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Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention

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Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention. / Zill, Jördis Maria; Dirmaier, Jörg; Augustin, Matthias; Dwinger, Sarah; Christalle, Eva; Härter, Martin; Mrowietz, Ulrich.

in: JMIR RES PROTOC, Jahrgang 7, Nr. 2, 07.02.2018, S. e22.

Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung

Harvard

Zill, JM, Dirmaier, J, Augustin, M, Dwinger, S, Christalle, E, Härter, M & Mrowietz, U 2018, 'Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention', JMIR RES PROTOC, Jg. 7, Nr. 2, S. e22. https://doi.org/10.2196/resprot.8490

APA

Zill, J. M., Dirmaier, J., Augustin, M., Dwinger, S., Christalle, E., Härter, M., & Mrowietz, U. (2018). Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention. JMIR RES PROTOC, 7(2), e22. https://doi.org/10.2196/resprot.8490

Vancouver

Zill JM, Dirmaier J, Augustin M, Dwinger S, Christalle E, Härter M et al. Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention. JMIR RES PROTOC. 2018 Feb 7;7(2):e22. https://doi.org/10.2196/resprot.8490

Bibtex

@article{1f1b1869e5374ccfaacb1892b6a808c5,
title = "Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention",
abstract = "BACKGROUND: Psoriasis is a chronic inflammatory disease that is often associated with a number of somatic and mental comorbidity. Patients with psoriasis show an increased risk of depression and (social) anxiety.OBJECTIVE: The aims of this study are 1) to explore the psychosocial distress of patients with psoriasis and to assess their care needs; and 2) to develop a supportive intervention based on the prior results.METHODS: A multi-stage design with four phases combining quantitative and qualitative methodology will be used and conducted in two centers. 1) A scoping review and focus groups will be used to design a questionnaire to assess the psychosocial distress and care needs of the patients. 2) The questionnaire developed in phase 1 will be used in a cross-sectional survey to assess the extent of psychosocial distress and supportive care needs in 400 patients with psoriasis. 3) A systematic review and meta-analysis will be conducted to identify psychosocial and psychoeducational interventions for patients with psoriasis and to describe their effectiveness. 4) Based on the results of the phases 2 and 3 a manualized supportive intervention will be developed and the feasibility and acceptance of the intervention will be assessed.RESULTS: Currently, phase 1 of the project has been completed and the recruitment for phase 2 has been started. The systematic review and meta-analysis of phase 3 are conducted simultaneously to phase 2 and results are expected soon. Phase 4 has not been started yet.CONCLUSIONS: The expected results of this study will show the extent of psychosocial distress of patients with psoriasis in Germany and supplement previous research with findings about the supportive care needs of this patient group. Moreover, the developed intervention will help to address the psychosocial support needs of patients with psoriasis. Research shows that psychosocial support is strongly needed.",
keywords = "Journal Article",
author = "Zill, {J{\"o}rdis Maria} and J{\"o}rg Dirmaier and Matthias Augustin and Sarah Dwinger and Eva Christalle and Martin H{\"a}rter and Ulrich Mrowietz",
note = "{\textcopyright}J{\"o}rdis Maria Zill, J{\"o}rg Dirmaier, Matthias Augustin, Sarah Dwinger, Eva Christalle, Martin H{\"a}rter, Ulrich Mrowietz. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 07.02.2018.",
year = "2018",
month = feb,
day = "7",
doi = "10.2196/resprot.8490",
language = "English",
volume = "7",
pages = "e22",
journal = "JMIR RES PROTOC",
issn = "1929-0748",
publisher = "JMIR Publications Inc.",
number = "2",

}

RIS

TY - JOUR

T1 - Psychosocial Distress of Patients with Psoriasis: Protocol for an Assessment of Care Needs and the Development of a Supportive Intervention

AU - Zill, Jördis Maria

AU - Dirmaier, Jörg

AU - Augustin, Matthias

AU - Dwinger, Sarah

AU - Christalle, Eva

AU - Härter, Martin

AU - Mrowietz, Ulrich

N1 - ©Jördis Maria Zill, Jörg Dirmaier, Matthias Augustin, Sarah Dwinger, Eva Christalle, Martin Härter, Ulrich Mrowietz. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 07.02.2018.

