Implementability of collecting patient-reported outcome data in stroke unit care - a qualitative study

TY - JOUR

T1 - Implementability of collecting patient-reported outcome data in stroke unit care - a qualitative study

AU - Lebherz, Lisa

AU - Fraune, Elisa

AU - Thomalla, Götz

AU - Frese, Marc

AU - Appelbohm, Hannes

AU - Rimmele, David Leander

AU - Härter, Martin

AU - Kriston, Levente

N1 - © 2022. The Author(s).

PY - 2022/3/16

Y1 - 2022/3/16

N2 - BACKGROUND: Patient-reported outcome measures (PROMs) assess patient-relevant effects of medical treatments. We aimed to evaluate the implementation of the International Consortium for Health Outcomes Measurement Standard Set for Stroke (ICHOM-SSS) into routine inpatient care of a stroke unit.METHODS: The ICHOM-SSS was administered in a certified stroke unit during and after inpatient care. Semi-structured interviews with medical staff (n = 5) and patients or their proxies (n = 19) about their experience were audio-recorded and analysed using thematic analyses. Implementation outcomes were chosen in advance and adhered to current standards of implementation science.RESULTS: Patients perceived the ICHOM-SSS to be relevant and feasible. They reported limited understanding of why the assessment was introduced. The overall acceptance of using PROMs was high. While medical staff, too, perceived the assessment to be appropriate and relevant, their appraisal of feasibility, sustainability, and their acceptance of the implementation were low.CONCLUSIONS: For a sustainable implementation of PROMs in clinical practice, IT resources need to be adapted, medical care needs to be reorganized, and additional clinical resources are required. Future research should investigate benefits of the ICHOM-SSS and a simpler, automated implementation in stroke care.TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT03795948 , retrospectively registered on 8 January 2019.

AB - BACKGROUND: Patient-reported outcome measures (PROMs) assess patient-relevant effects of medical treatments. We aimed to evaluate the implementation of the International Consortium for Health Outcomes Measurement Standard Set for Stroke (ICHOM-SSS) into routine inpatient care of a stroke unit.METHODS: The ICHOM-SSS was administered in a certified stroke unit during and after inpatient care. Semi-structured interviews with medical staff (n = 5) and patients or their proxies (n = 19) about their experience were audio-recorded and analysed using thematic analyses. Implementation outcomes were chosen in advance and adhered to current standards of implementation science.RESULTS: Patients perceived the ICHOM-SSS to be relevant and feasible. They reported limited understanding of why the assessment was introduced. The overall acceptance of using PROMs was high. While medical staff, too, perceived the assessment to be appropriate and relevant, their appraisal of feasibility, sustainability, and their acceptance of the implementation were low.CONCLUSIONS: For a sustainable implementation of PROMs in clinical practice, IT resources need to be adapted, medical care needs to be reorganized, and additional clinical resources are required. Future research should investigate benefits of the ICHOM-SSS and a simpler, automated implementation in stroke care.TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT03795948 , retrospectively registered on 8 January 2019.

KW - Hospitalization

KW - Humans

KW - Patient Reported Outcome Measures

KW - Qualitative Research

KW - Stroke/therapy

U2 - 10.1186/s12913-022-07722-y

DO - 10.1186/s12913-022-07722-y

M3 - SCORING: Journal article

C2 - 35292028

VL - 22

SP - 346

JO - BMC HEALTH SERV RES

JF - BMC HEALTH SERV RES

SN - 1472-6963

IS - 1

ER -