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Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs

Standard

Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs. / Rohenkohl, A C; Sommer, R; Kahrs, S; Bullinger, M; Klingebiel, K-H; Quitmann, J H.

In: KLIN PADIATR, Vol. 228, No. 1, 2016, p. 17-23.

Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

Harvard

Rohenkohl, AC, Sommer, R, Kahrs, S, Bullinger, M, Klingebiel, K-H & Quitmann, JH 2016, 'Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs', KLIN PADIATR, vol. 228, no. 1, pp. 17-23. https://doi.org/10.1055/s-0035-1564106

APA

Rohenkohl, A. C., Sommer, R., Kahrs, S., Bullinger, M., Klingebiel, K-H., & Quitmann, J. H. (2016). Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs. KLIN PADIATR, 228(1), 17-23. https://doi.org/10.1055/s-0035-1564106

Vancouver

Rohenkohl AC, Sommer R, Kahrs S, Bullinger M, Klingebiel K-H, Quitmann JH. Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs. KLIN PADIATR. 2016;228(1):17-23. https://doi.org/10.1055/s-0035-1564106

Bibtex

@article{2175427e8d6141e3ad277e19485346ff,
title = "Evaluation eines selbsthilfegest{\"u}tzten psychosozialen Interventionsangebotes f{\"u}r Kinder und Jugendliche mit disproportionalem Kleinwuchs",
abstract = "BACKGROUND: Disproportionate short stature may impair the quality of life (QoL) of patients and their families. This study aimed to evaluate a self-help supported counseling concept to increase the QoL of the participants.METHODS: QoL data from 58 children/adolescents (8-17 years) with a diagnosis of achondroplasia was collected at 2 measurement points during one year using the the QoLISSY questionnaire (self-/parental report). Differences before and after participation vs. non-participation in the intervention were evaluated using a linear mixed model.RESULTS: The longitudinal results show a greater increase of QoL in the active intervention group compared to a passive control group (p=0,005). The increase in the self-reported QoL of affected patients was significantly higher than for the parent-report (p=0,048).CONCLUSIONS: The study shows that patients with achondroplasia benefit from a self-help supported counseling concept. However, this should be tested in a randomized trial.",
author = "Rohenkohl, {A C} and R Sommer and S Kahrs and M Bullinger and K-H Klingebiel and Quitmann, {J H}",
note = "{\textcopyright} Georg Thieme Verlag KG Stuttgart · New York.",
year = "2016",
doi = "10.1055/s-0035-1564106",
language = "Deutsch",
volume = "228",
pages = "17--23",
journal = "KLIN PADIATR",
issn = "0300-8630",
publisher = "Georg Thieme Verlag KG",
number = "1",

}

RIS

TY - JOUR

T1 - Evaluation eines selbsthilfegestützten psychosozialen Interventionsangebotes für Kinder und Jugendliche mit disproportionalem Kleinwuchs

AU - Rohenkohl, A C

AU - Sommer, R

AU - Kahrs, S

AU - Bullinger, M

AU - Klingebiel, K-H

AU - Quitmann, J H

N1 - © Georg Thieme Verlag KG Stuttgart · New York.

PY - 2016

Y1 - 2016

N2 - BACKGROUND: Disproportionate short stature may impair the quality of life (QoL) of patients and their families. This study aimed to evaluate a self-help supported counseling concept to increase the QoL of the participants.METHODS: QoL data from 58 children/adolescents (8-17 years) with a diagnosis of achondroplasia was collected at 2 measurement points during one year using the the QoLISSY questionnaire (self-/parental report). Differences before and after participation vs. non-participation in the intervention were evaluated using a linear mixed model.RESULTS: The longitudinal results show a greater increase of QoL in the active intervention group compared to a passive control group (p=0,005). The increase in the self-reported QoL of affected patients was significantly higher than for the parent-report (p=0,048).CONCLUSIONS: The study shows that patients with achondroplasia benefit from a self-help supported counseling concept. However, this should be tested in a randomized trial.

AB - BACKGROUND: Disproportionate short stature may impair the quality of life (QoL) of patients and their families. This study aimed to evaluate a self-help supported counseling concept to increase the QoL of the participants.METHODS: QoL data from 58 children/adolescents (8-17 years) with a diagnosis of achondroplasia was collected at 2 measurement points during one year using the the QoLISSY questionnaire (self-/parental report). Differences before and after participation vs. non-participation in the intervention were evaluated using a linear mixed model.RESULTS: The longitudinal results show a greater increase of QoL in the active intervention group compared to a passive control group (p=0,005). The increase in the self-reported QoL of affected patients was significantly higher than for the parent-report (p=0,048).CONCLUSIONS: The study shows that patients with achondroplasia benefit from a self-help supported counseling concept. However, this should be tested in a randomized trial.

U2 - 10.1055/s-0035-1564106

DO - 10.1055/s-0035-1564106

M3 - SCORING: Zeitschriftenaufsatz

C2 - 26466200

VL - 228

SP - 17

EP - 23

JO - KLIN PADIATR

JF - KLIN PADIATR

SN - 0300-8630

IS - 1

ER -