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Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States

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Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States. / Bullinger, Monika; Sommer, Rachel; Pleil, Andreas; Mauras, Nelly; Ross, Judith; Newfield, Ron; Silverman, Lawrence; Rohenkohl, Anja; Fox, Janet; Quitmann, Julia.

In: HEALTH QUAL LIFE OUT, Vol. 13, 02.04.2015, p. 43.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Bullinger, M, Sommer, R, Pleil, A, Mauras, N, Ross, J, Newfield, R, Silverman, L, Rohenkohl, A, Fox, J & Quitmann, J 2015, 'Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States', HEALTH QUAL LIFE OUT, vol. 13, pp. 43. https://doi.org/10.1186/s12955-015-0236-2

APA

Bullinger, M., Sommer, R., Pleil, A., Mauras, N., Ross, J., Newfield, R., Silverman, L., Rohenkohl, A., Fox, J., & Quitmann, J. (2015). Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States. HEALTH QUAL LIFE OUT, 13, 43. https://doi.org/10.1186/s12955-015-0236-2

Vancouver

Bullinger M, Sommer R, Pleil A, Mauras N, Ross J, Newfield R et al. Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States. HEALTH QUAL LIFE OUT. 2015 Apr 2;13:43. https://doi.org/10.1186/s12955-015-0236-2

Bibtex

@article{fb03048bc05b4d8080a912b6db190ad3,
title = "Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States",
abstract = "BACKGROUND: The European Quality of Life in Short Stature Youth (QoLISSY) is a novel condition-specific instrument developed to assess health related quality of life (HrQoL) in children/adolescents with short stature from patient and parent perspectives. Study objective was to linguistically validate and psychometrically test the American-English version of the QoLISSY instrument.METHODS: Upon conversion of the British-English version to American-English, content validity and acceptance of the questionnaire were examined through focus group discussions with cognitive debriefing in 28 children/adolescents with growth hormone deficiency (GHD) or idiopathic short stature (ISS) and their parents. In the subsequent field test with 51 families and a re-test with 25 families the psychometric performance of the American-English version was examined and compared with the original European dataset.RESULTS: Pilot test results supported the suitability of the American-English version. Good internal consistency with Cronbach's Alpha ranging from 0.84 to 0.97 and high test-re-test reliabilities were observed in the field test. The QoLISSY was able to detect significant differences according to the degree of short stature with higher HrQoL for taller children. Correlations with a generic HrQoL tool support the QoLISSY's concurrent validity. The scale's operating characteristics were comparable to the original European data.CONCLUSION: Results support that the QoLISSY American-English version is a psychometrically sound short stature-specific instrument to assess the patient- and parent- perceived impact of short stature. The QoLISSY instrument is fit for use in clinical studies and health services research in the American-English speaking population.",
keywords = "Adolescent, Adult, Body Height, Child, Dwarfism, Pituitary, Europe, Female, Humans, Male, Middle Aged, Parents, Psychometrics, Quality of Life, Reproducibility of Results, Surveys and Questionnaires, United States",
author = "Monika Bullinger and Rachel Sommer and Andreas Pleil and Nelly Mauras and Judith Ross and Ron Newfield and Lawrence Silverman and Anja Rohenkohl and Janet Fox and Julia Quitmann",
year = "2015",
month = apr,
day = "2",
doi = "10.1186/s12955-015-0236-2",
language = "English",
volume = "13",
pages = "43",
journal = "HEALTH QUAL LIFE OUT",
issn = "1477-7525",
publisher = "BioMed Central Ltd.",

}

RIS

TY - JOUR

T1 - Evaluation of the American-English Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the United States

AU - Bullinger, Monika

AU - Sommer, Rachel

AU - Pleil, Andreas

AU - Mauras, Nelly

AU - Ross, Judith

AU - Newfield, Ron

AU - Silverman, Lawrence

AU - Rohenkohl, Anja

AU - Fox, Janet

AU - Quitmann, Julia

PY - 2015/4/2

Y1 - 2015/4/2

N2 - BACKGROUND: The European Quality of Life in Short Stature Youth (QoLISSY) is a novel condition-specific instrument developed to assess health related quality of life (HrQoL) in children/adolescents with short stature from patient and parent perspectives. Study objective was to linguistically validate and psychometrically test the American-English version of the QoLISSY instrument.METHODS: Upon conversion of the British-English version to American-English, content validity and acceptance of the questionnaire were examined through focus group discussions with cognitive debriefing in 28 children/adolescents with growth hormone deficiency (GHD) or idiopathic short stature (ISS) and their parents. In the subsequent field test with 51 families and a re-test with 25 families the psychometric performance of the American-English version was examined and compared with the original European dataset.RESULTS: Pilot test results supported the suitability of the American-English version. Good internal consistency with Cronbach's Alpha ranging from 0.84 to 0.97 and high test-re-test reliabilities were observed in the field test. The QoLISSY was able to detect significant differences according to the degree of short stature with higher HrQoL for taller children. Correlations with a generic HrQoL tool support the QoLISSY's concurrent validity. The scale's operating characteristics were comparable to the original European data.CONCLUSION: Results support that the QoLISSY American-English version is a psychometrically sound short stature-specific instrument to assess the patient- and parent- perceived impact of short stature. The QoLISSY instrument is fit for use in clinical studies and health services research in the American-English speaking population.

AB - BACKGROUND: The European Quality of Life in Short Stature Youth (QoLISSY) is a novel condition-specific instrument developed to assess health related quality of life (HrQoL) in children/adolescents with short stature from patient and parent perspectives. Study objective was to linguistically validate and psychometrically test the American-English version of the QoLISSY instrument.METHODS: Upon conversion of the British-English version to American-English, content validity and acceptance of the questionnaire were examined through focus group discussions with cognitive debriefing in 28 children/adolescents with growth hormone deficiency (GHD) or idiopathic short stature (ISS) and their parents. In the subsequent field test with 51 families and a re-test with 25 families the psychometric performance of the American-English version was examined and compared with the original European dataset.RESULTS: Pilot test results supported the suitability of the American-English version. Good internal consistency with Cronbach's Alpha ranging from 0.84 to 0.97 and high test-re-test reliabilities were observed in the field test. The QoLISSY was able to detect significant differences according to the degree of short stature with higher HrQoL for taller children. Correlations with a generic HrQoL tool support the QoLISSY's concurrent validity. The scale's operating characteristics were comparable to the original European data.CONCLUSION: Results support that the QoLISSY American-English version is a psychometrically sound short stature-specific instrument to assess the patient- and parent- perceived impact of short stature. The QoLISSY instrument is fit for use in clinical studies and health services research in the American-English speaking population.

KW - Adolescent

KW - Adult

KW - Body Height

KW - Child

KW - Dwarfism, Pituitary

KW - Europe

KW - Female

KW - Humans

KW - Male

KW - Middle Aged

KW - Parents

KW - Psychometrics

KW - Quality of Life

KW - Reproducibility of Results

KW - Surveys and Questionnaires

KW - United States

U2 - 10.1186/s12955-015-0236-2

DO - 10.1186/s12955-015-0236-2

M3 - SCORING: Journal article

C2 - 25889818

VL - 13

SP - 43

JO - HEALTH QUAL LIFE OUT

JF - HEALTH QUAL LIFE OUT

SN - 1477-7525

ER -