Documenting Patient Data in Psoriasis Clinical Practice-Patient Focus Groups Supporting Psoriasis Experts' Decision-making
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Abstract
BACKGROUND AND OBJECTIVES: This article presents patients' attitudes about documenting patient data and outcome measures in psoriasis clinical practice to support a Delphi approach of psoriasis experts to develop a standard data set.
PATIENTS AND METHODS: We conducted three focus groups with 14 patients in a German outpatient unit for psoriasis. The focus was to explore reasons for and against the documentation of single variables concerning personal, anamnesis, clinical, patient-reported outcomes, and other data.
RESULTS: The patients mainly discussed if a variable has an impact on the disease or treatment decision, or if there might be a practical value from experiences with treatments when documented. In addition, in their point of view, patient-reported outcome data are important to document as it enables physicians to learn about a patient's subjective burden of disease. Patient education and the involvement of other physicians in the treatment process also emerged as relevant aspects.
CONCLUSION: The results help to understand patients' preferences on documenting patient data and their idea of an exhaustive doctor-patient consultation to improve doctor-patient communication, disease monitoring, and quality of care.
Bibliographical data
Translated title of the contribution | Dokumentation von Patientendaten in der klinischen Praxis bei Psoriasis-Fokusgruppen mit Patienten zur Unterstützung bei der Entscheidungsfindung von Psoriasis-Experten |
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Original language | English |
ISSN | 1177-889X |
DOIs | |
Publication status | Published - 07.03.2021 |