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Sixth Åland Island Conference on von Willebrand disease

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Sixth Åland Island Conference on von Willebrand disease. / Berntorp, Erik; Trakymienė, Sonata S; Federici, Augusto B; Holstein, Katharina; Corrales-Medina, Fernando F; Pierce, Glenn F; Srivastava, Alok; Prondzinski, Mario von Depka; Johnsen, Jill M; Zupan, Irena P; Halimeh, Susan; Nummi, Vuokko; Roberts, Jonathan C.

in: HAEMOPHILIA, Jahrgang 28, Nr. Suppl 5, 07.2022, S. 3-15.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

Berntorp, E, Trakymienė, SS, Federici, AB, Holstein, K, Corrales-Medina, FF, Pierce, GF, Srivastava, A, Prondzinski, MVD, Johnsen, JM, Zupan, IP, Halimeh, S, Nummi, V & Roberts, JC 2022, 'Sixth Åland Island Conference on von Willebrand disease', HAEMOPHILIA, Jg. 28, Nr. Suppl 5, S. 3-15. https://doi.org/10.1111/hae.14495

APA

Berntorp, E., Trakymienė, S. S., Federici, A. B., Holstein, K., Corrales-Medina, F. F., Pierce, G. F., Srivastava, A., Prondzinski, M. V. D., Johnsen, J. M., Zupan, I. P., Halimeh, S., Nummi, V., & Roberts, J. C. (2022). Sixth Åland Island Conference on von Willebrand disease. HAEMOPHILIA, 28(Suppl 5), 3-15. https://doi.org/10.1111/hae.14495

Vancouver

Berntorp E, Trakymienė SS, Federici AB, Holstein K, Corrales-Medina FF, Pierce GF et al. Sixth Åland Island Conference on von Willebrand disease. HAEMOPHILIA. 2022 Jul;28(Suppl 5):3-15. https://doi.org/10.1111/hae.14495

Bibtex

@article{21b40b3923fd4207a807987ea66a32a5,
title = "Sixth {\AA}land Island Conference on von Willebrand disease",
abstract = "INTRODUCTION: The sixth {\AA}land Islands Conference on von Willebrand disease (VWD) on the {\AA}land Islands, Finland, was held from 20 to 22 September 2018.AIM: The meeting brought together experts in the field of VWD from around the world to share the latest advances and knowledge in VWD.RESULTS AND DISCUSSION: The topics covered both clinical aspects of disease management, and biochemical and laboratory insights into the disease. The clinical topics discussed included epidemiology, diagnosis and treatment of VWD in different countries, management of children with VWD, bleeding control during surgery, specific considerations for the management of type 3 VWD and bleeding control in women with VWD. Current approaches to the management of acquired von Willebrand syndrome were also discussed. Despite significant advances in the understanding and therapeutic options for VWD, there remain many challenges to be overcome in order to optimise patient care. In comparison with haemophilia A, there are very few registries of VWD patients, which would be a valuable source of data on the condition and its management. VWD is still underdiagnosed, and many patients suffer recurrent or severe bleeding that could be prevented. Awareness of VWD among healthcare practitioners, including non-haematologists, should be improved to allow timely diagnosis and intervention. Diagnosis remains challenging, and the development of fast, simple assays may help to facilitate accurate and rapid diagnosis of VWD.",
keywords = "Child, Congresses as Topic, Female, Finland, Hemorrhage, Humans, Registries, von Willebrand Disease, Type 3, von Willebrand Diseases/complications, von Willebrand Factor/therapeutic use",
author = "Erik Berntorp and Trakymienė, {Sonata S} and Federici, {Augusto B} and Katharina Holstein and Corrales-Medina, {Fernando F} and Pierce, {Glenn F} and Alok Srivastava and Prondzinski, {Mario von Depka} and Johnsen, {Jill M} and Zupan, {Irena P} and Susan Halimeh and Vuokko Nummi and Roberts, {Jonathan C}",
note = "{\textcopyright} 2022 The Authors. Haemophilia published by John Wiley & Sons Ltd.",
year = "2022",
month = jul,
doi = "10.1111/hae.14495",
language = "English",
volume = "28",
pages = "3--15",
journal = "HAEMOPHILIA",
issn = "1351-8216",
publisher = "Wiley-Blackwell",
number = "Suppl 5",