PY - 2018/2/7

Y1 - 2018/2/7

N2 - BACKGROUND: Psoriasis is a chronic inflammatory disease that is often associated with a number of somatic and mental comorbidity. Patients with psoriasis show an increased risk of depression and (social) anxiety.OBJECTIVE: The aims of this study are 1) to explore the psychosocial distress of patients with psoriasis and to assess their care needs; and 2) to develop a supportive intervention based on the prior results.METHODS: A multi-stage design with four phases combining quantitative and qualitative methodology will be used and conducted in two centers. 1) A scoping review and focus groups will be used to design a questionnaire to assess the psychosocial distress and care needs of the patients. 2) The questionnaire developed in phase 1 will be used in a cross-sectional survey to assess the extent of psychosocial distress and supportive care needs in 400 patients with psoriasis. 3) A systematic review and meta-analysis will be conducted to identify psychosocial and psychoeducational interventions for patients with psoriasis and to describe their effectiveness. 4) Based on the results of the phases 2 and 3 a manualized supportive intervention will be developed and the feasibility and acceptance of the intervention will be assessed.RESULTS: Currently, phase 1 of the project has been completed and the recruitment for phase 2 has been started. The systematic review and meta-analysis of phase 3 are conducted simultaneously to phase 2 and results are expected soon. Phase 4 has not been started yet.CONCLUSIONS: The expected results of this study will show the extent of psychosocial distress of patients with psoriasis in Germany and supplement previous research with findings about the supportive care needs of this patient group. Moreover, the developed intervention will help to address the psychosocial support needs of patients with psoriasis. Research shows that psychosocial support is strongly needed.

AB - BACKGROUND: Psoriasis is a chronic inflammatory disease that is often associated with a number of somatic and mental comorbidity. Patients with psoriasis show an increased risk of depression and (social) anxiety.OBJECTIVE: The aims of this study are 1) to explore the psychosocial distress of patients with psoriasis and to assess their care needs; and 2) to develop a supportive intervention based on the prior results.METHODS: A multi-stage design with four phases combining quantitative and qualitative methodology will be used and conducted in two centers. 1) A scoping review and focus groups will be used to design a questionnaire to assess the psychosocial distress and care needs of the patients. 2) The questionnaire developed in phase 1 will be used in a cross-sectional survey to assess the extent of psychosocial distress and supportive care needs in 400 patients with psoriasis. 3) A systematic review and meta-analysis will be conducted to identify psychosocial and psychoeducational interventions for patients with psoriasis and to describe their effectiveness. 4) Based on the results of the phases 2 and 3 a manualized supportive intervention will be developed and the feasibility and acceptance of the intervention will be assessed.RESULTS: Currently, phase 1 of the project has been completed and the recruitment for phase 2 has been started. The systematic review and meta-analysis of phase 3 are conducted simultaneously to phase 2 and results are expected soon. Phase 4 has not been started yet.CONCLUSIONS: The expected results of this study will show the extent of psychosocial distress of patients with psoriasis in Germany and supplement previous research with findings about the supportive care needs of this patient group. Moreover, the developed intervention will help to address the psychosocial support needs of patients with psoriasis. Research shows that psychosocial support is strongly needed.

KW - Journal Article

U2 - 10.2196/resprot.8490

DO - 10.2196/resprot.8490

M3 - SCORING: Journal article

C2 - 29415875

VL - 7

SP - e22

JO - JMIR RES PROTOC

JF - JMIR RES PROTOC

SN - 1929-0748

IS - 2

ER -