Development of a Conceptual Framework for a Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Qualitative Concept Elicitation Study
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Development of a Conceptual Framework for a Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Qualitative Concept Elicitation Study. / Pattinson, Rachael; Hewitt, Rachael M; Trialonis-Suthakharan, Nirohshah; Chachos, Evangelos; Courtier, Nick; Austin, Jennifer; Janus, Christine; Augustin, Matthias; Bundy, Chris.
In: ACTA DERM-VENEREOL, Vol. 102, adv00823, 29.11.2022.Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review
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TY - JOUR
T1 - Development of a Conceptual Framework for a Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Qualitative Concept Elicitation Study
AU - Pattinson, Rachael
AU - Hewitt, Rachael M
AU - Trialonis-Suthakharan, Nirohshah
AU - Chachos, Evangelos
AU - Courtier, Nick
AU - Austin, Jennifer
AU - Janus, Christine
AU - Augustin, Matthias
AU - Bundy, Chris
PY - 2022/11/29
Y1 - 2022/11/29
N2 - Existing patient-reported outcome measures cannot comprehensively capture the full impact of living with a dermatological condition. The aim of this study was to develop a conceptual framework on which to build a new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure. Adults (≥ 18 years of age) living with a dermatological condition, worldwide and/or representatives from a patient organization recruited via a global patient organization network, were invited to an individual or group interview. Data were analyzed thematically. Sixty-five people from 29 countries, representing 29 dermatological conditions, participated. Key themes were: (i) impacts at the individual, organizational and societal levels; (ii) impacts were point-in-time and cumulative; and (iii) impact is a multifaceted construct, with two subthemes (iiia) common impacts and (iiib) psychological and social impacts are most significant. The conceptual framework shows that impact is a multifaceted concept presenting across physical, psychological, social, financial, daily functioning and healthcare, and provides the basis for co-constructing the PRIDD with patients.
AB - Existing patient-reported outcome measures cannot comprehensively capture the full impact of living with a dermatological condition. The aim of this study was to develop a conceptual framework on which to build a new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure. Adults (≥ 18 years of age) living with a dermatological condition, worldwide and/or representatives from a patient organization recruited via a global patient organization network, were invited to an individual or group interview. Data were analyzed thematically. Sixty-five people from 29 countries, representing 29 dermatological conditions, participated. Key themes were: (i) impacts at the individual, organizational and societal levels; (ii) impacts were point-in-time and cumulative; and (iii) impact is a multifaceted construct, with two subthemes (iiia) common impacts and (iiib) psychological and social impacts are most significant. The conceptual framework shows that impact is a multifaceted concept presenting across physical, psychological, social, financial, daily functioning and healthcare, and provides the basis for co-constructing the PRIDD with patients.
KW - Adult
KW - Humans
KW - Patient Reported Outcome Measures
KW - Qualitative Research
KW - Patients
KW - Quality of Life/psychology
U2 - 10.2340/actadv.v102.2401
DO - 10.2340/actadv.v102.2401
M3 - SCORING: Journal article
C2 - 36065743
VL - 102
JO - ACTA DERM-VENEREOL
JF - ACTA DERM-VENEREOL
SN - 0001-5555
M1 - adv00823
ER -
