Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument

TY - JOUR

T1 - Assessment of Health-Related Quality of Life after TBI: Comparison of a Disease-Specific (QOLIBRI) with a Generic (SF-36) Instrument

AU - von Steinbuechel, Nicole

AU - Covic, Amra

AU - Polinder, Suzanne

AU - Kohlmann, Thomas

AU - Cepulyte, Ugne

AU - Poinstingl, Herbert

AU - Backhaus, Joy

AU - Bakx, Wilbert

AU - Bullinger, Monika

AU - Christensen, Anne-Lise

AU - Formisano, Rita

AU - Gibbons, Henning

AU - Höfer, Stefan

AU - Koskinen, Sanna

AU - Maas, Andrew

AU - Neugebauer, Edmund

AU - Powell, Jane

AU - Sarajuuri, Jaana

AU - Sasse, Nadine

AU - Schmidt, Silke

AU - Mühlan, Holger

AU - von Wild, Klaus

AU - Zitnay, George

AU - Truelle, Jean-Luc

PY - 2016

Y1 - 2016

N2 - Psychosocial, emotional, and physical problems can emerge after traumatic brain injury (TBI), potentially impacting health-related quality of life (HRQoL). Until now, however, neither the discriminatory power of disease-specific (QOLIBRI) and generic (SF-36) HRQoL nor their correlates have been compared in detail. These aspects as well as some psychometric item characteristics were studied in a sample of 795 TBI survivors. The Shannon H (') index absolute informativity, as an indicator of an instrument's power to differentiate between individuals within a specific group or health state, was investigated. Psychometric performance of the two instruments was predominantly good, generally higher, and more homogenous for the QOLIBRI than for the SF-36 subscales. Notably, the SF-36 "Role Physical," "Role Emotional," and "Social Functioning" subscales showed less satisfactory discriminatory power than all other dimensions or the sum scores of both instruments. The absolute informativity of disease-specific as well as generic HRQoL instruments concerning the different groups defined by different correlates differed significantly. When the focus is on how a certain subscale or sum score differentiates between individuals in one specific dimension/health state, the QOLIBRI can be recommended as the preferable instrument.

AB - Psychosocial, emotional, and physical problems can emerge after traumatic brain injury (TBI), potentially impacting health-related quality of life (HRQoL). Until now, however, neither the discriminatory power of disease-specific (QOLIBRI) and generic (SF-36) HRQoL nor their correlates have been compared in detail. These aspects as well as some psychometric item characteristics were studied in a sample of 795 TBI survivors. The Shannon H (') index absolute informativity, as an indicator of an instrument's power to differentiate between individuals within a specific group or health state, was investigated. Psychometric performance of the two instruments was predominantly good, generally higher, and more homogenous for the QOLIBRI than for the SF-36 subscales. Notably, the SF-36 "Role Physical," "Role Emotional," and "Social Functioning" subscales showed less satisfactory discriminatory power than all other dimensions or the sum scores of both instruments. The absolute informativity of disease-specific as well as generic HRQoL instruments concerning the different groups defined by different correlates differed significantly. When the focus is on how a certain subscale or sum score differentiates between individuals in one specific dimension/health state, the QOLIBRI can be recommended as the preferable instrument.

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

U2 - 10.1155/2016/7928014

DO - 10.1155/2016/7928014

M3 - SCORING: Journal article

C2 - 27022207

VL - 2016

SP - 7928014

JO - BEHAV NEUROL

JF - BEHAV NEUROL

SN - 0953-4180

ER -