Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG)

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Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG). / Steeb, Theresa; Wessely, Anja; Alter, Mareike; Bayerl, Christiane; Bender, Armin; Bruning, Guido; Dabrowski, Evelyn; Debus, Dirk; Devereux, Nina; Dippel, Edgar; Drexler, Konstantin; Dücker, Pia; Dummer, Reinhard; Emmert, Steffen; Elsner, Peter; Enk, Alexander; Gebhardt, Christoffer; Gesierich, Anja; Goebeler, Matthias; Goerdt, Sergij; Goetze, Steven; Gutzmer, Ralf; Haferkamp, Sebastian; Hansel, Gesina; Hassel, Jessica C; Heinzerling, Lucie; Kähler, Katharina C; Kaume, Kjell M; Krapf, Wolfgang; Kreuzberg, Nicole; Lehmann, Percy; Livingstone, Elisabeth; Löffler, Harald; Loquai, Carmen; Mauch, Cornelia; Mangana, Johanna; Meier, Friedegund; Meissner, Markus; Moritz, Rose K C; Maul, Lara Valeska; Müller, Verena; Mohr, Peter; Navarini, Alexander; Van Nguyen, Ahn; Pfeiffer, Christiane; Pföhler, Claudia; Posch, Christian; Richtig, Erika; Rompel, Rainer; Sachse, Michael M; Sauder, Stefanie; Schadendorf, Dirk; Schatton, Kerstin; Schulze, Hans-Joachim; Schultz, Erwin; Schilling, Bastian; Schmuth, Matthias; Simon, Jan C; Streit, Markus; Terheyden, Patrick; Thiem, Alexander; Tüting, Thomas; Welzel, Julia; Weyandt, Gerhard; Wesselmann, Ulrich; Wollina, Uwe; Ziemer, Mirjana; Zimmer, Lisa; Zutt, Markus; Berking, Carola; Schlaak, Max; Heppt, Markus V; Dermatologic Cooperative Oncology Group (DeCOG).

in: J CANCER RES CLIN, Jahrgang 147, Nr. 6, 06.2021, S. 1763-1771.

Publikationen: SCORING: Beitrag in Fachzeitschrift/ZeitungSCORING: ZeitschriftenaufsatzForschungBegutachtung

Harvard

Steeb, T, Wessely, A, Alter, M, Bayerl, C, Bender, A, Bruning, G, Dabrowski, E, Debus, D, Devereux, N, Dippel, E, Drexler, K, Dücker, P, Dummer, R, Emmert, S, Elsner, P, Enk, A, Gebhardt, C, Gesierich, A, Goebeler, M, Goerdt, S, Goetze, S, Gutzmer, R, Haferkamp, S, Hansel, G, Hassel, JC, Heinzerling, L, Kähler, KC, Kaume, KM, Krapf, W, Kreuzberg, N, Lehmann, P, Livingstone, E, Löffler, H, Loquai, C, Mauch, C, Mangana, J, Meier, F, Meissner, M, Moritz, RKC, Maul, LV, Müller, V, Mohr, P, Navarini, A, Van Nguyen, A, Pfeiffer, C, Pföhler, C, Posch, C, Richtig, E, Rompel, R, Sachse, MM, Sauder, S, Schadendorf, D, Schatton, K, Schulze, H-J, Schultz, E, Schilling, B, Schmuth, M, Simon, JC, Streit, M, Terheyden, P, Thiem, A, Tüting, T, Welzel, J, Weyandt, G, Wesselmann, U, Wollina, U, Ziemer, M, Zimmer, L, Zutt, M, Berking, C, Schlaak, M, Heppt, MV & Dermatologic Cooperative Oncology Group (DeCOG) 2021, 'Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG)', J CANCER RES CLIN, Jg. 147, Nr. 6, S. 1763-1771. https://doi.org/10.1007/s00432-020-03450-0

APA

Steeb, T., Wessely, A., Alter, M., Bayerl, C., Bender, A., Bruning, G., Dabrowski, E., Debus, D., Devereux, N., Dippel, E., Drexler, K., Dücker, P., Dummer, R., Emmert, S., Elsner, P., Enk, A., Gebhardt, C., Gesierich, A., Goebeler, M., ... Dermatologic Cooperative Oncology Group (DeCOG) (2021). Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG). J CANCER RES CLIN, 147(6), 1763-1771. https://doi.org/10.1007/s00432-020-03450-0