}

RIS

TY - JOUR

T1 - Sixth Åland Island Conference on von Willebrand disease

AU - Berntorp, Erik

AU - Trakymienė, Sonata S

AU - Federici, Augusto B

AU - Holstein, Katharina

AU - Corrales-Medina, Fernando F

AU - Pierce, Glenn F

AU - Srivastava, Alok

AU - Prondzinski, Mario von Depka

AU - Johnsen, Jill M

AU - Zupan, Irena P

AU - Halimeh, Susan

AU - Nummi, Vuokko

AU - Roberts, Jonathan C

N1 - © 2022 The Authors. Haemophilia published by John Wiley & Sons Ltd.

PY - 2022/7

Y1 - 2022/7

N2 - INTRODUCTION: The sixth Åland Islands Conference on von Willebrand disease (VWD) on the Åland Islands, Finland, was held from 20 to 22 September 2018.AIM: The meeting brought together experts in the field of VWD from around the world to share the latest advances and knowledge in VWD.RESULTS AND DISCUSSION: The topics covered both clinical aspects of disease management, and biochemical and laboratory insights into the disease. The clinical topics discussed included epidemiology, diagnosis and treatment of VWD in different countries, management of children with VWD, bleeding control during surgery, specific considerations for the management of type 3 VWD and bleeding control in women with VWD. Current approaches to the management of acquired von Willebrand syndrome were also discussed. Despite significant advances in the understanding and therapeutic options for VWD, there remain many challenges to be overcome in order to optimise patient care. In comparison with haemophilia A, there are very few registries of VWD patients, which would be a valuable source of data on the condition and its management. VWD is still underdiagnosed, and many patients suffer recurrent or severe bleeding that could be prevented. Awareness of VWD among healthcare practitioners, including non-haematologists, should be improved to allow timely diagnosis and intervention. Diagnosis remains challenging, and the development of fast, simple assays may help to facilitate accurate and rapid diagnosis of VWD.

AB - INTRODUCTION: The sixth Åland Islands Conference on von Willebrand disease (VWD) on the Åland Islands, Finland, was held from 20 to 22 September 2018.AIM: The meeting brought together experts in the field of VWD from around the world to share the latest advances and knowledge in VWD.RESULTS AND DISCUSSION: The topics covered both clinical aspects of disease management, and biochemical and laboratory insights into the disease. The clinical topics discussed included epidemiology, diagnosis and treatment of VWD in different countries, management of children with VWD, bleeding control during surgery, specific considerations for the management of type 3 VWD and bleeding control in women with VWD. Current approaches to the management of acquired von Willebrand syndrome were also discussed. Despite significant advances in the understanding and therapeutic options for VWD, there remain many challenges to be overcome in order to optimise patient care. In comparison with haemophilia A, there are very few registries of VWD patients, which would be a valuable source of data on the condition and its management. VWD is still underdiagnosed, and many patients suffer recurrent or severe bleeding that could be prevented. Awareness of VWD among healthcare practitioners, including non-haematologists, should be improved to allow timely diagnosis and intervention. Diagnosis remains challenging, and the development of fast, simple assays may help to facilitate accurate and rapid diagnosis of VWD.

KW - Child

KW - Congresses as Topic

KW - Female

KW - Finland

KW - Hemorrhage

KW - Humans

KW - Registries

KW - von Willebrand Disease, Type 3

KW - von Willebrand Diseases/complications

KW - von Willebrand Factor/therapeutic use

U2 - 10.1111/hae.14495

DO - 10.1111/hae.14495

M3 - SCORING: Journal article

C2 - 35861919

VL - 28

SP - 3

EP - 15

JO - HAEMOPHILIA

JF - HAEMOPHILIA

SN - 1351-8216

IS - Suppl 5

ER -