Quality of Life after Brain Injury (QOLIBRI): scale development and metric properties.
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Quality of Life after Brain Injury (QOLIBRI): scale development and metric properties. / von Steinbüchel, Nicole; Wilson, Lindsay; Gibbons, Henning; Hawthorne, Graeme; Höfer, Stefan; Schmidt, Silke; Bullinger, Monika; Maas, Andrew; Neugebauer, Edmund; Powell, Jane; von Wild, Klaus; Zitnay, George; Bakx, Wilbert; Christensen, Anne-Lise; Koskinen, Sanna; Sarajuuri, Jaana; Formisano, Rita; Sasse, Nadine; Truelle, Jean-Luc; Force, QOLIBRI Task.
in: J NEUROTRAUM, Jahrgang 27, Nr. 7, 7, 2010, S. 1167-1185.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Quality of Life after Brain Injury (QOLIBRI): scale development and metric properties.
AU - von Steinbüchel, Nicole
AU - Wilson, Lindsay
AU - Gibbons, Henning
AU - Hawthorne, Graeme
AU - Höfer, Stefan
AU - Schmidt, Silke
AU - Bullinger, Monika
AU - Maas, Andrew
AU - Neugebauer, Edmund
AU - Powell, Jane
AU - von Wild, Klaus
AU - Zitnay, George
AU - Bakx, Wilbert
AU - Christensen, Anne-Lise
AU - Koskinen, Sanna
AU - Sarajuuri, Jaana
AU - Formisano, Rita
AU - Sasse, Nadine
AU - Truelle, Jean-Luc
AU - Force, QOLIBRI Task
PY - 2010
Y1 - 2010
N2 - The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are poorly investigated, and a TBI-specific instrument has not previously been available. The cross-cultural development of a new measure to assess HRQoL after TBI is described here. An international TBI Task Force derived a conceptual model from previous work, constructed an initial item bank of 148 items, and then reduced the item set through two successive multicenter validation studies. The first study, with eight language versions of the QOLIBRI, recruited 1528 participants with TBI, and the second with six language versions, recruited 921 participants. The data from 795 participants from the second study who had complete Glasgow Coma Scale (GCS) and Glasgow Outcome Scale (GOS) data were used to finalize the instrument. The final version of the QOLIBRI consists of 37 items in six scales (see Appendix ). Satisfaction is assessed in the areas of "Cognition," "Self," "Daily Life and Autonomy," and "Social Relationships," and feeling bothered by "Emotions," and "Physical Problems." The QOLIBRI scales meet standard psychometric criteria (internal consistency, alpha = 0.75-0.89, test-retest reliability, r(tt) = 0.78-0.85). Test-retest reliability (r(tt) = 0.68-0.87) as well as internal consistency (alpha = 0.81-0.91) were also good in a subgroup of participants with lower cognitive performance. Although there is one strong HRQoL factor, a six-scale structure explaining additional variance was validated by exploratory and confirmatory factor analyses, and with Rasch modeling. The QOLIBRI is a new cross-culturally developed instrument for assessing HRQoL after TBI that fulfills standard psychometric criteria. It is potentially useful for clinicians and researchers conducting clinical trials, for assessing the impact of rehabilitation or other interventions, and for carrying out epidemiological surveys.
AB - The consequences of traumatic brain injury (TBI) for health-related quality of life (HRQoL) are poorly investigated, and a TBI-specific instrument has not previously been available. The cross-cultural development of a new measure to assess HRQoL after TBI is described here. An international TBI Task Force derived a conceptual model from previous work, constructed an initial item bank of 148 items, and then reduced the item set through two successive multicenter validation studies. The first study, with eight language versions of the QOLIBRI, recruited 1528 participants with TBI, and the second with six language versions, recruited 921 participants. The data from 795 participants from the second study who had complete Glasgow Coma Scale (GCS) and Glasgow Outcome Scale (GOS) data were used to finalize the instrument. The final version of the QOLIBRI consists of 37 items in six scales (see Appendix ). Satisfaction is assessed in the areas of "Cognition," "Self," "Daily Life and Autonomy," and "Social Relationships," and feeling bothered by "Emotions," and "Physical Problems." The QOLIBRI scales meet standard psychometric criteria (internal consistency, alpha = 0.75-0.89, test-retest reliability, r(tt) = 0.78-0.85). Test-retest reliability (r(tt) = 0.68-0.87) as well as internal consistency (alpha = 0.81-0.91) were also good in a subgroup of participants with lower cognitive performance. Although there is one strong HRQoL factor, a six-scale structure explaining additional variance was validated by exploratory and confirmatory factor analyses, and with Rasch modeling. The QOLIBRI is a new cross-culturally developed instrument for assessing HRQoL after TBI that fulfills standard psychometric criteria. It is potentially useful for clinicians and researchers conducting clinical trials, for assessing the impact of rehabilitation or other interventions, and for carrying out epidemiological surveys.
KW - Adult
KW - Humans
KW - Male
KW - Aged
KW - Female
KW - Middle Aged
KW - Adolescent
KW - Young Adult
KW - Disability Evaluation
KW - Reproducibility of Results
KW - Predictive Value of Tests
KW - Questionnaires standards
KW - Quality of Life psychology
KW - Brain Injuries complications
KW - Outcome Assessment (Health Care) methods
KW - Adult
KW - Humans
KW - Male
KW - Aged
KW - Female
KW - Middle Aged
KW - Adolescent
KW - Young Adult
KW - Disability Evaluation
KW - Reproducibility of Results
KW - Predictive Value of Tests
KW - Questionnaires standards
KW - Quality of Life psychology
KW - Brain Injuries complications
KW - Outcome Assessment (Health Care) methods
M3 - SCORING: Zeitschriftenaufsatz
VL - 27
SP - 1167
EP - 1185
JO - J NEUROTRAUM
JF - J NEUROTRAUM
SN - 0897-7151
IS - 7
M1 - 7
ER -
