS: In total, 143 former Buruli ulcer patients and 106 community controls from Ghana and Benin were included in the study. Participation restrictions were experienced by 67 former patients (median score, 30, IQR; 23;43) while 76 participated in social life without problems (median score 5, IQR; 2;9). Most restrictions encountered related to employment. Linear regression showed being female, perceived stigma, functional limitations, and larger lesions (category II) as predictors of more participation restrictions.CONCLUSION: Persisting participation restrictions were experienced by former BU patients in Ghana and Benin. Most important predictors of participation restrictions were being female, perceived stigma, functional limitations and larger lesions.

AB - BACKGROUND: Buruli ulcer may induce severe disabilities impacting on a person's well-being and quality of life. Information about long-term disabilities and participation restrictions is scanty. The objective of this study was to gain insight into participation restrictions among former Buruli ulcer patients in Ghana and Benin.METHODS: In this cross-sectional study, former Buruli ulcer patients were interviewed using the Participation Scale, the Buruli Ulcer Functional Limitation Score to measure functional limitations, and the Explanatory Model Interview Catalogue to measure perceived stigma. Healthy community controls were also interviewed using the Participation Scale. Trained native interviewers conducted the interviews. Former Buruli ulcer patients were eligible for inclusion if they had been treated between 2005 and 2011, had ended treatment at least 3 months before the interview, and were at least 15 years of age.RESULTS: In total, 143 former Buruli ulcer patients and 106 community controls from Ghana and Benin were included in the study. Participation restrictions were experienced by 67 former patients (median score, 30, IQR; 23;43) while 76 participated in social life without problems (median score 5, IQR; 2;9). Most restrictions encountered related to employment. Linear regression showed being female, perceived stigma, functional limitations, and larger lesions (category II) as predictors of more participation restrictions.CONCLUSION: Persisting participation restrictions were experienced by former BU patients in Ghana and Benin. Most important predictors of participation restrictions were being female, perceived stigma, functional limitations and larger lesions.

KW - Adolescent

KW - Adult

KW - Benin/epidemiology

KW - Buruli Ulcer/epidemiology

KW - Case-Control Studies

KW - Cross-Sectional Studies

KW - Female

KW - Ghana/epidemiology

KW - Humans

KW - Linear Models

KW - Male

KW - Sex Factors

KW - Social Participation/psychology

KW - Social Stigma

KW - Young Adult

U2 - 10.1371/journal.pntd.0003303

DO - 10.1371/journal.pntd.0003303

M3 - SCORING: Journal article

C2 - 25392915

VL - 8

SP - e3303

JO - PLOS NEGLECT TROP D

JF - PLOS NEGLECT TROP D

SN - 1935-2735

IS - 11

ER -