Retinoblastom in Malawi
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Retinoblastom in Malawi : Warum zu späte Einweisung? / Schulze Schwering, M; Gandiwa, M; Msukwa, G; Spitzer, M; Kalua, K; Molyneux, E M.
in: OPHTHALMOLOGE, Jahrgang 111, Nr. 12, 12.2014, S. 1189-93.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Retinoblastom in Malawi
T2 - Warum zu späte Einweisung?
AU - Schulze Schwering, M
AU - Gandiwa, M
AU - Msukwa, G
AU - Spitzer, M
AU - Kalua, K
AU - Molyneux, E M
PY - 2014/12
Y1 - 2014/12
N2 - BACKGROUND: A total of 82 % of stationary admissions with the diagnosis of retinoblastoma (2009-2011) to the tertiary ophthalmology unit in Blantyre, Malawi (n = 58) presented with advanced stage disease.PATIENTS AND METHODS: In another study in 2012 we sought to identify why children mostly presented in advanced stages of disease and whether the delay was unique to children with cancer. In-depth interviews (IDI) were conducted at the hospital with 40 parents or guardians of children with retinoblastoma, congenital cataract, congenital glaucoma and corneal perforation (10 each).RESULTS: Most delays and delayed admissions occurred at the family (27.5 %, 11 out of 40) and primary health centre levels (30.0 %, 12 out of 40). Lack of money for transport caused delays (15.0 %, 6 out of 40) at all care levels. In contrast, children with painful conditions presented to a health facility within 24 h of onset without any complaints about lack of money for transport.CONCLUSION: Education about retinoblastoma and other non-painful eye diseases could be improved by a poster campaign to both parents and professionals at all medical healthcare levels. Transport for such cases between the various healthcare centers should be provided free of charge. There is room for improvement in initial diagnosis, referral and management within the healthcare service in the tertiary sector.
AB - BACKGROUND: A total of 82 % of stationary admissions with the diagnosis of retinoblastoma (2009-2011) to the tertiary ophthalmology unit in Blantyre, Malawi (n = 58) presented with advanced stage disease.PATIENTS AND METHODS: In another study in 2012 we sought to identify why children mostly presented in advanced stages of disease and whether the delay was unique to children with cancer. In-depth interviews (IDI) were conducted at the hospital with 40 parents or guardians of children with retinoblastoma, congenital cataract, congenital glaucoma and corneal perforation (10 each).RESULTS: Most delays and delayed admissions occurred at the family (27.5 %, 11 out of 40) and primary health centre levels (30.0 %, 12 out of 40). Lack of money for transport caused delays (15.0 %, 6 out of 40) at all care levels. In contrast, children with painful conditions presented to a health facility within 24 h of onset without any complaints about lack of money for transport.CONCLUSION: Education about retinoblastoma and other non-painful eye diseases could be improved by a poster campaign to both parents and professionals at all medical healthcare levels. Transport for such cases between the various healthcare centers should be provided free of charge. There is room for improvement in initial diagnosis, referral and management within the healthcare service in the tertiary sector.
KW - Adolescent
KW - Child
KW - Comorbidity
KW - Early Diagnosis
KW - Eye Pain
KW - Female
KW - Humans
KW - Infant
KW - Infant, Newborn
KW - Malawi
KW - Male
KW - Medical Oncology
KW - Ophthalmology
KW - Patient Admission
KW - Prevalence
KW - Retinal Neoplasms
KW - Retinoblastoma
KW - Risk Assessment
KW - Socioeconomic Factors
KW - Transportation
KW - Utilization Review
KW - English Abstract
KW - Journal Article
U2 - 10.1007/s00347-014-3117-x
DO - 10.1007/s00347-014-3117-x
M3 - SCORING: Zeitschriftenaufsatz
C2 - 25278348
VL - 111
SP - 1189
EP - 1193
JO - OPHTHALMOLOGE
JF - OPHTHALMOLOGE
SN - 0941-293X
IS - 12
ER -