Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany: a qualitative study
Standard
Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany: a qualitative study : a qualitative study. / Prüfe, Jenny; Dierks, Marie-Luise; Bethe, Dirk; Oldhafer, Martina; Müther, Silvia; Thumfart, Julia; Feldkötter, Markus; Büscher, Anja; Sauerstein, Katja; Hansen, Matthias; Pohl, Martin; Drube, Jens; Thiel, Florian; Rieger, Susanne; John, Ulrike; Taylan, Christina; Dittrich, Katalin; Hollenbach, Sabine; Klaus, Günter; Fehrenbach, Henry; Kranz, Birgitta; Montoya, Carmen; Lange-Sperandio, Bärbel; Ruckenbrod, Bettina; Billing, Heiko; Staude, Hagen; Brunkhorst, Reinhard; Rusai, Krisztina; Pape, Lars; Kreuzer, Martin.
in: BMJ OPEN, Jahrgang 7, Nr. 6, 12.06.2017, S. e015593.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
Harvard
APA
Vancouver
Bibtex
}
RIS
TY - JOUR
T1 - Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany: a qualitative study
T2 - a qualitative study
AU - Prüfe, Jenny
AU - Dierks, Marie-Luise
AU - Bethe, Dirk
AU - Oldhafer, Martina
AU - Müther, Silvia
AU - Thumfart, Julia
AU - Feldkötter, Markus
AU - Büscher, Anja
AU - Sauerstein, Katja
AU - Hansen, Matthias
AU - Pohl, Martin
AU - Drube, Jens
AU - Thiel, Florian
AU - Rieger, Susanne
AU - John, Ulrike
AU - Taylan, Christina
AU - Dittrich, Katalin
AU - Hollenbach, Sabine
AU - Klaus, Günter
AU - Fehrenbach, Henry
AU - Kranz, Birgitta
AU - Montoya, Carmen
AU - Lange-Sperandio, Bärbel
AU - Ruckenbrod, Bettina
AU - Billing, Heiko
AU - Staude, Hagen
AU - Brunkhorst, Reinhard
AU - Rusai, Krisztina
AU - Pape, Lars
AU - Kreuzer, Martin
N1 - © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved. No commercial use is permitted unless otherwise expressly granted.
PY - 2017/6/12
Y1 - 2017/6/12
N2 - OBJECTIVES: It is known that transition, as a shift of care, marks a vulnerable phase in the adolescents' lives with an increased risk for non-adherence and allograft failure. Still, the transition process of adolescents and young adults living with a kidney transplant in Germany is not well defined. The present research aims to assess transition-relevant structures for this group of young people. Special attention is paid to the timing of the process.SETTING: In an observational study, we visited 21 departments of paediatric nephrology in Germany. Participants were doctors (n=19), nurses (n=14) and psychosocial staff (n=16) who were responsible for transition in the relevant centres. Structural elements were surveyed using a short questionnaire. The experiential viewpoint was collected by interviews which were transcribedverbatim before thematic analysis was performed.RESULTS: This study highlights that professionals working within paediatric nephrology in Germany are well aware of the importance of successful transition. Key elements of transitional care are well understood and mutually agreed on. Nonetheless, implementation within daily routine seems challenging, and the absence of written, structured procedures may hamper successful transition.CONCLUSIONS: While professionals aim for an individual timing of transfer based on medical, social, emotional and structural aspects, rigid regulations on transfer age as given by the relevant health authorities add on to the challenge.TRIAL REGISTRATION NUMBER: ISRCTN Registry no 22988897; results (phase I) and pre-results (phase II).
AB - OBJECTIVES: It is known that transition, as a shift of care, marks a vulnerable phase in the adolescents' lives with an increased risk for non-adherence and allograft failure. Still, the transition process of adolescents and young adults living with a kidney transplant in Germany is not well defined. The present research aims to assess transition-relevant structures for this group of young people. Special attention is paid to the timing of the process.SETTING: In an observational study, we visited 21 departments of paediatric nephrology in Germany. Participants were doctors (n=19), nurses (n=14) and psychosocial staff (n=16) who were responsible for transition in the relevant centres. Structural elements were surveyed using a short questionnaire. The experiential viewpoint was collected by interviews which were transcribedverbatim before thematic analysis was performed.RESULTS: This study highlights that professionals working within paediatric nephrology in Germany are well aware of the importance of successful transition. Key elements of transitional care are well understood and mutually agreed on. Nonetheless, implementation within daily routine seems challenging, and the absence of written, structured procedures may hamper successful transition.CONCLUSIONS: While professionals aim for an individual timing of transfer based on medical, social, emotional and structural aspects, rigid regulations on transfer age as given by the relevant health authorities add on to the challenge.TRIAL REGISTRATION NUMBER: ISRCTN Registry no 22988897; results (phase I) and pre-results (phase II).
KW - Adolescent
KW - Age Factors
KW - Female
KW - Germany
KW - Humans
KW - Interviews as Topic
KW - Kidney Transplantation
KW - Male
KW - Qualitative Research
KW - Surveys and Questionnaires
KW - Time Factors
KW - Transition to Adult Care
KW - Young Adult
KW - Journal Article
KW - Multicenter Study
KW - Observational Study
U2 - 10.1136/bmjopen-2016-015593
DO - 10.1136/bmjopen-2016-015593
M3 - SCORING: Journal article
C2 - 28606904
VL - 7
SP - e015593
JO - BMJ OPEN
JF - BMJ OPEN
SN - 2044-6055
IS - 6
ER -
