Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party
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Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party. / Schoemans, Hélène; Burns, Linda J.; Liptrott, Sarah J.; Murray, John; Kenyon, Michelle; Barata, Anna; Bolaños, Natacha; Scholl, Isabelle; Hamilton, Betty; Phelan, Rachel; Buchbinder, David; Penack, Olaf; Moiseev, Ivan; Boreland, William; Peczynski, Christophe; De Geest, Sabina; Sureda, Anna; Snowden, John A.; Shaw, Bronwen; Peric, Zinaida; Kroeger, Nicolaus.
In: BONE MARROW TRANSPL, Vol. 59, No. 9, 09.2024, p. 1286-1294.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party
AU - Schoemans, Hélène
AU - Burns, Linda J.
AU - Liptrott, Sarah J.
AU - Murray, John
AU - Kenyon, Michelle
AU - Barata, Anna
AU - Bolaños, Natacha
AU - Scholl, Isabelle
AU - Hamilton, Betty
AU - Phelan, Rachel
AU - Buchbinder, David
AU - Penack, Olaf
AU - Moiseev, Ivan
AU - Boreland, William
AU - Peczynski, Christophe
AU - De Geest, Sabina
AU - Sureda, Anna
AU - Snowden, John A.
AU - Shaw, Bronwen
AU - Peric, Zinaida
AU - Kroeger, Nicolaus
PY - 2024/9
Y1 - 2024/9
N2 - The EBMT (European Blood and Marrow Transplantation Society) aims to connect patients, the scientific community, and other stakeholders to improve hematopoietic stem cell transplantation and cellular therapy outcomes. We performed a cross-sectional online survey to understand the perceptions regarding Patient Reported Outcomes (PROs) and Patient Active Involvement in Research (PAIR) in over 800 stakeholders (n = 813). Patients (n = 278) and health care professionals (HCPs) (n = 351) were compared. We observed high openness for EBMT PRO collection (n = 680, 84.5% across stakeholders’ groups; patients n = 256, 93.1% versus HCPs n = 273, 78.4% [p
AB - The EBMT (European Blood and Marrow Transplantation Society) aims to connect patients, the scientific community, and other stakeholders to improve hematopoietic stem cell transplantation and cellular therapy outcomes. We performed a cross-sectional online survey to understand the perceptions regarding Patient Reported Outcomes (PROs) and Patient Active Involvement in Research (PAIR) in over 800 stakeholders (n = 813). Patients (n = 278) and health care professionals (HCPs) (n = 351) were compared. We observed high openness for EBMT PRO collection (n = 680, 84.5% across stakeholders’ groups; patients n = 256, 93.1% versus HCPs n = 273, 78.4% [p
U2 - 10.1038/s41409-024-02290-7
DO - 10.1038/s41409-024-02290-7
M3 - SCORING: Journal article
VL - 59
SP - 1286
EP - 1294
JO - BONE MARROW TRANSPL
JF - BONE MARROW TRANSPL
SN - 0268-3369
IS - 9
ER -