Research ExplorerScientific StaffJulia Hannah Quitmann Publications

PD Dr. ID: 69541

Julia Hannah Quitmann

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Publications

  1. 2024

  2. DySMA - an Instrument to Monitor Swallowing Function in Children with Spinal Muscular Atrophy ages 0 to 24 Months: Development, Consensus, and Pilot Testing

    Zang, J., Witt, S., Johannsen, J., Weiss, D., Denecke, J., Dumitrascu, C., Nießen, A., Quitmann, J. H., Pflug, C. & Flügel, T., 2024, In: J NEUROMUSCULAR DIS. 11, 2, p. 473-483 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  3. 2023

  4. Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): A prospective, controlled trial with a two-phase cohort design

    Hebestreit, H., Lapstich, A-M., Brandstetter, L., Krauth, C., Deckert, J., Haas, K., Pfister, L., Witt, S., Schippers, C., Dieris-Hirche, J., Maisch, T., Tüscher, O., Bârlescu, L., Berger, A., Berneburg, M., Britz, V., Deibele, A., Graeßner, H., Gündel, H., Heuft, G., Lücke, T., Mundlos, C., Quitmann, J., Rutsch, F., Schubert, K., Schulz, J. B., Schweiger, S., Zeidler, C., Zeltner, L., de Zwaan, M. & ZSE-DUO working group, 11.2023, In: ECLINICALMEDICINE. 65, 102260.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  5. Health-Related Quality of Life, Stress, Caregiving Burden and Special Needs of Parents Caring for a Short-Statured Child—Review and Recommendations for Future Research

    Lackner, L., Quitmann, J. H., Kristensen, K. & Witt, S., 11.08.2023, In: INT J ENV RES PUB HE. 20, 16, 6558.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  6. Living with a rare disease - experiences and needs in pediatric patients and their parents

    Witt, S., Schuett, K., Wiegand-Grefe, S., Boettcher, J. & Quitmann, J., 11.08.2023, In: ORPHANET J RARE DIS. 18, 1, p. 242

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  7. Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung

    Witt, S., Kristensen, K., Wiegand-Grefe, S. & Quitmann, J., 05.2023, In: INNERE MED. 64, 5, p. 494-499 6 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  8. Caregiving burden and special needs of parents in the care of their short-statured children - a qualitative approach

    Lackner, L., Quitmann, J. H. & Witt, S., 17.03.2023, In: FRONT ENDOCRINOL. 14, p. 1093983

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  9. Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

    Rautmann, L., Witt, S., Theiding, C., Odenwald, B., Nennstiel-Ratzel, U., Dörr, H-G. & Quitmann, J. H., 03.03.2023, In: INT J ENV RES PUB HE. 20, 5, 4493.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  10. Health-related quality of life and patient-reported outcome measurements in patients with cystinosis

    Witt, S., Kristensen, K., Hohenfellner, K. & Quitmann, J. H., 03.2023, In: JIMD reports. 64, 2, p. 199-211 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  11. Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer

    Höglund, A. T., Witt, S., Quitmann, J. H. & Frygner-Holm, S., 01.02.2023, In: J NURS RES. 31, 1, p. e253

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  12. Lebensqualität und erlebte Belastungen von Patient*innen mit Verdacht auf eine Seltene Erkrankung – erste Erkenntnisse aus der ZSE-DUO Studie

    Witt, S., Kristensen, K., Blömeke, J., Hebestreit, H., Wocker, M., Pfister, L., Bullinger, M., Tüscher, O., Deckert, J., Graessner, H., Lapstich, A-M., Zwaan, M. D., Mundlos, C. & Quitmann, J. H., 01.2023, In: PSYCHOTHER PSYCH MED. 73, 1, p. 9-15 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  13. Bewegungsorientierte Förderung von Lebensqualität in der Kindertagesstätte

    Witt, S., Fiedler, M., Madsen, L. & Quitmann, J. H., 2023, In: Frühe Kindheit. 2023, 04, p. 36-43

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  14. Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish-German Study