Vancouver

Bibtex

@article{e7a2d8919ec14ccd9aad9dea4e173f32,
title = "Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG)",
abstract = "PURPOSE: Uveal melanoma (UM) is an orphan cancer of high unmet medical need. Current patterns of care and surveillance remain unclear as they are situated in an interdisciplinary setting.METHODS: A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated.RESULTS: 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures.CONCLUSION: Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for the treatment and surveillance is urgently needed.",
author = "Theresa Steeb and Anja Wessely and Mareike Alter and Christiane Bayerl and Armin Bender and Guido Bruning and Evelyn Dabrowski and Dirk Debus and Nina Devereux and Edgar Dippel and Konstantin Drexler and Pia D{\"u}cker and Reinhard Dummer and Steffen Emmert and Peter Elsner and Alexander Enk and Christoffer Gebhardt and Anja Gesierich and Matthias Goebeler and Sergij Goerdt and Steven Goetze and Ralf Gutzmer and Sebastian Haferkamp and Gesina Hansel and Hassel, {Jessica C} and Lucie Heinzerling and K{\"a}hler, {Katharina C} and Kaume, {Kjell M} and Wolfgang Krapf and Nicole Kreuzberg and Percy Lehmann and Elisabeth Livingstone and Harald L{\"o}ffler and Carmen Loquai and Cornelia Mauch and Johanna Mangana and Friedegund Meier and Markus Meissner and Moritz, {Rose K C} and Maul, {Lara Valeska} and Verena M{\"u}ller and Peter Mohr and Alexander Navarini and {Van Nguyen}, Ahn and Christiane Pfeiffer and Claudia Pf{\"o}hler and Christian Posch and Erika Richtig and Rainer Rompel and Sachse, {Michael M} and Stefanie Sauder and Dirk Schadendorf and Kerstin Schatton and Hans-Joachim Schulze and Erwin Schultz and Bastian Schilling and Matthias Schmuth and Simon, {Jan C} and Markus Streit and Patrick Terheyden and Alexander Thiem and Thomas T{\"u}ting and Julia Welzel and Gerhard Weyandt and Ulrich Wesselmann and Uwe Wollina and Mirjana Ziemer and Lisa Zimmer and Markus Zutt and Carola Berking and Max Schlaak and Heppt, {Markus V} and {Dermatologic Cooperative Oncology Group (DeCOG)}",
year = "2021",
month = jun,
doi = "10.1007/s00432-020-03450-0",
language = "English",
volume = "147",
pages = "1763--1771",
journal = "J CANCER RES CLIN",
issn = "0171-5216",
publisher = "Springer",
number = "6",

}

RIS

TY - JOUR

T1 - Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG)

AU - Steeb, Theresa

AU - Wessely, Anja

AU - Alter, Mareike

AU - Bayerl, Christiane

AU - Bender, Armin

AU - Bruning, Guido

AU - Dabrowski, Evelyn

AU - Debus, Dirk

AU - Devereux, Nina

AU - Dippel, Edgar

AU - Drexler, Konstantin

AU - Dücker, Pia

AU - Dummer, Reinhard

AU - Emmert, Steffen

AU - Elsner, Peter

AU - Enk, Alexander

AU - Gebhardt, Christoffer

AU - Gesierich, Anja

AU - Goebeler, Matthias

AU - Goerdt, Sergij

AU - Goetze, Steven

AU - Gutzmer, Ralf

AU - Haferkamp, Sebastian

AU - Hansel, Gesina

AU - Hassel, Jessica C

AU - Heinzerling, Lucie

AU - Kähler, Katharina C

AU - Kaume, Kjell M

AU - Krapf, Wolfgang

AU - Kreuzberg, Nicole

AU - Lehmann, Percy

AU - Livingstone, Elisabeth

AU - Löffler, Harald

AU - Loquai, Carmen

AU - Mauch, Cornelia

AU - Mangana, Johanna

AU - Meier, Friedegund

AU - Meissner, Markus

AU - Moritz, Rose K C

AU - Maul, Lara Valeska

AU - Müller, Verena

AU - Mohr, Peter

AU - Navarini, Alexander

AU - Van Nguyen, Ahn

AU - Pfeiffer, Christiane

AU - Pföhler, Claudia

AU - Posch, Christian

AU - Richtig, Erika

AU - Rompel, Rainer

AU - Sachse, Michael M

AU - Sauder, Stefanie

AU - Schadendorf, Dirk

AU - Schatton, Kerstin

AU - Schulze, Hans-Joachim

AU - Schultz, Erwin

AU - Schilling, Bastian

AU - Schmuth, Matthias

AU - Simon, Jan C

AU - Streit, Markus

AU - Terheyden, Patrick

AU - Thiem, Alexander

AU - Tüting, Thomas

AU - Welzel, Julia

AU - Weyandt, Gerhard

AU - Wesselmann, Ulrich

AU - Wollina, Uwe

AU - Ziemer, Mirjana

AU - Zimmer, Lisa

AU - Zutt, Markus

AU - Berking, Carola

AU - Schlaak, Max

AU - Heppt, Markus V

AU - Dermatologic Cooperative Oncology Group (DeCOG)

PY - 2021/6

Y1 - 2021/6

N2 - PURPOSE: Uveal melanoma (UM) is an orphan cancer of high unmet medical need. Current patterns of care and surveillance remain unclear as they are situated in an interdisciplinary setting.METHODS: A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated.RESULTS: 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures.CONCLUSION: Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for the treatment and surveillance is urgently needed.

AB - PURPOSE: Uveal melanoma (UM) is an orphan cancer of high unmet medical need. Current patterns of care and surveillance remain unclear as they are situated in an interdisciplinary setting.METHODS: A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated.RESULTS: 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures.CONCLUSION: Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for the treatment and surveillance is urgently needed.

U2 - 10.1007/s00432-020-03450-0

DO - 10.1007/s00432-020-03450-0

M3 - SCORING: Journal article

C2 - 33219855

VL - 147

SP - 1763

EP - 1771

JO - J CANCER RES CLIN

JF - J CANCER RES CLIN

SN - 0171-5216

IS - 6

ER -