German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors
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German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors. / von Steinbüchel, Nicole; Real, Ruben G L; Sasse, Nadine; Wilson, Lindsay; Otto, Christiane; Mullins, Ryan; Behr, Robert; Deinsberger, Wolfgang; Martinez-Olivera, Ramon; Puschendorf, Wolfgang; Petereit, Werner; Rohde, Veit; Schmidt, Holger; Sehmisch, Stephan; Stürmer, Klaus Michael; von Wild, Klaus; Gibbons, Henning.
In: PLOS ONE, Vol. 12, No. 5, 24.05.2017, p. e0176668.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - German validation of Quality of Life after Brain Injury (QOLIBRI) assessment and associated factors
AU - von Steinbüchel, Nicole
AU - Real, Ruben G L
AU - Sasse, Nadine
AU - Wilson, Lindsay
AU - Otto, Christiane
AU - Mullins, Ryan
AU - Behr, Robert
AU - Deinsberger, Wolfgang
AU - Martinez-Olivera, Ramon
AU - Puschendorf, Wolfgang
AU - Petereit, Werner
AU - Rohde, Veit
AU - Schmidt, Holger
AU - Sehmisch, Stephan
AU - Stürmer, Klaus Michael
AU - von Wild, Klaus
AU - Gibbons, Henning
PY - 2017/5/24
Y1 - 2017/5/24
N2 - The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are still poorly understood, and no TBI-specific instrument has hitherto been available. This paper describes in detail the psychometrics and validity of the German version of an internationally developed, self-rated HRQoL tool after TBI-the QOLIBRI (Quality of Life after Brain Injury). Factors associated with HRQoL, such as the impact of cognitive status and awareness, are specifically reported. One-hundred seventy-two participants after TBI were recruited from the records of acute clinics, most of whom having a Glasgow Coma Scale (GCS) 24-hour worst score and a Glasgow Outcome Scale (GOSE) score. Participants had severe (24%), moderate (11%) and mild (56%) injuries as assessed on the GCS, 3 months to 15 years post-injury. The QOLIBRI uses 37 items to measure "satisfaction" in the areas of "Cognition", "Self", "Daily Life and Autonomy", and "Social Relationships", and "feeling bothered" by "Emotions"and "Physical Problems". The scales meet standard psychometric criteria (α = .84 to .96; intra-class correlation-ICC = .72 to .91). ICCs (0.68 to 0.90) and αs (.83 to .96) were also good in a subgroup of participants with lower cognitive performance. The six-subscale structure of the international sample was reproduced for the German version using confirmatory factor analyses and Rasch analysis. Scale validity was supported by systematic relationships observed between the QOLIBRI and the GOSE, Patient Competency Rating Scale for Neurorehabilitation (PCRS-NR), Hospital Anxiety and Depression Scale (HADS), Profile of Mood States (POMS), Short Form 36 (SF-36), and Satisfaction with Life Scale (SWLS). The German QOLIBRI contains novel information not provided by other currently available measures and has good psychometric criteria. It is potentially useful for clinicians and researchers, in post-acute and rehabilitation studies, on a group and individual level.
AB - The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are still poorly understood, and no TBI-specific instrument has hitherto been available. This paper describes in detail the psychometrics and validity of the German version of an internationally developed, self-rated HRQoL tool after TBI-the QOLIBRI (Quality of Life after Brain Injury). Factors associated with HRQoL, such as the impact of cognitive status and awareness, are specifically reported. One-hundred seventy-two participants after TBI were recruited from the records of acute clinics, most of whom having a Glasgow Coma Scale (GCS) 24-hour worst score and a Glasgow Outcome Scale (GOSE) score. Participants had severe (24%), moderate (11%) and mild (56%) injuries as assessed on the GCS, 3 months to 15 years post-injury. The QOLIBRI uses 37 items to measure "satisfaction" in the areas of "Cognition", "Self", "Daily Life and Autonomy", and "Social Relationships", and "feeling bothered" by "Emotions"and "Physical Problems". The scales meet standard psychometric criteria (α = .84 to .96; intra-class correlation-ICC = .72 to .91). ICCs (0.68 to 0.90) and αs (.83 to .96) were also good in a subgroup of participants with lower cognitive performance. The six-subscale structure of the international sample was reproduced for the German version using confirmatory factor analyses and Rasch analysis. Scale validity was supported by systematic relationships observed between the QOLIBRI and the GOSE, Patient Competency Rating Scale for Neurorehabilitation (PCRS-NR), Hospital Anxiety and Depression Scale (HADS), Profile of Mood States (POMS), Short Form 36 (SF-36), and Satisfaction with Life Scale (SWLS). The German QOLIBRI contains novel information not provided by other currently available measures and has good psychometric criteria. It is potentially useful for clinicians and researchers, in post-acute and rehabilitation studies, on a group and individual level.
KW - Journal Article
U2 - 10.1371/journal.pone.0176668
DO - 10.1371/journal.pone.0176668
M3 - SCORING: Journal article
C2 - 28542226
VL - 12
SP - e0176668
JO - PLOS ONE
JF - PLOS ONE
SN - 1932-6203
IS - 5
ER -