    Witt, S., Quitmann, J., Höglund, A. T., Russ, S., Kaman, A., Escherich, G. & Frygner-Holm, S., 2023, In: J PEDIAT HEMAT ONC N. 40, 3, p. 158-169 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  15. Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14 countries

    International EA-QOL Group, 2023, In: FRONT PEDIATR. 11, p. 1253892

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  16. Herausforderungen beim Übergang in die Elternrolle. Begleitung von werdenden Eltern mit dem Elternkurs "Sicherer Hafen"

    Witt, S., Brandi, D., Kristensen, K., Kollmeyer, M. & Quitmann, J. H., 2023, In: Frühe Kindheit. p. 66-71

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  17. 2022

  18. The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity

    Li, S., Dellenmark-Blom, M., Zhao, Y., Gu, Y., Li, S., Yang, S., Quitmann, J. H. & Huang, J., 13.11.2022, In: INT J ENV RES PUB HE. 19, 22, 14923.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  19. Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia

    Rozensztrauch, A., Śmigiel, R., Patkowski, D., Gerus, S., Kłaniewska, M., Quitmann, J. H. & Dellenmark-Blom, M., 30.06.2022, In: INT J ENV RES PUB HE. 19, 13, 8047.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  20. Factors of family impact in a Swedish-German cohort of children born with esophageal atresia

    Dellenmark-Blom, M., Abrahamsson, K., Dingemann, J., Witt, S., Dingemann, C., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Chaplin, J. E. & Quitmann, J. H., 21.05.2022, In: ORPHANET J RARE DIS. 17, 1, 207.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  21. Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

    Hebestreit, H., Zeidler, C., Schippers, C., de Zwaan, M., Deckert, J., Heuschmann, P., Krauth, C., Bullinger, M., Berger, A., Berneburg, M., Brandstetter, L., Deibele, A., Dieris-Hirche, J., Graessner, H., Gündel, H., Herpertz, S., Heuft, G., Lapstich, A-M., Lücke, T., Maisch, T., Mundlos, C., Petermann-Meyer, A., Müller, S., Ott, S., Pfister, L., Quitmann, J., Romanos, M., Rutsch, F., Schaubert, K., Schubert, K., Schulz, J. B., Schweiger, S., Tüscher, O., Ungethüm, K., Wagner, T. O. F., Haas, K. & ZSE-DUO working group, 14.02.2022, In: ORPHANET J RARE DIS. 17, 1, 47.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  22. 2021

  23. Need for transition medicine in pediatric surgery - health related quality of life in adolescents and young adults with congenital malformations

    Uecker, M., Ure, B., Quitmann, J. H. & Dingemann, J., 01.12.2021, In: INNOV SURG SCI. 6, 4, p. 151-160 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  24. Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany

    Witt, S., Kristensen, K., Wiegand-Grefe, S., Boettcher, J., Bloemeke, J., Wingartz, C., Bullinger, M., Quitmann, J. & CARE-FAM-NET Studiengruppe, 27.11.2021, In: ORPHANET J RARE DIS. 16, 1, 497.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  25. Patient-Reported Outcomes-The Value of Observational Assessments

    Witt, S., Bloemeke, J., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 10.2021, In: EUR J PEDIATR SURG. 31, 5, p. 454-455 2 p.

    Research output: SCORING: Contribution to journal › Other (editorial matter etc.) › Research

  26. Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia

    Soyer, T., Arslan, U. E., Ulukaya Durakbaşa, Ç., Aydöner, S., Boybeyi-Türer, Ö., Quitmann, J. H., Dingemann, J. & Dellenmark-Blom, M., 08.2021, In: TURK J GASTROENTEROL. 32, 8, p. 640-650 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  27. Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study

    Witt, S., Dellenmark-Blom, M., Kuckuck, S., Dingemann, J., Abrahamsson, K., Dingemann, C., Chaplin, J. E., Ure, B., Bullinger, M., Gatzinsky, V., Jönsson, L. & Quitmann, J. H., 06.03.2021, In: ORPHANET J RARE DIS. 16, 1, p. 120

