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The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned

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The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned. / Gerlach, Christina; Ullrich, Anneke; Berges, Natalie; Bausewein, Claudia; Oechsle, Karin; Hodiamont, Farina; PallPan Study Group.

in: J CLIN MED, Jahrgang 11, Nr. 13, 3863, 03.07.2022.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

Gerlach, C, Ullrich, A, Berges, N, Bausewein, C, Oechsle, K, Hodiamont, F & PallPan Study Group 2022, 'The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned', J CLIN MED, Jg. 11, Nr. 13, 3863. https://doi.org/10.3390/jcm11133863

APA

Gerlach, C., Ullrich, A., Berges, N., Bausewein, C., Oechsle, K., Hodiamont, F., & PallPan Study Group (2022). The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned. J CLIN MED, 11(13), [3863]. https://doi.org/10.3390/jcm11133863

Vancouver

Gerlach C, Ullrich A, Berges N, Bausewein C, Oechsle K, Hodiamont F et al. The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned. J CLIN MED. 2022 Jul 3;11(13). 3863. https://doi.org/10.3390/jcm11133863

Bibtex

@article{454388466222438eabb182a28c11a8c6,
title = "The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned",
abstract = "During humanitarian crises, such as a pandemic, healthcare systems worldwide face unknown challenges. This study aimed to explore and describe the effect of the SARS-CoV-2 pandemic on the needs of non-infected patients and family caregivers in specialist palliative care, using qualitative, semi-structured interviews. Data were analyzed using inductive content analysis, following the framework approach. Thirty-one interviews were conducted with patients/family caregivers (15/16) in palliative care units/specialist palliative home care (21/10) from June 2020 to January 2021. Well-known needs of patients and family caregivers at the end of life remained during the pandemic. Pandemic- dependent themes were (1) implications of the risk of contagion, (2) impact of the restriction of social interactions, (3) effects on the delivery of healthcare, and (4) changes in the relative{\textquoteright}s role as family caregiver. Restriction on visits limited family caregivers{\textquoteright} ability to be present in palliative care units. In specialist palliative home care, family caregivers were concerned about the balance between preserving social contacts at the end of life and preventing infection. Specialist palliative care during a pandemic needs to meet both the well-known needs at the end of life and additional needs in the pandemic context. In particular, attention should be given to the needs and burden of family caregivers, which became more multifaceted with regards to the pandemic.",
author = "Christina Gerlach and Anneke Ullrich and Natalie Berges and Claudia Bausewein and Karin Oechsle and Farina Hodiamont and {PallPan Study Group}",
year = "2022",
month = jul,
day = "3",
doi = "10.3390/jcm11133863",
language = "English",
volume = "11",
journal = "J CLIN MED",
issn = "2077-0383",
publisher = "MDPI AG",
number = "13",

}

RIS

TY - JOUR

T1 - The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned

AU - Gerlach, Christina

AU - Ullrich, Anneke

AU - Berges, Natalie

AU - Bausewein, Claudia

AU - Oechsle, Karin

AU - Hodiamont, Farina

AU - PallPan Study Group

PY - 2022/7/3

Y1 - 2022/7/3

N2 - During humanitarian crises, such as a pandemic, healthcare systems worldwide face unknown challenges. This study aimed to explore and describe the effect of the SARS-CoV-2 pandemic on the needs of non-infected patients and family caregivers in specialist palliative care, using qualitative, semi-structured interviews. Data were analyzed using inductive content analysis, following the framework approach. Thirty-one interviews were conducted with patients/family caregivers (15/16) in palliative care units/specialist palliative home care (21/10) from June 2020 to January 2021. Well-known needs of patients and family caregivers at the end of life remained during the pandemic. Pandemic- dependent themes were (1) implications of the risk of contagion, (2) impact of the restriction of social interactions, (3) effects on the delivery of healthcare, and (4) changes in the relative’s role as family caregiver. Restriction on visits limited family caregivers’ ability to be present in palliative care units. In specialist palliative home care, family caregivers were concerned about the balance between preserving social contacts at the end of life and preventing infection. Specialist palliative care during a pandemic needs to meet both the well-known needs at the end of life and additional needs in the pandemic context. In particular, attention should be given to the needs and burden of family caregivers, which became more multifaceted with regards to the pandemic.

AB - During humanitarian crises, such as a pandemic, healthcare systems worldwide face unknown challenges. This study aimed to explore and describe the effect of the SARS-CoV-2 pandemic on the needs of non-infected patients and family caregivers in specialist palliative care, using qualitative, semi-structured interviews. Data were analyzed using inductive content analysis, following the framework approach. Thirty-one interviews were conducted with patients/family caregivers (15/16) in palliative care units/specialist palliative home care (21/10) from June 2020 to January 2021. Well-known needs of patients and family caregivers at the end of life remained during the pandemic. Pandemic- dependent themes were (1) implications of the risk of contagion, (2) impact of the restriction of social interactions, (3) effects on the delivery of healthcare, and (4) changes in the relative’s role as family caregiver. Restriction on visits limited family caregivers’ ability to be present in palliative care units. In specialist palliative home care, family caregivers were concerned about the balance between preserving social contacts at the end of life and preventing infection. Specialist palliative care during a pandemic needs to meet both the well-known needs at the end of life and additional needs in the pandemic context. In particular, attention should be given to the needs and burden of family caregivers, which became more multifaceted with regards to the pandemic.

U2 - 10.3390/jcm11133863

DO - 10.3390/jcm11133863

M3 - SCORING: Journal article

C2 - 35807148

VL - 11

JO - J CLIN MED

JF - J CLIN MED

SN - 2077-0383

IS - 13

M1 - 3863

ER -