Participation in patient support groups among cancer survivors: do psychosocial and medical factors have an impact?
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Participation in patient support groups among cancer survivors: do psychosocial and medical factors have an impact? / Sautier, L; Mehnert, A; Höcker, A; Schilling, G.
In: EUR J CANCER CARE, Vol. 23, No. 1, 01.01.2014, p. 140-8.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - Participation in patient support groups among cancer survivors: do psychosocial and medical factors have an impact?
AU - Sautier, L
AU - Mehnert, A
AU - Höcker, A
AU - Schilling, G
N1 - © 2013 John Wiley & Sons Ltd.
PY - 2014/1/1
Y1 - 2014/1/1
N2 - A better understanding of the role of psychosocial resources and factors associated with participating in patient support groups appears to be important for the development and implementation of cancer survivorship care plans. We therefore investigated the frequency of participation in and satisfaction with patient support groups after completion of a rehabilitation programme and aimed to examine differences in demographic, medical and psychosocial characteristics between group participants and non-participants. We further aimed to identify predictors of participation in patient support groups. A total of 1281 eligible patients (75.5% participation rate) were recruited on average 11 months post diagnosis and assessed at the beginning (t1 ), at the end (t2 ) and 12 months after rehabilitation (t3 ). Study participants completed self-report measures assessing support-group participation and satisfaction, psychosocial distress (anxiety, fear of cancer recurrence, depression), social support, coping, quality of life, pain and treatment-related characteristics. Sixty-seven patients (7.6%) participated in a patient self-help group. Being unemployed, undergoing an increased number of overall treatments, and a higher active emotion-oriented coping style significantly predicted self-help group participation; the predictive power of the multivariate logistic regression model was rather weak (Nagelkerke's R(2) = 0.07). Our data provide evidence that self-help group participation in cancer patients may be largely related to other factors than medical or psychosocial distress.
AB - A better understanding of the role of psychosocial resources and factors associated with participating in patient support groups appears to be important for the development and implementation of cancer survivorship care plans. We therefore investigated the frequency of participation in and satisfaction with patient support groups after completion of a rehabilitation programme and aimed to examine differences in demographic, medical and psychosocial characteristics between group participants and non-participants. We further aimed to identify predictors of participation in patient support groups. A total of 1281 eligible patients (75.5% participation rate) were recruited on average 11 months post diagnosis and assessed at the beginning (t1 ), at the end (t2 ) and 12 months after rehabilitation (t3 ). Study participants completed self-report measures assessing support-group participation and satisfaction, psychosocial distress (anxiety, fear of cancer recurrence, depression), social support, coping, quality of life, pain and treatment-related characteristics. Sixty-seven patients (7.6%) participated in a patient self-help group. Being unemployed, undergoing an increased number of overall treatments, and a higher active emotion-oriented coping style significantly predicted self-help group participation; the predictive power of the multivariate logistic regression model was rather weak (Nagelkerke's R(2) = 0.07). Our data provide evidence that self-help group participation in cancer patients may be largely related to other factors than medical or psychosocial distress.
KW - Adaptation, Psychological
KW - Adult
KW - Anxiety
KW - Depression
KW - Employment
KW - Fear
KW - Female
KW - Humans
KW - Logistic Models
KW - Male
KW - Middle Aged
KW - Multivariate Analysis
KW - Neoplasms
KW - Patient Acceptance of Health Care
KW - Patient Satisfaction
KW - Quality of Life
KW - Self-Help Groups
KW - Social Support
KW - Survivors
U2 - 10.1111/ecc.12122
DO - 10.1111/ecc.12122
M3 - SCORING: Journal article
C2 - 24106803
VL - 23
SP - 140
EP - 148
JO - EUR J CANCER CARE
JF - EUR J CANCER CARE
SN - 0961-5423
IS - 1
ER -