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  28. Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism - A Scoping Review

    Kristensen, K., Quitmann, J. & Witt, S., 2021, In: FRONT ENDOCRINOL. 12, 784932.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  29. Lebensqualität und Geburtserleben von Müttern und ihren Partnern im Rahmen des Elternkurses »Sicherer Hafen Hamburg«

    Witt, S., Kristensen, K., Brandi, D., Kollmeyer, M. & Quitmann, J. H., 2021, In: Gynäkologische Praxis. 48, 2, p. 242-252

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  30. Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom

    Witt, S., Heiden, J. & Quitmann, J. H., 2021, In: Gynäkologische Praxis. 2021, 47, p. 472-484

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  31. Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia

    Witt, S., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 2021, In: FRONT PEDIATR. 9, 723410.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  32. »Sicherer Hafen« – Modellprojekt zur Steigerung der Lebensqualität und Feinfühligkeit für werdende Eltern

    Witt, S., Kollmeyer, M., Brandi, D. & Quitmann, J. H., 2021, In: Päd Praxis. 2021, 95, p. 332-343

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research

  33. Wann ist klein zu klein? Und was bedeutet das für die betroffenen Patientinnen/Patienten und ihre Angehörigen?

    Witt, S., Kristensen, K. & Quitmann, J. H., 2021, In: GLANDULA. 53, 2/21, p. 40-42

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  34. 2020

  35. Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations-A Scoping Review

    Witt, S., Blömeke, J., Bullinger, M., Dingemann, J. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 225-231 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  36. Health-Related Quality of Life and Psychosocial Morbidity in Anorectal Malformation and Hirschsprung's Disease

    Feng, X., Lacher, M., Quitmann, J., Witt, S., Witvliet, M. J. & Mayer, S., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 279-286 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  37. Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon

    Bloemeke, J., Witt, S., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 232-238 7 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  38. Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature

    Dellenmark-Blom, M., Quitmann, J. & Dingemann, C., 06.2020, In: EUR J PEDIATR SURG. 30, 3, p. 239-250 12 p.

    Research output: SCORING: Contribution to journal › SCORING: Review article › Research

  39. Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL Study

    Dellenmark-Blom, M., Quitmann, J., Dingemann, J., Witt, S., Ure, B. M., Bullinger, M., Jönsson, L., Gatzinsky, V. & Dingemann, C., 02.2020, In: EUR J PEDIATR SURG. 30, 1, p. 96-103 8 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  40. Health-Related Quality of Life in Pediatric Surgical Patients and their Caretakers

    Dingemann, J., Dellenmark-Blom, M. & Quitmann, J. H., 2020, In: EUR J PEDIATR SURG. 2020, 30, p. 223-224

    Research output: SCORING: Contribution to journal › Other (editorial matter etc.) › Research

  41. Lebensqualität und psychische Gesundheit von Kindern mit Adrenogenitalem Syndrom

    Witt, S., Heiden, J. & Quitmann, J. H., 2020, In: Päd Praxis. 93, 03, p. 385-397

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  42. „Sicherer Hafen“ – Elternkurs zur Steigerung der elterlichen Lebensqualität und Feinfühligkeit für werdende Eltern

    Witt, S., Kollmeyer, M., Brandi, D. & Quitmann, J. H., 2020, In: gyne. 2020, 06, p. 13-21

    Research output: SCORING: Contribution to journal › Newspaper articles › Transfer

  43. 2019

  44. Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in a randomized open-label comparator trial in idiopathic short stature

    Bloemeke, J., Balacano Valdez, R., Mauras, N., Mericq, V., Ross, J., Permuy, J., Quitmann, J. & Bullinger, M., 25.10.2019, In: J PEDIATR ENDOCR MET. 32, 10, p. 1089-1101 13 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  45. Eine Diagnose überbringen? Warum gerade ich?

