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Health-related quality of life in Egyptian children and adolescents with hemophilia A

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Health-related quality of life in Egyptian children and adolescents with hemophilia A. / Tantawy, Azza A G; Mackensen, Sylvia Von; El-Laboudy, Mohammed A M; Labib, Jonair H; Moftah, Faten; El-Telbany, Manal A S; Mansour, Wesam A A.

In: PEDIATR HEMAT ONCOL, Vol. 28, No. 3, 04.2011, p. 222-9.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Tantawy, AAG, Mackensen, SV, El-Laboudy, MAM, Labib, JH, Moftah, F, El-Telbany, MAS & Mansour, WAA 2011, 'Health-related quality of life in Egyptian children and adolescents with hemophilia A', PEDIATR HEMAT ONCOL, vol. 28, no. 3, pp. 222-9. https://doi.org/10.3109/08880018.2010.535116

APA

Tantawy, A. A. G., Mackensen, S. V., El-Laboudy, M. A. M., Labib, J. H., Moftah, F., El-Telbany, M. A. S., & Mansour, W. A. A. (2011). Health-related quality of life in Egyptian children and adolescents with hemophilia A. PEDIATR HEMAT ONCOL, 28(3), 222-9. https://doi.org/10.3109/08880018.2010.535116

Vancouver

Tantawy AAG, Mackensen SV, El-Laboudy MAM, Labib JH, Moftah F, El-Telbany MAS et al. Health-related quality of life in Egyptian children and adolescents with hemophilia A. PEDIATR HEMAT ONCOL. 2011 Apr;28(3):222-9. https://doi.org/10.3109/08880018.2010.535116

Bibtex

@article{cda67783e0124037bde4e3a53b4e6b1c,
title = "Health-related quality of life in Egyptian children and adolescents with hemophilia A",
abstract = "Quality of life (QoL) in hemophilia is an important area in hemophilia outcome assessment. The Haemo-QoL instrument is a set of questionnaires to measure QoL in those children. The objectives of this study was to assess health-related quality of life (HRQoL) in Egyptian hemophilic children and adolescents using an Arabic version of the Haemo-QoL questionnaire. Sixty patients with severe hemophilia A were recruited from 2 hemophilia treating centers in Egypt. Assessment of quality of life was done using the Haemo-QoL questionnaire. The scores of HRQoL were found to be for all dimensions widely above 50. It was highly significant in the 3 dimensions (physical health-family-treatment) in different age groups, but it was impaired in the dimension of {"}physical health{"} for 2 groups, and in the dimension of {"}family{"} for the oldest group, whereas the youngest group had highly impaired scores concerning the {"}treatment.{"} The HRQoL in this study was not affected by the presence of factor VIII (FVIII) inhibitors. The QoL in hemophilic patients in Egypt needs strenuous efforts from hemophilia care-integrated teams of pediatric hematologists and psychiatrists in order to properly assess and improve QoL.",
keywords = "Adolescent, Child, Child, Preschool, Delivery of Health Care, Egypt, Feasibility Studies, Female, Health Status, Hemophilia A, Humans, Male, Quality of Life, Surveys and Questionnaires, Journal Article",
author = "Tantawy, {Azza A G} and Mackensen, {Sylvia Von} and El-Laboudy, {Mohammed A M} and Labib, {Jonair H} and Faten Moftah and El-Telbany, {Manal A S} and Mansour, {Wesam A A}",
year = "2011",
month = apr,
doi = "10.3109/08880018.2010.535116",
language = "English",
volume = "28",
pages = "222--9",
journal = "PEDIATR HEMAT ONCOL",
issn = "0888-0018",
publisher = "informa healthcare",
number = "3",

}

RIS

TY - JOUR

T1 - Health-related quality of life in Egyptian children and adolescents with hemophilia A

AU - Tantawy, Azza A G

AU - Mackensen, Sylvia Von

AU - El-Laboudy, Mohammed A M

AU - Labib, Jonair H

AU - Moftah, Faten

AU - El-Telbany, Manal A S

AU - Mansour, Wesam A A

PY - 2011/4

Y1 - 2011/4

N2 - Quality of life (QoL) in hemophilia is an important area in hemophilia outcome assessment. The Haemo-QoL instrument is a set of questionnaires to measure QoL in those children. The objectives of this study was to assess health-related quality of life (HRQoL) in Egyptian hemophilic children and adolescents using an Arabic version of the Haemo-QoL questionnaire. Sixty patients with severe hemophilia A were recruited from 2 hemophilia treating centers in Egypt. Assessment of quality of life was done using the Haemo-QoL questionnaire. The scores of HRQoL were found to be for all dimensions widely above 50. It was highly significant in the 3 dimensions (physical health-family-treatment) in different age groups, but it was impaired in the dimension of "physical health" for 2 groups, and in the dimension of "family" for the oldest group, whereas the youngest group had highly impaired scores concerning the "treatment." The HRQoL in this study was not affected by the presence of factor VIII (FVIII) inhibitors. The QoL in hemophilic patients in Egypt needs strenuous efforts from hemophilia care-integrated teams of pediatric hematologists and psychiatrists in order to properly assess and improve QoL.

AB - Quality of life (QoL) in hemophilia is an important area in hemophilia outcome assessment. The Haemo-QoL instrument is a set of questionnaires to measure QoL in those children. The objectives of this study was to assess health-related quality of life (HRQoL) in Egyptian hemophilic children and adolescents using an Arabic version of the Haemo-QoL questionnaire. Sixty patients with severe hemophilia A were recruited from 2 hemophilia treating centers in Egypt. Assessment of quality of life was done using the Haemo-QoL questionnaire. The scores of HRQoL were found to be for all dimensions widely above 50. It was highly significant in the 3 dimensions (physical health-family-treatment) in different age groups, but it was impaired in the dimension of "physical health" for 2 groups, and in the dimension of "family" for the oldest group, whereas the youngest group had highly impaired scores concerning the "treatment." The HRQoL in this study was not affected by the presence of factor VIII (FVIII) inhibitors. The QoL in hemophilic patients in Egypt needs strenuous efforts from hemophilia care-integrated teams of pediatric hematologists and psychiatrists in order to properly assess and improve QoL.

KW - Adolescent

KW - Child

KW - Child, Preschool

KW - Delivery of Health Care

KW - Egypt

KW - Feasibility Studies

KW - Female

KW - Health Status

KW - Hemophilia A

KW - Humans

KW - Male

KW - Quality of Life

KW - Surveys and Questionnaires

KW - Journal Article

U2 - 10.3109/08880018.2010.535116

DO - 10.3109/08880018.2010.535116

M3 - SCORING: Journal article

C2 - 21271776

VL - 28

SP - 222

EP - 229

JO - PEDIATR HEMAT ONCOL

JF - PEDIATR HEMAT ONCOL

SN - 0888-0018

IS - 3

ER -