Psychometric properties of the participation scale among former buruli ulcer patients in Ghana and Benin
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Psychometric properties of the participation scale among former buruli ulcer patients in Ghana and Benin. / de Zeeuw, Janine; Douwstra, Marlies; Omansen, Till F.; Sopoh, Ghislain E; Johnson, Christian; Phillips, Richard O; Alferink, Marike; Saunderson, Paul; Van der Werf, Tjip S; Dijkstra, Pieter U; Stienstra, Ymkje.
in: PLOS NEGLECT TROP D, Jahrgang 8, Nr. 11, 2014, S. e3254.Publikationen: SCORING: Beitrag in Fachzeitschrift/Zeitung › SCORING: Zeitschriftenaufsatz › Forschung › Begutachtung
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TY - JOUR
T1 - Psychometric properties of the participation scale among former buruli ulcer patients in Ghana and Benin
AU - de Zeeuw, Janine
AU - Douwstra, Marlies
AU - Omansen, Till F.
AU - Sopoh, Ghislain E
AU - Johnson, Christian
AU - Phillips, Richard O
AU - Alferink, Marike
AU - Saunderson, Paul
AU - Van der Werf, Tjip S
AU - Dijkstra, Pieter U
AU - Stienstra, Ymkje
PY - 2014
Y1 - 2014
N2 - BACKGROUND: Buruli ulcer is a stigmatising disease treated with antibiotics and wound care, and sometimes surgical intervention is necessary. Permanent limitations in daily activities are a common long term consequence. It is unknown to what extent patients perceive problems in participation in social activities. The psychometric properties of the Participation Scale used in other disabling diseases, such as leprosy, was assessed for use in former Buruli ulcer patients.METHODS: Former Buruli ulcer patients in Ghana and Benin, their relatives, and healthy community controls were interviewed using the Participation Scale, Buruli Ulcer Functional Limitation Score, and the Explanatory Model Interview Catalogue to measure stigma. The Participation Scale was tested for the following psychometric properties: discrimination, floor and ceiling effects, internal consistency, inter-item correlation, item-total correlation and construct validity.RESULTS: In total 386 participants (143 former Buruli ulcer patients with their relatives (137) and 106 community controls) were included in the study. The Participation Scale displayed good discrimination between former Buruli ulcer patients and healthy community controls. No floor and ceiling effects were found. Internal consistency (Cronbach's alpha) was 0.88. In Ghana, mean inter-item correlation of 0.29 and item-total correlations ranging from 0.10 to 0.69 were found while in Benin, a mean inter-item correlation of 0.28 was reported with item-total correlations ranging from -0.08 to 0.79. With respect to construct validity, 4 out of 6 hypotheses were not rejected, though correlations between various constructs differed between countries.CONCLUSION: The results indicate the Participation Scale has acceptable psychometric properties and can be used for Buruli ulcer patients in Ghana and Benin. Future studies can use this Participation Scale to evaluate the long term restrictions in participation in daily social activities of former BU patients.
AB - BACKGROUND: Buruli ulcer is a stigmatising disease treated with antibiotics and wound care, and sometimes surgical intervention is necessary. Permanent limitations in daily activities are a common long term consequence. It is unknown to what extent patients perceive problems in participation in social activities. The psychometric properties of the Participation Scale used in other disabling diseases, such as leprosy, was assessed for use in former Buruli ulcer patients.METHODS: Former Buruli ulcer patients in Ghana and Benin, their relatives, and healthy community controls were interviewed using the Participation Scale, Buruli Ulcer Functional Limitation Score, and the Explanatory Model Interview Catalogue to measure stigma. The Participation Scale was tested for the following psychometric properties: discrimination, floor and ceiling effects, internal consistency, inter-item correlation, item-total correlation and construct validity.RESULTS: In total 386 participants (143 former Buruli ulcer patients with their relatives (137) and 106 community controls) were included in the study. The Participation Scale displayed good discrimination between former Buruli ulcer patients and healthy community controls. No floor and ceiling effects were found. Internal consistency (Cronbach's alpha) was 0.88. In Ghana, mean inter-item correlation of 0.29 and item-total correlations ranging from 0.10 to 0.69 were found while in Benin, a mean inter-item correlation of 0.28 was reported with item-total correlations ranging from -0.08 to 0.79. With respect to construct validity, 4 out of 6 hypotheses were not rejected, though correlations between various constructs differed between countries.CONCLUSION: The results indicate the Participation Scale has acceptable psychometric properties and can be used for Buruli ulcer patients in Ghana and Benin. Future studies can use this Participation Scale to evaluate the long term restrictions in participation in daily social activities of former BU patients.
KW - Adult
KW - Benin/epidemiology
KW - Buruli Ulcer/epidemiology
KW - Female
KW - Ghana/epidemiology
KW - Humans
KW - Male
KW - Psychometrics
KW - Social Participation/psychology
KW - Social Stigma
U2 - 10.1371/journal.pntd.0003254
DO - 10.1371/journal.pntd.0003254
M3 - SCORING: Journal article
C2 - 25393289
VL - 8
SP - e3254
JO - PLOS NEGLECT TROP D
JF - PLOS NEGLECT TROP D
SN - 1935-2735
IS - 11
ER -