    Witt, S. & Quitmann, J. H., 24.09.2019, In: Deutsche Hebammenzeitschrift. 71, 10, p. 30-35

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Transfer

  46. Pretend Play as an Intervention for Children With Cancer: A Feasibility Study

    Frygner-Holm, S., Russ, S., Quitmann, J., Ring, L., Zyga, O., Hansson, M., Ljungman, G. & Höglund, A. T., 22.09.2019, In: J PEDIATR ONCOL NURS. 37, 1, p. 65-75 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  47. Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study

    Witt, S., Bloemeke, J., Bullinger, M., Dingemann, J., Dellenmark-Blom, M. & Quitmann, J., 11.09.2019, In: BMC PEDIATR. 19, 1, p. 330

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  48. Cross-cultural selection and validation of instruments to assess patient-reported outcomes in children and adolescents with achondroplasia

    Bloemeke, J., Sommer, R., Witt, S., Bullinger, M., Nordon, C., Badia, F. J., González, F. L., Leiva-Gea, A., Delgado Rufino, F. D. B., Mayoral-Cleries, F., Romero-Sanchiz, P., Clamagirand Saiz, V., Nogueira-Arjona, R., Mohnike, K. & Quitmann, J., 09.2019, In: QUAL LIFE RES. 28, 9, p. 2553-2563 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  49. First-year predictors of health-related quality of life changes in short-statured children treated with human growth hormone

    Quitmann, J., Bloemeke, J., Dörr, H-G., Bullinger, M., Witt, S. & Silva, N., 09.2019, In: J ENDOCRINOL INVEST. 42, 9, p. 1067-1076 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  50. Quality of life of children with achondroplasia and their parents - a German cross-sectional study

    Witt, S., Kolb, B., Bloemeke, J., Mohnike, K., Bullinger, M. & Quitmann, J., 09.08.2019, In: ORPHANET J RARE DIS. 14, 1, p. 194

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  51. The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific approach

    Dellenmark-Blom, M., Chaplin, J. E., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Dingemann, J. & Abrahamsson, K., 01.07.2019, In: DIS ESOPHAGUS. 32, 7

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  52. Piloting and psychometric properties of a patient-reported outcome instrument for young people with achondroplasia based on the International Classification of Functioning Disability and Health: the Achondroplasia Personal Life Experience Scale (APLES)

    Bloemeke, J., Sommer, R., Witt, S., Dabs, M., Badia, F. J., Bullinger, M. & Quitmann, J., 07.2019, In: DISABIL REHABIL. 41, 15, p. 1815-1825 11 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  53. Quality of Life of Short-Statured Children Born Small for Gestational Age or Idiopathic Growth Hormone Deficiency Within 1 Year of Growth Hormone Treatment

    Quitmann, J. H., Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Akkurt, I., Dunstheimer, D., Vogel, C., Böttcher, V., Kuhnle Krahl, U., Bettendorf, M., Schönau, E., Fricke-Otto, S., Keller, A., Mohnike, K. & Dörr, H-G., 29.04.2019, In: FRONT PEDIATR. 7, p. 164

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  54. Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment

    Bloemeke, J., Silva, N., Bullinger, M., Witt, S., Dörr, H-G. & Quitmann, J., 18.03.2019, In: HEALTH QUAL LIFE OUT. 17, 1, p. 49

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  55. Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort

    Flieder, S., Dellenmark-Blom, M., Witt, S., Dingemann, C., Quitmann, J. H., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Dammeier, B. G., Bullinger, M., Ure, B. M., Abrahamsson, K. & Dingemann, J., 02.2019, In: EUR J PEDIATR SURG. 29, 1, p. 75-84 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

  56. Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study

    Witt, S., Dellenmark-Blom, M., Flieder, S., Dingemann, J., Abrahamsson, K., Jönsson, L., Gatzinsky, V., Chaplin, J. E., Ure, B., Dingemann, C., Bullinger, M., Sommer, R. & Quitmann, J. H., 01.2019, In: CHILD CARE HLTH DEV. 45, 1, p. 79-88 10 p.

    Research output: SCORING: Contribution to journal › SCORING: Journal article › Research › peer-review

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