How important is subjective well-being for patients? A qualitative interview study of people with psoriasis

Antonia-Luise Newi; Athanasios Tsianakas; Sophia von Martial; Rachel Sommer; Christine Blome

doi:10.1007/s11136-022-03189-w

How important is subjective well-being for patients? A qualitative interview study of people with psoriasis

Standard

How important is subjective well-being for patients? A qualitative interview study of people with psoriasis. / Newi, Antonia-Luise; Tsianakas, Athanasios; von Martial, Sophia; Sommer, Rachel ; Blome, Christine.

In: QUAL LIFE RES, Vol. 31, No. 12, 12.2022, p. 3355-3363.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Newi, A-L, Tsianakas, A, von Martial, S, Sommer, R & Blome, C 2022, 'How important is subjective well-being for patients? A qualitative interview study of people with psoriasis', QUAL LIFE RES, vol. 31, no. 12, pp. 3355-3363. https://doi.org/10.1007/s11136-022-03189-w

APA

Newi, A-L., Tsianakas, A., von Martial, S., Sommer, R., & Blome, C. (2022). How important is subjective well-being for patients? A qualitative interview study of people with psoriasis. QUAL LIFE RES, 31(12), 3355-3363. https://doi.org/10.1007/s11136-022-03189-w

Vancouver

Newi A-L, Tsianakas A, von Martial S, Sommer R , Blome C. How important is subjective well-being for patients? A qualitative interview study of people with psoriasis. QUAL LIFE RES. 2022 Dec;31(12):3355-3363. https://doi.org/10.1007/s11136-022-03189-w

Bibtex

@article{417962835c3f40fba66d959984452a04,

title = "How important is subjective well-being for patients? A qualitative interview study of people with psoriasis",

abstract = "PURPOSE: This qualitative study aimed to investigate the importance of subjective well-being (SWB) as an outcome of psoriasis treatment from patient's perspective. We focused on the affective component of SWB as assessed with the Daily Experience Sampling Questionnaire (DESQ), a validated daily diary.METHODS: Semi-structured qualitative telephone interviews were conducted with in-patients of a dermatological rehabilitation clinic, after participants had completed the DESQ for up to seven days to get familiar with the concept of SWB. Patients were asked to reflect on the importance of SWB as treatment goal and on its relative importance as compared with other treatment outcomes. We also addressed whether SWB could be an indirect measure of benefit in that it reflects other important outcomes. Transcripts were analyzed using content analysis.RESULTS: Eleven patients participated (24-63 years, mean 53 years, 8 male, 3 female). Participants uniformly confirmed that changes in SWB reflected treatment benefit. All but one considered SWB to be a central aspect of treatment benefit-either as the most important treatment goal or as an indirect benefit indicator. In particular, participants described positive associations of SWB with other outcomes, such as symptoms. They reported that both the disease and the medical treatment had an impact on their SWB, which was reflected in the DESQ.CONCLUSION: Our findings suggest that SWB is a relevant indicator of treatment benefit for patients with psoriasis. Therefore, SWB measures, such as the DESQ, could be used to operationalize patient-relevant benefit of psoriasis treatment, complementing outcome measures currently used.",

keywords = "Humans, Male, Female, Quality of Life/psychology, Outcome Assessment, Health Care/methods, Qualitative Research, Treatment Outcome, Psoriasis/drug therapy",

author = "Antonia-Luise Newi and Athanasios Tsianakas and {von Martial}, Sophia and Rachel Sommer and Christine Blome",

note = "{\textcopyright} 2022. The Author(s).",

year = "2022",

month = dec,

doi = "10.1007/s11136-022-03189-w",

language = "English",

volume = "31",

pages = "3355--3363",

journal = "QUAL LIFE RES",

issn = "0962-9343",

publisher = "Springer Netherlands",

number = "12",

}

RIS

TY - JOUR

T1 - How important is subjective well-being for patients? A qualitative interview study of people with psoriasis

AU - Newi, Antonia-Luise

AU - Tsianakas, Athanasios

AU - von Martial, Sophia

AU - Sommer, Rachel

AU - Blome, Christine

PY - 2022/12

Y1 - 2022/12

N2 - PURPOSE: This qualitative study aimed to investigate the importance of subjective well-being (SWB) as an outcome of psoriasis treatment from patient's perspective. We focused on the affective component of SWB as assessed with the Daily Experience Sampling Questionnaire (DESQ), a validated daily diary.METHODS: Semi-structured qualitative telephone interviews were conducted with in-patients of a dermatological rehabilitation clinic, after participants had completed the DESQ for up to seven days to get familiar with the concept of SWB. Patients were asked to reflect on the importance of SWB as treatment goal and on its relative importance as compared with other treatment outcomes. We also addressed whether SWB could be an indirect measure of benefit in that it reflects other important outcomes. Transcripts were analyzed using content analysis.RESULTS: Eleven patients participated (24-63 years, mean 53 years, 8 male, 3 female). Participants uniformly confirmed that changes in SWB reflected treatment benefit. All but one considered SWB to be a central aspect of treatment benefit-either as the most important treatment goal or as an indirect benefit indicator. In particular, participants described positive associations of SWB with other outcomes, such as symptoms. They reported that both the disease and the medical treatment had an impact on their SWB, which was reflected in the DESQ.CONCLUSION: Our findings suggest that SWB is a relevant indicator of treatment benefit for patients with psoriasis. Therefore, SWB measures, such as the DESQ, could be used to operationalize patient-relevant benefit of psoriasis treatment, complementing outcome measures currently used.

AB - PURPOSE: This qualitative study aimed to investigate the importance of subjective well-being (SWB) as an outcome of psoriasis treatment from patient's perspective. We focused on the affective component of SWB as assessed with the Daily Experience Sampling Questionnaire (DESQ), a validated daily diary.METHODS: Semi-structured qualitative telephone interviews were conducted with in-patients of a dermatological rehabilitation clinic, after participants had completed the DESQ for up to seven days to get familiar with the concept of SWB. Patients were asked to reflect on the importance of SWB as treatment goal and on its relative importance as compared with other treatment outcomes. We also addressed whether SWB could be an indirect measure of benefit in that it reflects other important outcomes. Transcripts were analyzed using content analysis.RESULTS: Eleven patients participated (24-63 years, mean 53 years, 8 male, 3 female). Participants uniformly confirmed that changes in SWB reflected treatment benefit. All but one considered SWB to be a central aspect of treatment benefit-either as the most important treatment goal or as an indirect benefit indicator. In particular, participants described positive associations of SWB with other outcomes, such as symptoms. They reported that both the disease and the medical treatment had an impact on their SWB, which was reflected in the DESQ.CONCLUSION: Our findings suggest that SWB is a relevant indicator of treatment benefit for patients with psoriasis. Therefore, SWB measures, such as the DESQ, could be used to operationalize patient-relevant benefit of psoriasis treatment, complementing outcome measures currently used.

KW - Humans

KW - Male

KW - Female

KW - Quality of Life/psychology

KW - Outcome Assessment, Health Care/methods

KW - Qualitative Research

KW - Treatment Outcome

KW - Psoriasis/drug therapy

U2 - 10.1007/s11136-022-03189-w

DO - 10.1007/s11136-022-03189-w

M3 - SCORING: Journal article

C2 - 35948788

VL - 31

SP - 3355

EP - 3363

JO - QUAL LIFE RES

JF - QUAL LIFE RES

SN - 0962-9343

IS - 12

ER -