Von Recklinghausen Gesellschaft

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Von Recklinghausen Gesellschaft : the German lay organization for patients with neurofibromatosis. / Mautner, Victor-Felix; Friedrich, Reinhard E.

in: ANTICANCER RES, Jahrgang 23, Nr. 2A, 2003, S. 1163-4.

Publikationen: SCORING: Beitrag in Fachzeitschrift/ZeitungSCORING: ZeitschriftenaufsatzForschungBegutachtung

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@article{3d91881dcefa4810b367a1c11237c687,
title = "Von Recklinghausen Gesellschaft: the German lay organization for patients with neurofibromatosis",
abstract = "SUMMARY: The German lay organization of patients with neurofibromatosis was founded in Hamburg, Germany in 1987. The organization is named after the pathologist Friedrich Daniel von Recklinghausen, the {"}Von-Recklinghausen-Gesellschaft{"} (VRG). The aim of this non-profit making organization is to popularize the knowledge about the diseases that are presently termed {"}neurofibromatosis{"} in the medical area. A second aim is to get patients and their relatives together in order to improve their social integration. Starting with a group of a few patients and medical professionals, the VRG presently has more than 1,300 members. The neurofibromatosis ambulance in Hamburg, established in 1991, supports about 700 patients per year. Altogether more than 4,000 neurofibromatosis outpatients have been investigated by an interdisciplinary approach since the establishment of the organization..",
keywords = "Genes, Tumor Suppressor, Germany, Humans, Interpersonal Relations, Neurofibromatosis 1, Self-Help Groups, Social Support",
author = "Victor-Felix Mautner and Friedrich, {Reinhard E}",
year = "2003",
language = "English",
volume = "23",
pages = "1163--4",
journal = "ANTICANCER RES",
issn = "0250-7005",
publisher = "International Institute of Anticancer Research",
number = "2A",

}

RIS

TY - JOUR

T1 - Von Recklinghausen Gesellschaft

T2 - the German lay organization for patients with neurofibromatosis

AU - Mautner, Victor-Felix

AU - Friedrich, Reinhard E

PY - 2003

Y1 - 2003

N2 - SUMMARY: The German lay organization of patients with neurofibromatosis was founded in Hamburg, Germany in 1987. The organization is named after the pathologist Friedrich Daniel von Recklinghausen, the "Von-Recklinghausen-Gesellschaft" (VRG). The aim of this non-profit making organization is to popularize the knowledge about the diseases that are presently termed "neurofibromatosis" in the medical area. A second aim is to get patients and their relatives together in order to improve their social integration. Starting with a group of a few patients and medical professionals, the VRG presently has more than 1,300 members. The neurofibromatosis ambulance in Hamburg, established in 1991, supports about 700 patients per year. Altogether more than 4,000 neurofibromatosis outpatients have been investigated by an interdisciplinary approach since the establishment of the organization..

AB - SUMMARY: The German lay organization of patients with neurofibromatosis was founded in Hamburg, Germany in 1987. The organization is named after the pathologist Friedrich Daniel von Recklinghausen, the "Von-Recklinghausen-Gesellschaft" (VRG). The aim of this non-profit making organization is to popularize the knowledge about the diseases that are presently termed "neurofibromatosis" in the medical area. A second aim is to get patients and their relatives together in order to improve their social integration. Starting with a group of a few patients and medical professionals, the VRG presently has more than 1,300 members. The neurofibromatosis ambulance in Hamburg, established in 1991, supports about 700 patients per year. Altogether more than 4,000 neurofibromatosis outpatients have been investigated by an interdisciplinary approach since the establishment of the organization..

KW - Genes, Tumor Suppressor

KW - Germany

KW - Humans

KW - Interpersonal Relations

KW - Neurofibromatosis 1

KW - Self-Help Groups

KW - Social Support

M3 - SCORING: Journal article

C2 - 12820366

VL - 23

SP - 1163

EP - 1164

JO - ANTICANCER RES

JF - ANTICANCER RES

SN - 0250-7005

IS - 2A

ER -